Hypocondriac or Symptomatic

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JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 2/3/2009 11:32 PM (GMT -6)   
Hello everyone. I guess I am what you would call a lurker. I found this site after going through robotic surgery in August. I have really appreciated the men ( and women) sharing their most intimate of stories with us that really needed to hear it. To all of you thank you. A little about me. I'm married to a wonderful woman for 15yrs. I have three beautiful daughters all under 8. I'm 44. I've never been sick. I've always been athletic, played football, trained in mixed martial arts. I'm 6'4" my weight usually remained stable around 240 (summer)to 250lbs (winter). I gotta admit. I always thought I was a pretty tough guy, not afraid of anything or anybody. I went in for my job's annual physical (I missed last year's physical due to a broken ankle sustained during a training incident). During the DRE the doc told me he felt a small lump on my prostate and I should get it looked at. I brushed it off. When I received my physical results the nurse had attached a large handwritten note insisting I follow up on the lump. At the time my PSA was 0.9. (I didn't know what PSA was or meant at the time). I saw a urologist who felt the same small lump and had me take a biopsy. 3 of 12 cores came back positive. Until the doctor told me never in a million years did I even consider that fact that I could possibly have prostate cancer. I had no symptoms. When the doc said I had prostate cancer I felt a cold chill rip through my entire body. I was shocked, stunned. I felt raw fear like I've never felt before but because my wife was right there ( and crying) I held it together and asked how long I had to live. My world was turned completely upside down, I figured I had months to live. Doc explained otherwise.  I had RP in August 08. Post Op patology report was clean, contained, negative margins. My first post-op PSA test in December was <0.1. My best friend's father died of prostate cancer two years ago and I saw him near the end, it wasn't pretty. He had the radiation seeds no surgery 6 years ago. Different symptoms my friend told me his father experienced I believe I am experiencing also. My friend's father cancer had spread to his throat and it was hard for him to swallow. I think I feel something in my throat and upper chest. I read about the hip and spinal bone pain once the cancer spreads now I think I have a pain in my lower middle back right where the spine meets the pelvis. My upper thigh looks a little swollen on the left side and the left side hip joint has been feeling a little sore sometimes. Every now and then I think I feel a slight throb on my righ hip. Since this dx I have gained 20 lbs due to cancelling my exercise program. Head wasn't in it, afraid exercise would help the cancer to grow. Every little thing I feel I try to guess if it's muscle or bone pain. I have recently began running and traininng again as I am geting too fat.  My lower back feels funny sometimes after I've been sitting down for a while.  My spine feels funny sometimes. I know this was a long post but it's driving me crazy. Am I a hypocondriac or experiencing symptoms. My doc said it's all in my head due to my low psa. Do you think I'll live to see my 70's.

Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Open RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/4/2009 12:10 AM (GMT -6)   

JerseyG,

You are very welcome and thank you for "unlurking"... turn ...welcome to HealingWell, although I am beginning to believe I should also issue a welcome to all those looking in on us.  In fact you have taught me that I should.  But first, don't worry too much.  I am shooting for 80 and things didn't go quite as well for me after surgery.  But still, I keep the hope ahead.  I know what it's like to feel a crick or tick and ask, is it back?  But no, it isn't.  I just get back to living a good life.  Thank you for signing in.  I am sure you know how it works here.  Say what you really mean and learn from others just like you in this brotherhood.

Peace,

Tony



Jetlagged
Regular Member


Date Joined Jul 2008
Total Posts : 29
   Posted 2/4/2009 1:31 AM (GMT -6)   
G:

Oh believe me...I get it.

Between my biopsy and my surgery I had ALL kinds of "phantom" pains, leading me to believe that the hand grenade had already gone off. Then after my surgery and pathology came back clean (along with the normal healing pains/time) it all went away. I then had three <0.01 PSA's over a year and I started making headway with leaking and ED. Then, at my one year mark my PSA comes in AT 0.01 (not less than like before). My three doctors (all urologists/surgeons that I see for different reasons all said not to worry, that it was likely lab slop or that the techs simply left the < symbol off the report (he said "it happens a lot")). Then...all of a sudden the pains re-surface. Now I am pretty darned sure that at a PSA of 0.01 it's pretty much impossible that I have prostate cancer capable of producing any symptoms or pain, but isn't the mind incredibly powerful?

Sometimes I wish I got hypnotized right after the surgery to forget the whole thing and simply roll the dice in this crap game. confused
Robotic RP 12/07
Age 46
Pre-surgical PSA 5.02
Bone scan/Chest X-ray clear
All margins, seminal vesicles, 17 lymphs clear
3+4=7
Three Post-surgical PSA's <0.01


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 2/4/2009 6:20 AM (GMT -6)   
Hello and welcome,

I really think that when we have an experience with cancer ourselves, and then compare this to loosing a friend from cancer too, that anxiety causes lots of things to happen physically when we ponder and worry and reflect on symptoms. It happened to my husband and I both, after we lost a good friend to another cancer last year (well after my husband had recovered), and it took some time to get over, although we both were actually healthy. I feared that something would happen to me and our young son would suffer too, but it ended up to be all anxiety. I even avoided all health checks for a while and worried endlessly until I finally had a checkup (on the advice of a friend in whom I confided these sorts of fears), to find out that all was well... The fears are real however. Have you considered seeing a doctor and discussing these things or getting them checked out anyway? Maybe with a general checkup your mind could be eased more. Your recent PSA and path report would get the "thumbs up" here. All good. Wishing you peace of mind anyway. I am sure others will be able to offer some better advice and insight, but just saw your post and thought I would respond. Good luck and thanks for unlurking as TC has said.
cheers & good health to you, your wife and your beautiful girls!
Creed_three
Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03: November, 2008 (repeat PSA with instructions to lab to calibrate carefully) = 0.02.
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/4/2009 8:51 AM (GMT -6)   
Jersey,
First of all, brother, welcome to our brotherhood. Glad you been lurking, glad you decided to join. As usual, we are sorry you need to be here, but glad you found us.

What I detect, and it is most normal, is a continuation of the fear/anxiety that is expected with any cancer dx, let alone PCa. You are a young (for PC) happily married father of 3 in great physical shape. And then blam, you get hit with this thing. It's not something you just get over with simple mind power, and we sure wouldn't want you to dig a hole and go into denial about it.

The good news is right in front of you. Low PSA to start with, a Gleason 6 before and after surgery, good pathology report, and a great post surgery PSA test. For someone with PC that just had surgery, you are doing pretty darn good.

I drive my wife crazy with my speculations about new pains and aches and weird feelings. But fortunately, in my case, she's a very experienced nurse, and hears stuff from her patient's all day. She listens well, and then determines if my imagination is getting in the way. Thankful for that voice of reason.

Plus, you are still recovering from a major operation, doesn't matter if it were robotic or open like mine, that alone puts the body and mind under a lot of stress. Some feel that a full recoup doesn't take place till about the one year mark, of course that would be different for each person depending on their overall health and situation.

What you need to do, and I am learning this too ,is to get back to the land of the living. Enjoy your lovely wife and family, your girls. Do the things you like doing pre-surgery and pre-PC. Not always easy to do, I know, but you have to keep trying. I wish I had our age difference, it might have made my recovery a bit easier along the way.

You are doing well brother, it sucks that you got hit out of the clear blue with PCa, but you did, and you have been dealing with it the best you can. To answer your last question about making it to 70, no way to give an answer, out of our hand and out of your hands. You might get hit by a bus in a week, or you may get shot by a jealous husband when your turn 90.

And if, and certainly don't know, you weren't leading the healthiest of lifestyle, then do like I am doing, make some healthy changes in your life, so that you will love longer and healthier.

Glad you are here, hope we can help, we will all be pulling for you.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 2/4/2009 9:34 AM (GMT -6)   
JerseyG- Hi Buddy:
 
Death is life's ultimate experience, isn't it- many have gone before- the rest of us in time. As remote as death appears for you ,based upon your condition and readings, spend some time thinking about it- accept it as a possibility - embrace it -and work back from there. If you can accomplish this, you will find peace - these phantom symtoms will disappear.
 
Appreciate and enjoy every moment with your family. Work hard - play hard. Live your life in hope and optimism, not fear. Don't let this cancer diagnosis drag you and your family down.You can make it a positive life-changing experience for all. You can do it.
 
I wish you all the best.
 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
 
  "There may come a day when the courage of men will fail, but it will not be this day."


JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 2/4/2009 10:06 AM (GMT -6)   
I thank everyone who posted a reply. Just to clarify a few items. I don't obsess about it. I'm a pretty normal guy. After my dx I brought a few books and read everything I could find about this thing on the web, the good the bad and the ugly. When I'm sitting around by myself with nothing to do I think about all the different things I have read about this beast. I start to wonder if it's still inside lurking. It's crazy because I'm a take problems head on kind of guy. With this thing, there's nothing to do but wait around and hope for the best. It just goes against my nature, it's frustrating. The phantom symptoms are not constant. I only feel them when I sit around and think about them.  So maybe it's in my head. This is my first time posting to any forum although I have been a frequent visitor to many. Reading all of your journeys really helped me. This is not something I can talk about to anyone. I'm ashamed to admit it but I don't like revealing my fears to anyone. I when to one support group meeting and hung in the back. All the men there were way older than me and had mostly all had either radiation or seeds. I couldn't relate to them. I can only talk to one friend about this (friend who father had prostate cancer) and he gets the abreviated version. All of my friends see me as this strong "man's man." If not for reading your journeys I may have literally gone crazy. I just want to live to be there to teach and protect my three daughters and to grow old with my beautiful wife of 15 yrs. Thanks again.

Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Open RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1


JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 2/4/2009 11:04 AM (GMT -6)   
My problem is I have an obsessive personality.  I have to know everything. I found when researching PC there is too much conflicting information. After my dx I see life differently. My wife says in a good way. I was always busy with friends, work, and recreation. I do way more with my family post-PC. I don't take it for granted that I'll always be there. We're going to Disney for the first time in April after putting it off a few years. It took a while but I did start doing things I liked doing pre-surgery and pre-PC.  I looked in the mirror and saw a fat sorry sack, so I started a very punishing workout program for myself. I intend to be in the best physical shape I can for as long as I can because I do enjoy that. I've always had a pretty healthy lifestyle. Except for my love of beef and things fried and grilled. lol After my diagnosis I changed my eating habits, no more beloved beef, no more milk, more brocolli, blueberries, pomegrant, vitamin D, etc. I will do all that I can do, it is all that I can do.  One last question, a lot of information sites proudly advertise an almost 100% 5 year survival/cure period for PC? I read PC can take longer than 5 years to spread with no treatment?? I mean, hopefully I have at least 25+ in me. I found a few sites that also mentioned a 10 and 15 year span of time as long term?? That works if you're in your late 60's and 70's but what about us in our 40's? 10 and 15 years are nothing to guys like me. Thanks again.

Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Open RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 2/4/2009 11:44 AM (GMT -6)   
Hi Jersey-
Welcome to HW! I believe HW to be the best site for patients and families dealing with PC. I am truly sorry you have to be here, and I get your obsessive personality. I was also completely obsessive when my father was diagnosed.
I think it is how many of us deal with PC, instead of melting down, we react. I had folders put together for all my father's dr's that contained all his reports, was familiar with all the latest studies and knew all the top doctors. Did it help? Absolutely. Was it a little unhealthy? Maybe. It was how I dealt with cancer. Things changed for me and I was able to reach a point, where I knew I had done all the research I could. I will continue to stay on top of current research, but unfortunately, I realize I personally will never find the cure for cancer. I hope that you will also reach the point, where you sleep easy knowing you have done everything in your power. We all know we can never turn out back on cancer again, but I hope you also know how curable this disease is, especially with your numbers. Honestly, I think your PSA is the lowest pre-op PSA of a cancer patient I have seen. You have every reason to believe you are cured and will die at a ripe old age. If I were you, I wouldn't be hoping for 25+ years, I would be hoping for another 44. Hang in there and keep positive friend.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 2/4/2009 2:50 PM (GMT -6)   
JerseyG-Welcome to HW. I am glad things are going well for you. I also understand where you are. I am just a little older than you but we could probably change places with everything else. I also looked around and all the research is for older men. It is a little tough not knowing. Because we are take charge guys and this is out of our control, I think it makes things tough. I am a cop, instructor of cops/swat guy in a busy city. At our yearly physical agility I surpass guys more than half my age. I rarely see a doctor (previously) and was involved in everything. This PC knocked it right out of me. I have been struggling with it from dx until now. The more I am here the better I do. The forum helps me relate to others and maybe that is my way taking charge. Hang in there man. Love your wife and girls and take charge there. Hopefully we will all make it to our 80's with none the worse for wear.
Tim
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03


JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 2/4/2009 3:13 PM (GMT -6)   
Hey vs1vs2 we have more in common than you think. I've been in Law Enforcement since right out of college, a little over 22 years. I was gonna stay in my job a little while longer, now I'm just waiting to get my 25 so I can retire and enjoy the rest of my life. You're right this forum is a great resource and a good way to vent all my pent up thoughts on PC. I wonder how many other guys are in their 40's here. 
Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Open RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 2/4/2009 3:53 PM (GMT -6)   
Jersey...I am beyond the 40 mark for sometime now...and believe me ....there are way too many 40's guys here...way too young as far as I concerned...but I hate seeing anyone at any age having to deal with this. I think that in the years ahead as PSA screening becomes more and more we will see many men in their 30's and 40's being diagnosed. These same men years ago most likely would not have even known until much later in life because for the most part the cancers are slow growing. I would be willing to bet that most of the guys diagnosed now in their 50's, if they had been tested in their 40's would have been diagnosed back then. All of which makes those 10 & 15 year tables not much good for those in their 40's and 50's when you want to be living another 30 or 40+ years. I hate the idea of "only" seeing results out to 15 years which was the norm when men were diagnosed in their late 70's or 80's. But I am afraid it will be many more years before we can see the results that far out and maybe by that time we will have a cure.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base) - Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (4+3) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA 5 week Oct 2008 <.05
       3 month Jan 2009 .06


JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 2/4/2009 4:16 PM (GMT -6)   
LV-TX, I have learned PC is still regarded as a "senior's" disease. The problem is the research I'm reading about now is on guys treated 10 or more years ago. I  know PC is now dx earlier due to PSA testing and DRE and treatment of PC is started at earlier stages than it was ten or more years ago. I have learned it is curable. As far as I'm concerned, I'm holding on to the fact that my PC was caught early, it was taken out before it had time to spread, and I am "cured." I won't feel cured until it's 30 years from now and I'm living with no biological reoccurrences, no PSA rising. I have learned I can live with this PC monkey riding my back, I've no choice, I just want to be around for a while enjoying the same quality of life I'm accustomed to. I think some of my problems, my phantom symptoms, stem from my being the heaviest I've ever been in my life (269). I think the extra weight is part of my problems. I have to get back down to 235-240lbs.

Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Open RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 2/4/2009 5:06 PM (GMT -6)   
Welcome JerseyG,

Congrats on the successful surgery and great pathology report. I too have gained a little weight since surgery due to the inactivity and eating well and when my weight gets up I tend to have acid reflux that causes my throat to feel swolen and even sore at times. And you are right that excess weight can cause lower back pain. I think you and I will still be posting on this board when we are 75 if we don't let our lifestyle habits cause us heart problems.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


AndrewJ
Regular Member


Date Joined Jul 2007
Total Posts : 25
   Posted 2/4/2009 5:19 PM (GMT -6)   
G'day JerseyG,

I completely understand the feeling of "why me, why so young" and the frustration at finding no statistics for younger PCa patients. Even though I found none, there are very many successful stories on this board of young guys with very good outcomes. Just that there is a tendency for those with good outcomes to drift off the board. That's why I came out of a long hibernation and "lurking" to give my 2c worth again. I learned that it is possible to have aggressive, fast-growing cancer as a person in their 40s and that if I hadn't found it then I may not have made it much past 50. I also learned that you can beat it and life can go on again something like normal and that it is possible to have had PCa and still expect to live a normal, long life. Against all the reasons not to get PCa in your 40s, there are definately advantages: healing and recovery time and I think outcomes in terms of continence and potency.

You can see my story in the signature. Immediately dry and ED never a problem. Of course, I could have put the idea of being a victim of PCa behind me and moved on. But after the shock of the diagnosis, the stress and obsession leading up to surgery and the recovery, I remain proudly a PC brother and it remains a life-changing experience and it has redefined me. I take every opportunity to speak about my experience, especially to friends of friends diagnosed at an early age. I said I would never forget what I learned about priorities and life itself from having this disease. I have to work hard to remind myself sometimes, but it is definately still there.

One experience as a younger patient: after the diagnosis I embarked on a magical mystery tour of all the best treatment centers in Germany to find the surgeon I wanted to operate on me. In one city where the surgeon was quite well renowned, I sat in the waiting room while his nurse announced to all the other patients " how nice it is to have someone young". I could have happily throttled her.

Stay positive. Work actively for the best success possible and know that this is not a death sentence and there can be positive outcomes.
46 years old (45 at diagnosis), Australian living in Germany
PSA: started around 3.5 in 2005, 6.1 at time of surgery
Biopsy: nothing found in 2006, 3 May 2007 3 of 24 cores positive, Gleason 3+3 or 3+4 depending on pathologist
RPE in Munich, Germany on 22 June 2007
Post surgery pathology: organ confined but less than 1mm from margins, Gleason 3+3, pT2c, Lymph nodes removed and clear
First post-surgery PSA 31 July 2007: 0.01 Confirmed every 3 months since. Fully continent immediately after removal of catheter on Day 8.
No potency issues but still taking small doses of generic Levitra "as required" as my security blanket.
This man knows he has been VERY lucky.


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 2/4/2009 5:19 PM (GMT -6)   
LV-Tx is right. Most data out there is in reference to men much older than 40s and 50s when diagnosed. When I was diagnosed, those statistics scared me to believe I could expect about 10 more years. That would put me at 60. Hey, I thought, I want this ride to last longer than that! After I considered the age most men are diagnosed I began to feel much better. I've had only one post op PSA and it came back <.01. That's good enough for me. I'm not looking back. I'm calling myself CURED! Keep up the fight.
Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00


JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 2/4/2009 6:35 PM (GMT -6)   
AndrewJ, I appreciate your post. For some reason I never thought "why me" My thought process is more of "it had to be someone, why not me." This is the same thought I have when I buy my weekly lottery ticket.  I wish it wasn't me but I wouldn't wish this on anyone. Maybe it was my love of well cooked red meat and milk, I don't know, just dealing with the reality now.  You might have something there about younger age being a positive factor in healing, recovery, incontinence, and potency. I had no problems there. I just have to get over my hypocondriac problems. I'm not use to unconciously paying so much attention to every little sensation of my entire body, every throb, ache, creak, or anything other absolute normalcy.  To you Sandstorm, I hope to be continuing this post at 75 brother. Let's both go on a diet. I did read obesity can be a contributing factor.
Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Open RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/4/2009 7:35 PM (GMT -6)   
Jersey,

What you say about being oversensitive to the smallest thing, more common here then you think here. Think what you went through to this point, think of dealing with the cancer in general, you get a little gun shy about every little change. I am still like that, drive my wife crazy sometimes. And don't blame yourself for getting the cancer, there are men who are avid health devotees, and men that are vegetarians that get it. You got it, you are dealing with, you are young at 44. I wish you all the best, and hope you slowly return to the living and enjoy the parts of your life you liked before cancer.

david in sc
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 2/4/2009 10:46 PM (GMT -6)   
JerseyG-I added my e-mail to my profile. E-mail if you get a chance.
Tim
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 2/5/2009 9:42 AM (GMT -6)   
Jersey,
 
Sounds like it is going your way as much as possible.  Good post op report and you have a great outlook.  Of course you need to be vigiliant but I don't think there is any reason for you to believe that the PCa which now seems to be gone is going to shorten your life.
 
Best wishes.  Scott
Diagnosed @ 48yo 04/07
focal, low volume tumor gleason 6
RRP 07/30/07
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 PCA3 negative
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 2/5/2009 9:51 AM (GMT -6)   
gpg, thanks for the uplift. I hope your situation works out as well. Is it possible for you to have another surgery to remove the remaining prostate tissue?

Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Open RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1

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