Dear Oncas, I really understand your fear and also frustration. Men like to "fix" or "solve" or "get over" problems.....This Pca is a real beast that really no one can answer your questions....You just have to really look into all of the options....and there are many now...and then decide and see what happens.. In our case, we, and the doctors, thought the cancer had escaped the capsule initially, that is why Pete did radiation and seeds....however, it probably had not.....then we were left with few options...the salvage surgery at that point, left Pete with many SEs, but did debulk the tumor, which has given time to see what will happen next.....If he had done surgery to begin with, he then could have had radiation... the reverse is not so good....
Good luck to you and try not to worry. We are here for you to ask questions or to vent or just to add your two cents....We all do. Diane
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!