With you Tony, on the check and verify and see another doc like an onco-doc or even others, in case his psa has anyother probabilities, I am less inclined to believe it is radiation bounce as when that happens the rise seems to be alot higher than seen herein, plus his rad-doc probably would have said so too(seen bounce numbers that were fairly significant from others, followed by declines...thus it turns out to be bounce and not a rising psa...scary for the radiation patient when they see it) and happens they say about
30% of patients and usually is a bit over a year since treatment and some weird cases has turned out to be 4-5yrs. down the road on the other end of the spectrum (talk about
wild duration wait to see).
Now brother Purg./Davids question: my (
) non-main stream treatments you speak of are just because you have not heard much about
them, you don't know much about
the world of the leading onco-docs: Vogelzang, Sartor, Myers, Scholz, Strum, Leibowitz, Tucker, Barken, Labrie and others.
They have used a multitude of drug protocols, including the the ones I am doing or have done. Labrie is the father of the type of "casodex" per se and has been with around for many decades, he was considered non-main stream when he introduced its useage(lucky for many patients options the 'junk' worked for them)....today....it is one of the most commonly precribed drugs for PCa treatments. Their is data, journal articles, abstracts on the majority of these drugs in the PCa if you wish to look for them, we have options.....and I guess alot of us whom are in the non-curative realm, we don't like the idea of being a doormat and dying with PCa if we have choices, it seems we have some choices that can atleast prolong that ending. Also, David if you can produce a number of patients whom started out with total urinary blockage and the high end stats I started with that are: 1) alive to talk about
it 2) doing fairly well with low psa numbers 3) without signs of mets or pains 4) feel very well and normal, no fatigue etc. 5) all this 7 yrs. from the emergency room blockage gig. I would like to see or talk to those others and also see what paths did they take, were they the 'norm'. I am familar with some of the cases on yananow.net and there are not many, especially with the blockage thing. I have seen patients with less stats or way less stats than I have, whom died within 3-5 yrs. even with treatments and ADT therapies. Cannot prove anything perhaps and especially to skeptics, even the onco-docs have trouble on that one, they do have alot of patients coming to them even as references from other patients cause something worked better. One of the reasons I don't post all my history, it is not for every patient and might not be for hardly anyone, but it is a choice, the people with no future hope seen in PCa, when going down the road are looking for anything of value, life is valuable to us and so we try. Here is Bob's history aka-neutrondbob and zufus:
Dx-2002 Total Urinary blockage (most painful) drove to emergency asap, bPsa 46.6 DRE-felt something, ultrasound non-definitive but suspecious, on flowmax immediately and catheter on for about
7-12 days (before I cut it off-and flushed it), biopsies 12 of 12 all cancerous at 80-95% levels , Gleason scores given as found 7,8,9's two sets about
the same exact numbers on both sides of gland.
Gland size was close to normal range (go figure), overal I was given Gleason 8 which is unique (was done by considered expert-Grignon). Treatment: ADT3 combo hormone therapy 5-6 months prior to unique radiation protocol of Neutron 10-sessions(Cyclotron) & Photon 20-sessions (IMRT) machines used, contd. ADT3 for 2 yrs., psa started very small rises on ADT3 over 8 months(8-increases,too)..like .4 to .55 to .78 etc., somewhere before 1.0 dropped the ADT3 and started DES 1 mg., cancelled all side effects from ADT3 quickly, psa dropped quickly and stayed low around .4-.5 ranges(stabilized) for 1.5 yrs.(which was not the case with ADT3 at this juncture), so I decided to quit and see if psa would shoot up fast or not (had to know what the dragon was), I get psa tests often walkin testing here is $15 so I can monitor often, psa got to 1.4 in Nov. 2008, resumed DES ,the last 4-5 psas in the last couple months all downward and now psa is between .36 and .39 range, might even do better, we shall see.
Post Edited (zufus) : 2/23/2009 7:56:15 AM (GMT-7)