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Uncle Harley
Regular Member


Date Joined Feb 2009
Total Posts : 78
   Posted 2/15/2009 5:46 PM (GMT -7)   
Hi everyone, I've been lurking here for a couple of weeks since my PCa Dx. Quite a sobering experience isn't it? A real emotional rollercoaster. Thankfully I've been very busy at work & haven't had time during the day to dwell on it. Evenings are spent finding all I can on the net. I can't thank all of you enough for sharing your experiences. It's helped tremenduosly thus far. I'm leaning towards DaVinci LRP for my solution & am meeting with the surgeon on Monday PM but have made no final decision. I've got my list of questions & we'll see what he has to say. Thanks again all.
Steady PSA rise over 8 yrs to last of 2.75
12 needle prostate biopsy Jan 09
Dx of (1) core adenocarcinoma
Gleason 3+3
Age 60


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 2/15/2009 5:50 PM (GMT -7)   
Hello and welcome to HW, Uncle Harley, sorry you need to be here, but glad you are part of us now. From looking at your stats, you are starting out pretty low grade PC, but PC still the same. Least you should have most treatment options available to you. Where are you located, what part of the country? You are right, dwelling won't help, researching all you can will help when you make your final decision for treatment. Hope we can be a big help to you, and look forward to you continuing to be here with us.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/15/2009 5:56 PM (GMT -7)   
Uncle Harley,
Welcome and great first post. I am sorry you are here, but we have an excellent group here to help. I am going to do my biweekly posts that have important information for new members. You may have seen my questions for doctors link, but if not, it will be up tonight. You may want to visit the site and print them for your next doctors visits. You numbers look good for great results. I suggest you take your time and learn all the modalities and remember you are the captain of this ship. Please make yourself at home and meet our great team...

Peace,

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Uncle Harley
Regular Member


Date Joined Feb 2009
Total Posts : 78
   Posted 2/15/2009 6:02 PM (GMT -7)   
Thanks Purgatory. I'm in N.E. Indiana, still froze-in but the thought of fly fishing soon, and gladioias & dalias blooming makes it bearable.
Steady PSA rise over 8 yrs to last of 2.75
12 needle prostate biopsy Jan 09
Dx of (1) core adenocarcinoma
Gleason 3+3 T1C
Age 60


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 2/15/2009 6:06 PM (GMT -7)   
Believe it or not, there's actually some good fly fishing (trout) here in western SC, you have the Chattoga River, more famous for being filmed in the movie Deliverence, and the lesser known Eastatoe River, near where I live. Use to do a lot of here, until my knees couldn't take the rocks and cold water anymore. Fly fishing is definitely an art form to me.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/15/2009 6:44 PM (GMT -7)   
Welcome, new friend Harley. Sounds like you've been around the place some, so settle in and stay a while... tongue
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 2/15/2009 8:07 PM (GMT -7)   
I agree with Selmer... Whoa!!!! Slow down.


I tell everyone new here to take your time and learn the treatment options available, their side effects and the impact of all this on your lifestyle and family. There is no need to rush and remember there are no do overs. Knowledge is empowerment. Urologists will near always recommend surgery, that's what they do. While radiologists will near always recommend radiation. Please take that into account. Do get other opinions from other doctors. There's much to take into account. For example I first was leaning towards robotic surgery, then brachytherapy radiation. Finally I rejected both and went with a new clinical research study I'm very happy with and it had minimal effect on me and my life. But first and foremost DON"T RUSH TO CHOOSE A TREATMENT!!!!

When everything you soon will learn becomes overwhelming I suggest you take a week off away from all of it. Later when you decide take a few days off to reflect before making the final decision. Then once you do don't look back.
Diagnosed 11/08/07 - Age: 58 - 3 of 12 @5%
Psa: 2.3 - 3+3=6 - Size: 34g -T-2-A
 
2/22/08 - 3D Mapping Saturation Biopsy - 1 of 45 @2% - Psa:2.1 - 3+3=6 - 28g after taking Avodart - Catheter for 1 day -Good Candidate for TFT(Targeted Focal Therapy) Cryosurgery(Ice Balls) - Clinical Research Study
 
4/22/08 - TFT performed at University of Colorado Medical Center - Catheter for 4 days - Slight soreness for 2 weeks but afterward life returns as normal
 
7/30/08 - Psa: .32
11/10/08 - Psa.62 - Not unexpected bounce after the 80% drop the quarter earlier. Along with urine flow readings, an acceptable amount left in bladder measured by sonic. Results warrant skipping third quarter tests, and to return April, 2009 for final biopsy scheduled to
complete clinical research study 
 
 
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 2/15/2009 8:12 PM (GMT -7)   
Hi Uncle Harley

Find out all you can about this disease and get as many Dr. opinions as you think you need to. Go to a medical facility that has a multi-diciplinary approach to treatning prostate cancer. Talk to our friends here on this forum, there is a vast amount of experience with the fine people here. Most of all please know that you can make it through this tough time. Take care of yourself and let us know how you are doing.

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
Got a shot last week and it was great
A year an a half of zero's
 


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/16/2009 4:50 AM (GMT -7)   
Also ditto to Selmer and Real Ziggy and others, very knowledgable on PCa, in my humble opinion. Your current parameters would make alot of PCa patients like to trade their stats, for yours. Assessment is the key with PCa, some patients are overtreated or treated perhaps too soon and others are undertreated and not using as big of an arsenal as they maybe they should be, not because I say so, but because books and support groups(Ustoo) and like(PCa) & PCRI-conferences with panel of experts say so and they have had tons of cases over the years that they have seen and had many patients with various scenarios and levels of PCa.

Hey even watchful-waiting (monitoring) is for real (don't know all your parameters so might not be the best for you), let's call it conservative management or such. You go to your doc fairly often in this phase and keep track of psa's- history-velocity-doubling times (if they exist even within small numbers), blood tests (looking for specialize markers-onco/doc rule in this world), and other monitoring. You can read about it on www.yananow.net or www.hypertext.org

My brother was diagnosed with very similar to what you just listed he had <5% found in 1 of 12 biopsies and Gleason 3+3=6 and psa was 1.1 and this was 4-5 yrs. ago now, he gets psa tests monitored and so far has been consistently less than the 1.1, he changed diet some although he had a conservative diet to begin with, he is older than myself and is currently 65. He may have to look at possible treatment scenario, but thus far it appears he is most likely to be safe (no guarantee though,his decisions), usually if the Gleason 3+3 is correct and PCa found volume is less than <5%....John Hopkins Hosp. has called this 'indolent PCa or insiginificant PCa', their definition not mine.

Knowledge is power, words from some of the wisest docs on overall PCa conditions- 'assessment on parameters of a patients disease' is the most important factor in PCa.

Anyway you get to analyze and decide what is right for you is the gist of the matter, highly suggest you get second opinion(s) before committing to any major modality for perhaps any medical condition, if and/or when that happens to be the actual case. I did mention my brothers w.waiting for a reason.


 

Post Edited (zufus) : 2/16/2009 11:37:31 AM (GMT-7)


Uncle Harley
Regular Member


Date Joined Feb 2009
Total Posts : 78
   Posted 2/16/2009 7:43 AM (GMT -7)   
Hold on to your Foley everyone. As I said in my original post, I've made no final decision. I'm very definatly considering Watchfull Waiting as an option. Today's meeting with the surgeon is just to get his input. I'll try to get more PSA & biopsy details up soon. The biopsy was done because the last PSA test had a slightly higher than normal velocity & the urologist said it warranted the biopsy. He indicated the prostate was slightly enlarged but smaller than most for my age. I intend to get the PSA & biopsy rechecked. Prior to the biopsy & coming here, I didn't have the knowledge to even suspect that it could be wrong. Thanks to this forum, I do now. Please know all your responses are appreciated.
Steady PSA rise over 8 yrs to last of 2.75
12 needle prostate biopsy Jan 09
Dx of (1) core adenocarcinoma
Gleason 3+3 T1C
Age 60


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 2/16/2009 8:24 AM (GMT -7)   
I agree with you, Uncle, you never said you decided on anything, you said you were"leaning", I respect that. There are many here, myself included, that never suspected a thing, some have real low psa, some never had fast climbing psa, lots never had anything unusual with the DRE, in fact, like myself, other than a fast rising PSA, never felt anything or had any other prostate problem sympton. I am glad you have a dr. that is knowledgable enough and cares enough to have you checked at this point. With your posted stats, you look like you are in the real early, non agressive stage, and would give you both time and choices to make, that others didn't have due to the degree and agrerssiveness of their PC. We are here to spew advice and our experiences, its up to you, of course, to decide what is right for you, your body, and your cancer. We will support and encourage whatever decision you make. You are now a brother of the PC, along with the rest of us.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 2/16/2009 1:54 PM (GMT -7)   
Welcome Unc.

Glad you are taking it slow. Surgery, any type is a crap shoot, even with a highly skilled surgeon. You have a tiny PSA and a minor amount of cancer. I really think you have time to examine your options, and there are many outside of surgery and radiation. I would spend time looking at all the options even if they are not being practiced in the US at the present time.  Are you having symtoms which led to the diagnosis or was it a routine exam?

Best wishes. Scott


Diagnosed @ 48yo 04/07
focal, low volume tumor gleason 6
RRP 07/30/07 robotic
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 PCA3 negative
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 2/16/2009 1:55 PM (GMT -7)   
I agree with Selmer on the 8 week gap to check PSA after a biopsy. Even a good firm DRE can make the numbers crazy, let alone a full blown biopsy.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 2/16/2009 2:23 PM (GMT -7)   

 

  Hey you're doin' fine U Harley.........where at in NE Indiana?  We have some pretty good folks here in the PCa arena.......proving once again...."there's more than corn in Indiana"


 
  age: 53  Pre-op PSA Feb 08' 5.0, April 08' 4.1
  Biopsy 5.1.08, 5 of 15 cores postive, T2a, Gleason 3+4=7
  DaVinci performed 7.29.08
  Bladder sling installed, umbilical hernia repaired during surgery.
  Path report, "cancer fully contained, margins clear".
  Cath removed 8.8.08, ED therapy begins 8.9.08
  100mg Viagra three times a week, pump for ten minutes daily
  and hold for ten minutes.
  8.16.08 switched to Levitra 20mg, immediate results
  9.15.08 Pad free at night, one thin (light) pad during the day
  9.18.08 1st Post-op PSA Undetectable Zero's....Yes!
  12.22.08 2nd Post-op PSA  Zero's still...
  Pads gone 1.3.09, finally found the courage...Thanks ya'll
          ".....tryin' to reason with hurricane season...."
       


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4168
   Posted 2/16/2009 2:56 PM (GMT -7)   
Uncle Harley,
If your one core was less than 5% you have a good chance of having insigniificant cancer clusters and not a tumor. My Onco doc said these are very common and would probably never turn into a tumor and treating it with surgery would be like cutting off your arm because you had minor cut. It's funny that my uro oncologist surgeon never mentioned that to me when he recommended surgery. Surgery is a pretty serious step before you really know everything about your particular cancer.
JohnT

I had a psa of 4.4 in 1999 and steadily increasing psa every 3-6 months before reaching 40 in 5-08.Free psa ranged from 16 to 10%

I had biopsies every year, 13 total in all. I saw 5 different doctors, all urologists or urological oncologists at Long Beach, UCLA, UCSF and UCI and had an MRIS at UCSF in 2007. All tests were negative and I was told that because of all the biopsies I most likely didn't have PC, but to keep getting biopsies every year.

in Oct 08 my 13th biopsy of 25 cores indicated 2 positive cores, gleason 3+3 less that 5% in 2 cores. Doc recommended surgery.

2nd opinion from a prostate oncologist, referred by my wife's oncologists said cancer found wis indolant and statistacally insignificant, but PSA histor was a major concern and ordered a few more tests.

Color Doppler ultrasound with targeted biopsy found a transition zone tumor 18mmX16mm, gleason 3+4 and 4+3. CT and bone scans clear, but Doc thinks that there may be lymph node involvement (30% chance) because of my high PSA, and referred me for a Combidex MRI in Holland, currently scheduled for Feb 14.

Changed diet and takiing supplements while I wait. The location of the tumor plus the high psa make surgery an unlikely option. I'm still evaluatiing all treatment options and will make a decision once I get the results of the Combidex scan.

JohnT


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4019
   Posted 2/16/2009 5:19 PM (GMT -7)   
Hi Uncle H and Welcome:
 
Since you are considering watchful waiting, here is a link to the well known Johns Hopkins program which may provide you with some helpful info.
 
 
Also, I recommend that you discuss your case with EXPERIENCED practioners...prostate oncologist, radiation oncologist and surgeon (robotic and open).  By experience I mean at least 300 procedures...
 
Good luck and let us know how you make out.
 
Tudpock
Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 1/31/09.


mirv
Regular Member


Date Joined Nov 2008
Total Posts : 30
   Posted 2/16/2009 5:56 PM (GMT -7)   
Hi Uncle Harley,
Sorry you had to join the club but you came to the right place! One thing to be aware of is that the biopsy results only show you what the minimum amount of disease is that you have, not the maximum or true amount, i.e. if you were to have the prostate removed and examined the final Gleason grade could be adjusted upwards. This is what happened to me, I started out with what appeared to be a fairly indolent appearing tumor that was upgraded substantially upon the final path report. If I had waited a year for definitive treatment based on what my biopsy alone said I may have ended up with a much different final pathology report than the one that I have now. So I guess that what I am saying is that just because you have a low grade biopsy don't assume that you have a low grade disease, it could be different. And if you decide to wait a significantly long period of time before treatment watch it very, very closely.
Best of luck with your research and decision-making!
Mark
Age 52
PSA 3.1 fPSA 26% Dx: 11-07-08
1 of 12 cores with 5% adenocarcinoma
11 of 12 cores clear Gleason grade 3+3=6
Robotic laproscopic surgery 2-4-09
Dr. Garret Matsunaga, Torrance Memorial Hosp.
Free hernia repair! 2 day stay.
Pathology: pT2c NXMX
upgraded to 3+4=7 and <2% tertiary 5
negative margins
negative extraprostatic extension
negative seminal vesicle invasion


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 2/16/2009 6:23 PM (GMT -7)   
good advice, mark, a biopsy gleason score is only based on what is found in the cores examined, tiny compared to the content of entire gland. there's always a gamble at that point.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/17/2009 5:59 AM (GMT -7)   
Ditto again what Selmer said about waiting a good amount of time after the Biopsy in order to let it calm down again.
I had a blood panel test around 6 weeks after biopsy (another doc and it happened to include PSA/FreePSA). That showed the PSA had been knocked from 7.7 to over 10 -- confirming what Selmer and others have said about making your prostate angry and higher PSA levels.
Age 58, 192lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed 140+ ml (110 grams) prostate size.
Prostate way too big for any Rad or Seed treatment or even trying to shrink.
open RP surgery 02/03/9, Nerve sparing both sides, 1 day in hospital, cath due out on 2/19/9
Post-surgery Pathlogy Report - All margins clear - No Invasive spread - no change in Gleason score.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 2/17/2009 6:24 AM (GMT -7)   
.....and we know there is nothing worse than a pissed off prostate with an attitude..........
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/17/2009 6:36 AM (GMT -7)   
David,

you got that right ... laffing my prostate off here ....

(HEY where did it go???!!)

jim
Age 58, 192lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed 140+ ml (110 grams) prostate size.
Prostate way too big for any Rad or Seed treatment or even trying to shrink.
open RP surgery 02/03/9, Nerve sparing both sides, 1 day in hospital, cath due out on 2/18/9
Post-surgery Pathlogy Report - All margins clear - No Invasive spread - no change in Gleason score.


BDJC
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 2/18/2009 1:53 PM (GMT -7)   
Uncle Harley, given your pre-treatment characteristics, surgery is definitely a good option for you. When you're considering surgeons, the most important thing to keep in mind is the experience and skill of the surgeon - NOT the procedure he performs - surgery has the same cure rates, regardless of the procedure. This is to say that it doesn't matter whether he performs a traditional open radical, or LP, or a Da Vinci radical prostatectomy - the important thing is the ability of the surgeon.

So, how do you determine his experience - ask him how many men he has operated on. Of course, this only answers part of the question - what's just as important is his skill. So ask him, out of all the men on whom he has operated, how many achieved PSA 0.2 ng/ml 10 years after treatment? If he doesn't know, or if he cites some study from a medical journal as reflective of his own cure rates, than he's not keeping track of how well he treats men for prostate cancer. The only way a doc knows how well he does is if he keeps a database of every man he has treated, and follows them in perpetuity.

All that being said, surgery is maybe the best option for you. One other treatment modality to consider is a radiation procedure called ProstRcision - a combination of brachytherapy and IMRT external beam treatment. ProstRcision actually has superior cure rates to surgery (including Da Vinci and LP), using the same definition of "cure" as RP - not the ASTRO definition. I recommend you read more the Q&A section on their website: http://www.prostrcision.com/qa/introduction-from-dr-critz.php

Also, you should fill out the form on the Contact Us page to get a free phone consultation with an experienced board-certified radiation oncologist. They'll also be able to provide you with an Individual Cure Rate. That is they'll be able to compare your pre-treatment stats against all the men they've treated with similar pre-treatment findings, and they'll tell you exactly the percentage of those men they cured.

Finally, remember that the decision is yours - not your doctor's - so make sure it's a decision with which you are comfortable.

Best of luck to you.

sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 2/18/2009 2:40 PM (GMT -7)   
Welcome Uncle Harley, just sorry you had to join us but you came to a great place. From your stats you look like a good candidate for DaVinci surgery. Good luck in your meeting Monday.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


Uncle Harley
Regular Member


Date Joined Feb 2009
Total Posts : 78
   Posted 2/18/2009 4:48 PM (GMT -7)   
I've updated my profile with accurate PSA history & more detail on the biopsy. I had a real good first meeting on Monday with the surgeon. Felt a lot more comfortable with him than with the Urologist I saw first. Watchful waiting was the last option the Urologist offered. The surgeon said he had a high level of confidence in the path report. Said if it had come from a lab that rarely does this he'd suggest a recheck, but this lab does this a lot. He said I could request a recheck if I wanted. We talked about all the aspects of how the surgery would go & how many surgeries he's done. I asked him how he felt about active survelience since I'm not convinced surgery is warranted at this point. He said he had no reason not to go that way right now. Great news! So we're on a PSA every 3 months & annual biopsy schedule just to keep an eye on things. He went on to say that 60% of men with my condition go for 5 years with no significant change in PSA or biopsy results. The last 3 weeks or so has been tremendously stressful. Thanks to all of you, I've gotten thru this part. The voices for "take it slow" were right on the money, even though there were times I just wanted to get it over with. Glad I didn't make a hasty decision. I just hope somehow, someday, I can help contribute to help someone else make an informed decision. I'll be around but for now assume no news is good news.
PSA History
3/99 1.2
3/00 1.04
3/01 1.16
7/02 1.24
2/06 1.59
3/07 1.79
3/08 2.54
8/08 2.3
12 needle prostate biopsy Jan 09
Dx of (1) core adenocarcinoma 20%
All other cores benign
Gleason 3+3 T1C
Age 60


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 2/18/2009 4:52 PM (GMT -7)   
Uncle Harley, good luck when you meet, and have that long list of written questions with you
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 

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