Penile Curvature

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Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 2/14/2009 2:27 PM (GMT -6)   
I have posted several times about penile curvature after RP.  Some Uro's say it is from the injections. At least mine did.  Some say it is a result of the surgery.  Some of the guys here report curvature and have never injected.  I have an appointment with a new Uro who is not a surgeon and I will ask him about it.  I have had it over 9 months now and it has stayed about the same.  I am not sure if it is peyronies or kelami's which is caused by manipulation of the uretha during surgery or inflammation from the catheter.  Does anybody have any pertinent information based on their own personal experience with this condition?
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 2/14/2009 2:48 PM (GMT -6)   
I think in my case it is due to the injections as I did not experience onset until after about 6 months of injectioin therapy. I have always been careful to alternate sides, use the smallest dose possible (in my case .15ml) and in the year and a half of injections have only done about 18.

I have a good friend who is also experiencing it. He was a bladder cancer patient who had his entire bladder removed a new one of sorts fashioned from a bit of intestine I think and in the process they removed his prostate. He has never used injeciton therapy.

Scott
Diagnosed @ 48yo 04/07
focal, low volume tumor gleason 6
RRP 07/30/07 robotic
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 PCA3 negative
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 2/14/2009 7:54 PM (GMT -6)   
Bootheel,

If the curve is still unchanged (or gets better), wasn't painful and came on suddenly, it is Kelami's syndrome, not Peyronies. At least the medical description it would be Kelami's. There isn't much written on the subject but it's thought to happen in up to 20% of post prostatectomy men. Beta blockers, Caths, injury, injections, Duprenes contracture, chronic venous leakage....there are many potential causes. The usual complaint is a sudden onset, typically not painful curvature. The pump is supposed to help. Perhaps check on the "Peyronie's Society" forum for some answers and ideas.
Swim
 


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 2/15/2009 12:23 PM (GMT -6)   
Thanks for the info swimom.
It hasn't changed, isn't painful and it did come on suddenly so that puts my mind at ease. It usually happens when I inject. I don't see it when I use the VED with the rings. Thanks again for the info.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 2/16/2009 9:05 AM (GMT -6)   
I have no idea what Kelami's is, but I can tell you that for me, the onset of Peyronie's was painful. It got to the point where it was uncomfortably painful as I was achieving an erection, the actual sex was fine, and then it would be painful again as I "decompressed." And I understand Peyronie's does not go away. Oh joy.

Just my two cents,

kcragman
Age: 53; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.
Feb 2009: PSA at 9 months was undetectable.


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 2/16/2009 4:07 PM (GMT -6)   
Hey Swim, don't know you.

Thanks for the references. In my case it is not painful, just can't have a proper penetration due to the new geometry, and it was sudden onset.

I am praying it goes away.

Scott
Diagnosed @ 48yo 04/07
focal, low volume tumor gleason 6
RRP 07/30/07 robotic
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 PCA3 negative
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney

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