I got more of his story and newer information, just called him and talked to him about his PCa journey and it is something in the PCa world. He is also in Michigan and I met him at my PCa support group back in 2002 era when I was a newbie and wondering what jungle I just landed in.
Rick K. (age 50's)- Dx-1996 with bPsa: 10.8 biopsies showed two positive, given Gleason 5 (2+3) 4 or 5 cores taken (back then), he thought he was stage T2b. Well he was looking at all the treatments as we all do and he did not like what he saw. He got a consultation with Dr. Fred Lee (I did not know this from last post on this) and back in that era he mentioned doing ADT2 (zoldex + casodex) and monitor your results...no time frame....well about this same time Dr. Leibowitz (onco-doc)had come up with his brand new concept of ADT3 as a treatment protocol (lupron or zoladex+ casodex + proscar) a method to shut down all testostorone and conversions of DHT for men, which would stop the fuel that PCa thrives on.
Well Rick went to a meeting in Grand Rapids back then, just so happens that was the Paact group (Patient Adocates for Advance Cancer Treatments). At the meeting he heard more about the Dr. Leibowitz new protocol, so he linked up with a local onco-doc and did this as his primary treatment.
ADT3 combo drugs for 13 months, then quit and take only proscar as a maintenance drug. Also, noted that his manhood and functions all returned to normal like within 1 year. His psa stayed low and looked excellent, so after a couple years got biopsies and nothing found, did them another time 1-2 yrs. more went by and nothing was found. He goes 5 yrs. with low psa levels was 1.7 when I saw him in 2002. Now the updated story: his psa finally started moving upwards and in 2006 got up to 5.0 range, so he decided to revisit the ADT3 protocol (2nd time now), finished this in Dec. 2007 and his current results: psa .70 currently and testostorone is extemely low at 50 as of this date (much lower than when done in the past after 1 yr.+).
So he got 13 yrs. since diagnosis with no other treatment, psa level is still excellent, he could still get most or all PCa treatments if and when it were needed or via his decisions. He could probably have the luxury of revisiting the ADT3 protocol again and/or switch to ketoconazole, nizoral, estrogenics and/or other drugs. Could even try HD-casodex (150 mg), perhaps, etc.
*note his pathology was never reviewed by any of the leading experts, it is rarer to see a Gleason 5 in anyone, but is possible. He may have also really been a Gleason 6, and note he had a higher level of psa than the average presentation of patients (10.8).
Not saying that 'you' should consider this protocol, but it will work for somebody. Does show how bizarre PCa can be.
Post Edited (zufus) : 2/16/2009 4:45:31 PM (GMT-7)