For the advanced guys

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Veteran Member

Date Joined Oct 2008
Total Posts : 3257
   Posted 2/9/2009 9:02 PM (GMT -6)   
I would like to send out a great big northwest hello to all of you at H.W. but especially you men like myself who suffer from advanced disease. Our challenges are different than the men who's options include the hope of a cure. We do not have surgery as an option. We must depend on hormone therapy, chemo, and clinical trials. It is not always easy to remain positive. We live with fear of our own demize. We never plan too far into the future. We live each day one day at a time and pray for a miracle cure to be discovered. I am here to tell each of you that there is hope. We can beat this disease. I believe it with all my heart. My heart goes out to each of you and I extend this invitation of friendship to  to each of you. E-mail me anytime. Todd 
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 2/10/2009 7:11 AM (GMT -6)   
Good morning, Todd,
Some could have said my disease was inoperable, but I am glad we took it out. No it isn't always easy to remain positive, but I have seen some incredible resiliency from the guys right here since my journey started. While not as progressed as others, I have advanced cancer none the less. I have always said there is Faith (for those who would have it), Love, and Hope. And for that reason I don't live...shorter of breath, one day closer to death. (name that tune). I do pray for that cure but also for peace for us all. And you are right ~ we can beat this disease! Remember my motto, my friend.

Forget the Email...I will call you today.

Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
My Journal is at Tony's Blog  

Doting Daughter
Veteran Member

Date Joined Aug 2007
Total Posts : 1064
   Posted 2/10/2009 10:37 AM (GMT -6)   
Thanks for the wonderful post Todd. I get up everyday with the hope that my father's disease is cured. I know the statistics do not point in that direction, but I have hope. I have hope that the studies currently underway will keep buying time until there is a cure. I have hope that he will be one of the lucky ones whose lymph node involvement was just in the pelvic area and was cured by radiation. I have hope that all of you also suffering advanced disease will beat the odds and become medical miracles. Hope is an amazing thing.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum

Regular Member

Date Joined Sep 2008
Total Posts : 143
   Posted 2/10/2009 10:52 AM (GMT -6)   

Great post Todd. I was looking at a chart yesterday that identifies who is in the low, moderate and advance (or aggressive) categories. Some of my stats fell in all three, so I don't know where I am. PSA at Dx was 4.4, which indicates low aggresswion, Gleason 7 says moderate, and number of cores positive and density say I have aggressive PCa. Just goes to show that each case is different. But you are exactly right, whatever the case, we have hope. Thanks for the reminder.

Bill in San Diego

Age 60 (59 when Dx) PSA 4.4
Biopsy 5/15/08 Gleason (3+3=6)
Bone scan and pelvic CT: clear
HT - 2 mo Casodex, 3 mo Trelstar
RRP Surgery 9/15/08 La Mesa California
Geason 3+4=7, Stage pT2c pN0 MX
Seminal vesicals, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free
Perineural invasion & Distal Margin: Carcinoma present
IMRT adjuvant radiation (35 Treatments) End 1/27/09
PSA (10/13/08): <0.1

Veteran Member

Date Joined Dec 2008
Total Posts : 3149
   Posted 2/10/2009 5:20 PM (GMT 0)   
We are with you brother as a group and individually, will drop you an email soon too.


Veteran Member

Date Joined Jul 2008
Total Posts : 637
   Posted 2/10/2009 11:39 AM (GMT -6)   
Thanks Todd...for the post. I love Emily Dickinson's quote about hope:

“Hope is the thing with feathers, that perches in the soul, and sings the tune without words, and never stops at all.”

We keep hopeful....Pete has been in this battle for eight years, and it seems somehow easier as time goes on. You CAN learn to live with it..and even have fun and laugh..... Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!

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