I had been seeing a PSA of about 0.2 since my operation. I always expected it to drop to 0.0 and stay there. That didn't happen. Last fall it rose to 0.5. I retested in 3 months and it climed to 0.7. My interpetation is the cancer is back. The hospital that did my surgery also believes similiarly. I have not been back to my uroligist due to his non-approval of my treatment method. (i.e. robotic Davinci surgery and/or hospital). The surgery from my perspective, and my wifes, seemed to go well, the hospital was excellent as were all the physicians, nurses and related staff. It was a POSITIVE experience.
My question and concerns, stem from visiting the local oncologist. He suggests no need to worry, continue to track changes every three months, and business as usual. He did agree to a base line bone scan, and meeting with the radiologist. I am not sure waiting is such a good idea.
I would like others opinions.
Some background on my reluctance to wait.
For 4 years, my PSA was rising. I endured biopsies every 6 months until cancer was found. I suggested to my Urologist that I would prefer to have the prostate removed than go through another biopsie. Finally, in the fall of 2005, cancer was found, and doctor told me to relax until after xmas and then we would talk about options, deal with it. Being nieve and not really appreciating the significance of the diagnosis, I did just that. Then, in 2006 I started reading about treatments, and visiting doctors. Even if I wanted to continue with my doctors recommended treatment options, no doctor could actually do a surgery until sometime in the spring. I did research the Davinci method, and persued that as my preffered option. All available clinics were booked for months, and I was looking at an even longer do nothing period. City of Hope was able to get me in on a cancellation, way earlier that any other option. I also had very interesting and indepth conceltations with the doctors via telephone prior to me choosing them.
After surgery, I was told the cancer was at the margins. I guess I really didn't realize the significance of that disclosure until now, but I feel the waiting was a contributing factor to the cancer going as far as it had.
What is anyone else in similiar situation, or that has already gone through this same scenario done? Thoughts?
Diagnosed with PC in 2006 @ age 48
Robotic surgery in City of Hope on Presidents day 2007
PSA never went to "0", always about 0.2
Fall 2008 PSA 0.5
Retested 3 months later, PSA 0.7
Urologist was very unsuportive of my treatment choice so I have not been back
Oncologist believes I should take a wait and see approach, But is ordering baseline bone scan.
I am very concerned!