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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/10/2009 1:00 PM (GMT -7)   
In another post, I noticed you joined in 2005. You must be worlds record lurker after surfacing now. (Yeah, I know you posted at least once in another Forum, but still...........) lol Welcome to the Forum..
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months

Post Edited (James C.) : 2/10/2009 1:06:01 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/10/2009 1:04 PM (GMT -7)   
We do welcome you JimbStars, lurker or no lurker, hope we can help you and be here to support you, whatever your needs are at this time.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/10/2009 3:38 PM (GMT -7)   
Hey thanks for the welcome.

Who would think that 4 years ago I might be needing this website for real. Surely no inkling way back then.

(Except BPH symptoms way back then).

In fact recently I was all geared up to see if the Marshall Protocol would be able to fight my BPH
(since anecdotal evidence among those members showed reducing BPH symptoms and PSA levels in a couple of cases as they moved along).

I even tested with a 48 ng/ml 1,25D level -- indicating systemic infection.

Well the PCa came along and although I could have tried for a year or two to use MP to bring down my prostate size
( and who knows maybe even eradicate the cancer in the process). I figured it was a bit too much of
a gamble since although the MP seems good at keeping Ca away from the members ( who are all by definition at elevated risk of it)-- it is less likely to be able
to get rid of it once it has started.

But I do plan to start er up (on the MP in a month or two for other reasons) and it just might prevent any
new Ca's from starting up.

This all based on the notion that inflammation sets the groundwork for Ca and the MP is good at eradicating
the bacteria that cause such chronic inflammation.

Time will tell, but then a negative result for more Ca over the years could just mean I was lucky so being on the MP won't
really be proof of prevention.

back to lurkin' !!

jim
Age 58, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 Positive of 12 cores 5%, Gleason 3+3 - Sona showed 140+ ml prostate size.
Prostate way too big for any Rad treatment or even trying to shrink.
open RP surgery 02/03/9, Nerve sparing, 2 days hospital, cath due out on 2/19/9
Post-surgery Pathlogy Report -- none yet -- Doc said all went well. Visit 2/12/9.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/11/2009 12:02 AM (GMT -7)   
Hi Jim,
Every time I get to feeling like I've been around here a long time someone always shows up and makes me feel like a new guy again...lol. I haven't formally met you, I don't recall, but James is correct ~ you belong in the Guinness Book of World Lurkers. I am sorry you joined us for this reason, but you know your way around here. Even though you post about once a year, we're glad to have you. I hope you don't wait until next year to give us an update...lol Welcome again.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/12/2009 7:42 PM (GMT -7)   
Might as well keep this topic going fo my own use for a while.

Post-op (+8 days) meeting and review of the Pathology Report:

Still Gleason 6 (3+3) 3 of 9 Blocks in right lobe -None in Left. pT2a.

Regional Lymph nodes 9 checked - 0 Involved.

Margins:
Capsular - Free of Tumor
Bladder Neck - Free of Tumor
Urethral - Free of Tumor

Extraprostatic Extension - Absent

Seminal Vesicle Invasion - Absent

Perineural Invasion - Absent

Right Pelvic Lymph Node - free of tumor

Left Pelvic Lymph Node - free of tumor

So that is all good stuff .. just have to see what happens with each PSA check for now on.

I also got the whole surgeon's report -- fascinating reading -- although who knows what most of it means!!?

Another week of the catheter - yeah these guys are conservative about keeping it in for 2+ weeks.

She mentioned ED therapies starting at about 6 weeks.

That is all for now.
Age 58, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 Positive of 12 cores 5%, Gleason 3+3 - Sona showed 140+ ml prostate size.
Prostate way too big for any Rad treatment or even trying to shrink.
open RP surgery 02/03/9, Nerve sparing, 2 days hospital, cath due out on 2/19/9
Post-surgery Pathlogy Report -- none yet -- Doc said all went well. Visit 2/12/9.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/12/2009 7:57 PM (GMT -7)   
Jimb, sounds like a pretty good post surgery pathology report, that's encouraging. Hope you continue to heal well, glad you are on this side of things.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/16/2009 10:39 AM (GMT -7)   
James/Dave/Tony ...

I laugh about the long lurking time and your amazements. This old joke/story explains it:

Let me start off with a little story. It's about a young man who never spoke. Not a word in his entire life. One day he was having breakfast with his family, and to the amazement of all, he said, "Hey Ma, this oatmeal's got lumps in it." After the initial excitement subsided, his mother composed herself and asked him, "John, you never spoke before in all these years; why now?" And John said, "Up until now, everything was ok".

Hah hah hah ... so same for me. Until now, everything was OK (healthwise).

(also never really moniitored this website after signing up -- until now of course, so I was never a real lurker either ).

Jim
Age 58, 192lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed 140+ ml (110 grams) prostate size.
Prostate way too big for any Rad or Seed treatment or even trying to shrink.
open RP surgery 02/03/9, Nerve sparing both sides, 1 day in hospital, cath due out on 2/19/9
Post-surgery Pathlogy Report - All margins clear - No Invasive spread - no change in Gleason score.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/16/2009 12:06 PM (GMT -7)   
oh i see now, a lurker wannabe, lol, well jim, we are happy you are here with us regardless of your level of lurkiness.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 

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