From cystogram to cystocopy...

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unhappycramper
Regular Member


Date Joined Nov 2005
Total Posts : 113
   Posted 2/19/2009 6:46 PM (GMT -6)   
Howdy!

WHY ME?
I underwent a Radical Prostatectomy on January 12th, and had three cistograms that showed a smaller leak as time goes by from the backside of the bladder and I still have the original French 18 G catheter in.

I went to get the latest cystogram yesterday,and although the x-ray of the contrast is showing a small amount compared to two weeks ago,leaking from the backside of the bladder, now he wants to perform a cystocopy. which is inserting a camera up the penis to the bladder. Could anyone tell me how painful this is or are there any tricks?

Please,Please tell me when they shoot lidocaine up the urethra,to either insert camera or the new Foley...will I be in a lot of pain???? I'm thinking I should take something like vicodin or Lorazapam to try to relax me.


I am hoping this will heal by itself and I will not need another surgery,if so, maybe I should get another opinion. wink turn

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/19/2009 6:53 PM (GMT -6)   
I answered this question for you in the thread you posted above this one, check it out
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 2/19/2009 7:20 PM (GMT -6)   

Hi Mr Cramper,

I had a cystoscopy done a while back and to the best of my recollection it was not painful. There was a slight sting at the tip when first inserted. The doctor filled my bladder with a fluid first so I really felt the urge to urinate during the procedure. Whole thing took less than five minutes. Guess there was not much to see.

You will do fine.

Don 


Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
 
 
 
 


Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 2/19/2009 10:39 PM (GMT -6)   
UnhappyC:

I've had a cystoscopy three times. Yes, the Doc will give you a big blast of some-sort-o-caine up there before he/she starts. I'd say the procedures were uncomfortable, but not very painful. There was some stinging when urinating at first afterwards, and a little bit of blood (without a Foley). Drink a lot of water afterwards if they tell you to. I'll second Don826, you’ll be fine.
53 yrs
PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72
PSA 12/08 - 1.02 (Uro & Rad Onc want me to give it 3-6 more months before freaking out.  O.K. say I.)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/20/2009 7:49 AM (GMT -6)   
unhappy, did you ever read my answer to you same question in your other thread? not sure why you asked twice on two different threads.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/20/2009 8:04 AM (GMT -6)   
See if I copied/pasted it correctly here from your other thread:


see if i can help calm some frayed nerves for you . I had the "scope" up me when I kept getting blockages. Despite what it looked like, it didn't really hurt. They used a generous amount of lidocaine jell all around the head of my penis, and in my case, foreskin area. They let it sit for a few minute. It was uncomfortable having the scope inserted, but can't honestly say it hurt. Didnt take them that long to get it into position, then the dr was busy looking all around. He took pics of where the blockage was, between the bladder neck and the urethra due to scarring from the PC operation. Before he removed the scope, they inserted some microscopic looking wire down the scope, and when the scope came out, they used the wire to guide in the new catheter. Again, weird, but didn't hurt.

Also, had 3 catheters inserted while awake, all with the jell, none hurt, all felt weird and uncomfortable.

Now when he went to remove the blockage, I was put under general anteth., and he went in and did his thing, 20 mins later, I was waking up in recovery, with a very large cath in place for the final healing time. None of this hurt of course.

When the final cath was removed, due to its size, the dr did have me stand up, and when he released the fluid in the balloon portion, the whole silly thing just fell to the floor like a slippery snake. Didn't hurt at all.

Thinking about the scope part and having it done are two different things. When my dr did the procedure where I was put under, I told him I didnt even want to know what he did or how he did it, made it easier.

Hope this makes you feel better, and trust me, I understand why you are a bit gun shy at this point, good luck brother.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 2/20/2009 10:49 PM (GMT -6)   

Unhappy,  I had a couple of cystoscopes.  They are not that bad.  They will put some numbing jell inside your penis using a squeeze applicatior....NO Needles!  The scope is much like (if not exactly the same) borescopes that are used in aerospace and automotive repairs if you know anything about those?  Anyway,  it is a flexible probe that the tip that can be pointed in different directions to give the user a wider field of vision.  The Doctor will also use plenty of lube on the scope before he inserts it.  It sounds alot worse than it actually is.  I would not worry too much.

Good Luck,

KW


    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
    Jan, 31st, 2009 - PSA 0.00  Next test in July, 2009  


unhappycramper
Regular Member


Date Joined Nov 2005
Total Posts : 113
   Posted 2/25/2009 11:05 PM (GMT -6)   
Ok..Thanks to all for trying to calm my needless concerns. It turned out that the Doctor the day before the cystocopy decided that he did not have to stick a camera up there in the penis,but after seven weeks, just to remove the catheter. The nurse used a syringe to insert about 120ml of saline into the bladder,then when I felt the urge to pee, she would pull the catheter out, then I stuck my pp into a urinal bottle and within a few minutes,was able to pee about 125ml. Now I am on man-diapers. I find myself wanting to pee anytime,even while doing daily stuff, usually every 1/2 hour or so. Then even after I think I'm finished while sitting on the toilet, I still keep dribbling. Now that the catheter is out, I am doing more kegal exercises. I'm afraid to sleep at night for fear that I will wet the bed. Pulling the catheter out is a very strange feeling. It's over now. I am Prostate free and hopefully, no chance of cancer, at least in this general area,now I have to work on the kegals,and (.25mg daily) viagra to help kick-start the blood. This might be an illusion for me,I just don't know if I'll ever be able to have a full erection like before. (This was a nerve-sparing robotic procedure) fingers crossed. Thanks again, and good luck to all!!!!!
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