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BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted Yesterday 7:33 PM (GMT -7)   
Well I've just had the 18 month PSA check and it came in again at <0.01 ng/mL. So the next cycle begins.......next test in August which will be the 2 year mark post surgery. I am not sure if the PSA anxiety is diminishing with time though, but at least it only seems to kick in about testing time. Strangely enough, despite the nerves not being able to be saved, I have noticed a very slight stirring on the ED front (apart from vacuum and drug use) which surprises me, while any incontinence is limited to the odd drop on strenuous exertion, especially if I have to compress my abdomen. To all here and especially to those whose battle is somewhat tougher, you are all my inspiration and I will always be grateful for having found this site and its members.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted Yesterday 8:02 PM (GMT -7)   
Good news. I hope you keep on hitting those zero's... That 18 month check is a biggie in the timeline..
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted Yesterday 8:43 PM (GMT -7)   
Atta boy, Bill

Keep 'em coming. Year and a half out...Great news. Hope they continue for a lifetime.

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted Yesterday 9:04 PM (GMT -7)   
Great news on the zero! yeah
Age 51, (50 at DX)
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00
Second post op PSA 2/10/09, 0.00


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted Today 1:20 AM (GMT -7)   
Great news on the zero PSA Bill! tongue cheers, Lana & CJ
Creed_three
Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03: November, 2008 (repeat PSA with instructions to lab to calibrate carefully) = 0.02.
 


Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted Today 5:21 AM (GMT -7)   
Another reason for celebration!. Keep those 00000's coming.
53 years - 5' 11" 202 lbs.
T1c 3+3=6
DaVinci July 16, 2007
Bladder Sling installed during prostate removal
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins
11 weeks post-op - no more pads
all PSA's since removal < .1 - Undetectable


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted Today 5:22 AM (GMT -7)   

 

...that's great news Bill......how's the weather down there?


 
  age: 53  Pre-op PSA Feb 08' 5.0, April 08' 4.1
  Biopsy 5.1.08, 5 of 15 cores postive, T2a, Gleason 3+4=7
  DaVinci performed 7.29.08
  Bladder sling installed, umbilical hernia repaired during surgery.
  Path report, "cancer fully contained, margins clear".
  Cath removed 8.8.08, ED therapy begins 8.9.08
  100mg Viagra three times a week, pump for ten minutes daily
  and hold for ten minutes.
  8.16.08 switched to Levitra 20mg, immediate results
  9.15.08 Pad free at night, one thin (light) pad during the day
  9.18.08 1st Post-op PSA Undetectable Zero's....Yes!
  12.22.08 2nd Post-op PSA  Zero's still...
  Pads gone 1.3.09, finally found the courage...Thanks ya'll
          ".....tryin' to reason with hurricane season...."
       


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted Today 5:38 AM (GMT -7)   
Bill, that's a really great 18 month report, keep em coming
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


chrisinmaine
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted Today 6:30 AM (GMT -7)   
Big congratulations Bill! Keep 'em coming!
Age 51
March 08 PSA prior to biopsy 6.65
PSA caught in life insurance exam.
Completely asymptomatic.
April 08 Biopsy: Gleason Grade 3+4=7
Tumor in 5 of 13 cores
July 22, 08 Radical Robotic Prostatectomy
All nerves spared
Pathology: Margins clean, Seminal Vesicles negative for tumor
Gleason Grade 3+4=7 Percent Gleason Grade 4-20% no Gleason grade 5.
First post-op PSA scheduled for 10/08
Very minor incontinence since catheter removal on 7/29
ED assisted by low dose of Levitra. So far so good.
I feel very, very lucky.
First post op PSA 11/19/08 <.02 undetectable!
Second post op PSA 2/18/09 <.01 undetectable!


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted Today 7:15 AM (GMT -7)   
Congratulations on the zeros Bill, I agree that the test anxiety fades some on a daily basis but my 18 month is upcoming and I am "feeling" it looming ahead, nothing like that 3 or 6 month though. Good Luck and I wish you the best in the future as you continue to recover.
Randy
46 you when diagnosed, now 48
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Occasional Success with Oral Meds
Success with BiMix


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted Today 8:35 AM (GMT -7)   
Bill,
This is great news. You deserve it to. Aside from living this nightmare with us, you have done so by paying it forward. Thank you for all the help you lend us here at the sight, both with you knowledge and with you heart. You have helped so many and even at times taken the load of the mods. Thank you for you...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2455
   Posted 2/20/2009 7:46 AM (GMT -7)   
BillyMac,
Congratulations on the good news. Your journey is an inspiration to me. I had both nerve bundles removed and will probably live with ED the rest of my life.
Age: 67
5ft 10 inches 182 lbs
Retired in 2001 and living in Austin TX.
Dx 12/30/08
Robotic surgery performed on Feb 9th
Surgeon: Dr. Randy Fagin, Austin TX.
Negative CT scan and bone scan done on 1/16
PSA 3.5
Post op Pathology report:
Prostate weighed 57 grams
size:5.2 x 5.0 x 4.9 cm
10-20% involved
Bilateral
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
Lymph nodes: not dissected
seminal vesicles clean


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 2/20/2009 9:19 AM (GMT -7)   
Fantastic news Bill!! This site would note be the same without you, however, I obviously wish none of us had to be here. Thanks for sharing your news and your journey. You really are a friend to so many here and I hope the PSA's will forever be at zero! All the best to you down under!!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 2/20/2009 3:17 PM (GMT -7)   
Thank you all for the good wishes.
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 2/20/2009 5:13 PM (GMT -7)   
Good news refreshes my hope BillyMac. Congratulations and thanks!
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 2/20/2009 6:43 PM (GMT -7)   
Way to go Bill, that 18 month is a milestone. Thanks for all you do. Hope you have many more years of zeros

peace and love
dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 782
   Posted 2/20/2009 7:22 PM (GMT -7)   
Hi Bill, congrats on the PSA score!! hope it continues for many more, my next one is 9th March, I get a bit jittery around this time.

Best wishes. Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7  right side tumour adenocarcinoma stage T2a
RP on 30th July,
Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.
 
Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)

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