Anyone use Memorial Solan Kettering

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cvc
Regular Member


Date Joined Jun 2008
Total Posts : 440
   Posted 2/13/2009 6:25 PM (GMT -6)   
I hear alot of good about this hospital anyone here use them for PC
will be 50 years old this year ( 2009 )
 
Uro said enlarged prostate 
 
DRE Negitive
 
Psa  2003- .55
 
     2007 - .99
 
     2008 -  1.01
 
watchfull worrier , lol


cvc
Regular Member


Date Joined Jun 2008
Total Posts : 440
   Posted 2/14/2009 3:55 PM (GMT -6)   

Hummm noone here hs used them I thought they were one of the supposed to be "best" for Pc ???

 

Asking for a friend


will be 50 years old this year ( 2009 )
 
Uro said enlarged prostate 
 
DRE Negitive
 
Psa  2003- .55
 
     2007 - .99
 
     2008 -  1.01
 
watchfull worrier , lol


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/14/2009 5:57 PM (GMT -6)   
Hang in there cvc...There are quite a few that I have seen going there over the time I have been here. divo is one I know for sure. But I have seen others as well. Anyone using the MSK initials has been there.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 2/14/2009 7:33 PM (GMT -6)   
Hi cvc, We go to an oncologist at MSK, also had several different surgerys there: Salvage prostectomy, fistula, AUS800, ....What do you want to know about? Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Hip replacement total success..pain gone!!
PSA .7 2/10/09


Godfather
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/14/2009 7:52 PM (GMT -6)   
Hi cvc.

I've been speaking with James Eastham, MD, the Urology Chief of MSK for the past few weeks. I'm trying to decide whether to have my surgery up there. What about Sloan do you want to know? My daughter-in-law is a nurse there in Urology.

Tony
Age at diagnosis 61  5'8" 260 lbs.
Resides in SW Florida
12/07 PSA 2.6  12/08 PSA 4.0
Biopsy 1/09 - 6 of 8 nodes positive 
Left - 2 of 4 positive, 2% involved, 4+3=7 Gleason
Right - 4 of 4 positive, 40% involved, 4+3=7 Gleason
Perineual invasion is present 
DRE small nodule on right - Prostate 22.6 cc's
 


cvc
Regular Member


Date Joined Jun 2008
Total Posts : 440
   Posted 2/14/2009 9:18 PM (GMT -6)   

A friend is considering robotic surgery there

 

Used to hear alot of good about them


will be 50 years old this year ( 2009 )
 
Uro said enlarged prostate 
 
DRE Negitive
 
Psa  2003- .55
 
     2007 - .99
 
     2008 -  1.01
 
watchfull worrier , lol


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/14/2009 9:27 PM (GMT -6)   
No used to about it cvc...It's a great facility...


Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 2/15/2009 8:33 AM (GMT -6)   
Peter Scardino wrote a book about Prostate Cancer, and he was in charge of the Urology Dept. I think Eastham is now according to Godfather....Dr. Eastham operated on Pete. We have Dr. Basch for oncologist. They both said that salvage surgery would the appropriate choice for Pete. ? The only thing I can tell you: it is like a factory, it may be very good , but you are a number..no doubt...We waited hours for every appointment. We live in CT and either took the train in or drove. The effort to get there alone is difficult, and then you wait and wait. We did have good doctors, but I believe there are good doctors everywhere. You just have to look around.... Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Hip replacement total success..pain gone!!
PSA .7 2/10/09


Godfather
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/15/2009 8:36 AM (GMT -6)   
I agree with Tony, MSK truly is a great cancer research and treatment facility. Personally, I will go to a robotic specialist, not MSK, if I choose robotic over open. The skill of the surgeon, the number of previous robotic surgeries, etc and not the facility itself, drives my decision. For open, however, it's MSK for me.

Cvc, any other questions, fire away.

Tony
Age at diagnosis 61  5'8" 260 lbs.
Resides in SW Florida
12/07 PSA 2.6  12/08 PSA 4.0
Biopsy 1/09 - 6 of 8 nodes positive 
Left - 2 of 4 positive, 2% involved, 4+3=7 Gleason
Right - 4 of 4 positive, 40% involved, 4+3=7 Gleason
Perineual invasion is present 
DRE small nodule on right - Prostate 22.6 cc's
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 2/15/2009 8:59 AM (GMT -6)   
Tony (Godfather), noticed on your stats you are showing aprostate size of 22.6 cc, is that correct? If that is the case, from what I've read and researched, would make it easier with a robotic with a small or smallish prostate. Some of the men with really large enlarged ones make them better candidates for open. Just a thought. Mine was 42 I believe, which my dr. said was average, but on the small side for 56 years old.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 2/15/2009 3:41 PM (GMT -6)   
I would have gone to MSk if my insurance had covered it. They are a class act and were unbelievably thorough, kind, concerned and, in my experience of talking to four surgeons, instilled an enormous amount of security. BUT, they admit they are conservative and said their DaVinci machine was gathering dust. They certainly do the DaVinci, but have not jumped on board as some hospitals have. My wife liked the free refreshments while she waited for me!

I ended up going to Mt Sinai, truly a huge city hospital, but got the concierge floor as Dr. Samadi recommended. THAT was worth the extra money. The care for my wife was unreal. Tea in the library, anything she wanted, fresh flowers everywhere. It was like a luxury hotel with hospital beds. My care was fine...I don't remember it much.

But, yes...sorry to digress....MSK is an outstanding place to go. Their surgery track record is great - no matter what method is used. You will be in the best of hands. It's a class act.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.
One year PSA - undectable!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2009 6:00 PM (GMT -6)   
The "Textbook of Genitourinary Oncology" was writtin by Scardino....with my doctor as well Nick Vogelzang. (three other well known oncologists). This publication is used in many universities. It is a top publication in the field.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 2/18/2009 9:11 AM (GMT -6)   

cvc,

I used MSK and I was very happy with the care I got from the Dr Bertrand D. Guillonneau, and the facility. He does laproscopic RP.


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08  < 0.05
2nd  post op PSA 12/30/08 < 0.05


Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 3/24/2009 9:54 AM (GMT -6)   
CVC,

I had a salvage prostatectomy at MSK in March 2008. I can't say enough good things about the doctor, staff, everyone.

spisam
Regular Member


Date Joined Jan 2009
Total Posts : 47
   Posted 3/24/2009 5:54 PM (GMT -6)   
For robotic surgery you must consult with Dr. Vipul Patel in Orlando FL. Dr. Patel has done more robotic protate surgeries than anyone else in the world. The week I had mine done he performed 24 surgeries. My out come is outstanding. The good news is that you are treated like royalty by his entire team. Also Florida Hospital is not far from Disney World and all the resort attractions. Plus lots of very reasonable motels/hotels to stay in. No ugly big city to deal with.
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