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Sam Benton
Regular Member


Date Joined Dec 2008
Total Posts : 35
   Posted 2/22/2009 11:45 AM (GMT -6)   
Hey everyone, Haven't posted for awhile, How's everyone doing? I could use some feedback about my ED meds. I switched from Viagara to Cialis because the Viagara was giving me flashes and a heck of a headache, but Cialis doesn't seem to be doing much. Has anyone changed from etiher one of these to Lavitra with success? May just be too soon for any ED med to work at all, but I'm the eternal optomist? tongue
 
Sam Benton
 
Davinci Nov 3rd. 2008
organ contained (prostate/lymph nodes)
Using the pump regularly, taking half a Cialis daily
staying dry except when I overdo it                                                                          No erection (without the injections)

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/22/2009 12:34 PM (GMT -6)   
Sam, good to see ya again. Looks as if you are having a normal recovery. As to the pills, it seems that its an individual reaction as to which works best. You knew that answer was coming, didn't you? smilewinkgrin All I can say is to experiment with the 3 and see if there's a difference. At 3 1/2 months you may be a little early to look for full recovery, but hope springs eternal, huh? tongue
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 2/22/2009 3:52 PM (GMT -6)   
Greetings, Sam.  My doc gave me samples of both Levitra and Cialis and both worked equally well with the same side effects - stuffy nose and flushed face.  I took the Levitra first, then the Cialis and finally am taking the generic form of Levitra from ADC.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 2/22/2009 9:56 PM (GMT -6)   
I was taking Viagra and Cialis before my surgery but the Cialis had pretty much stopped working. After the surgery, I continued with both. But the injections work best, especially the Trimix. I did switch to Levitra about a month ago and it works better than Viagra. I also get it from ADC and can't tell any difference.

Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 2/23/2009 7:05 AM (GMT -6)   
Sam, I have tried all three, get the best results from Viagra 100mg or its ADC equivalent, also produces the most facial flushing. I tried Levitra 20 mg with good results, but can't say it was better, and Cialis 20mg is hit or miss, but produces the least flushing, maybe that is an indicator that it is less effective for me, no flushing = no fun !!! As you pointed out, your surgery was fairly recent, and as much as you get tired of hearing it, give yourself some time to fully recover, but the positive attitude is essential. Good Luck on your continued success.

Randy
46 you when diagnosed, now 48
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Occasional Success with Oral Meds
Success with BiMix


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/23/2009 7:23 AM (GMT -6)   
For those who the flushing and other side effects are bothersome, I switched taking mine to just before I turned out the light to go to sleep. That way, I was sleeping through them. Works much better than when I took it at 8pm and went to bed at 12mn. If you aren't taking them to play, then sleeping thru them is a good option... turn
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


James186282
New Member


Date Joined Feb 2009
Total Posts : 6
   Posted 2/23/2009 8:22 AM (GMT -6)   
I hope you guys don't mind me snooping in your site. I'm not a cancer survivor but I've got ED/Impotence and your site has a lot of valuable information.

I'm talking to my Urologist about trying Levitra. Viagra (100mg) works but I get plugged up nose, flushing and feel hung over the next day. I tried Muse (1000ucd) and it works enough for penetration but is not really making it very firm. And while (for some reason) the climax/orgasm is very intense with Muse afterwards I feel like my privates have been stomped on. Anyway, the Urologist thinks the next step is Trimix assuming Levitra does the same thing as Viagra.

BTW are any of your wives uptight about Viagra Blindness/deafness concerns? Mine is very "anti pill" because of some reports of this. I am not sure how worried about this I ought to be?

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/23/2009 8:36 AM (GMT -6)   
James, personally I have not been concerned, nor has my wife, with possible side effects. They are listed and we are aware of them, but given that all drugs have side effects and the benefit these particular ones give to a recovering ED/PCa patient, it isn't an issue. Penile pumps are ok, as far as it goes, but the pills affect the whole circulatory system in the abdomen and penis area, and gives a longer lasting effect, allowing for better blood flow and infusion of tissue that a pump alone can do. Most of us who take the pills here are taking them for therapeutic ed recovery, not for the primary purpose- the ability to have sex.

I suspect that if you switch to Trimix and get the dose adjusted by experimenting a little, you will be very satisfied with the results. Given the choice between the pills and the injections, I would take the pills every time, but I don't have that choice yet... turn
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 2/23/2009 8:42 AM (GMT -6)   

James

I have been taking Viagra since 2002 and prior to my surgery, it worked fine with no problems. I quickly found out that it works best on an empty stomach and with no greasy foods. French fries, pasta, salad dressings just totally negate the drug's effect. I'm sure alot of users take it in the morning, I would be ready in 15 minutes prior to the surgery when I popped one at 6:00 AM.

 


Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 2/23/2009 7:00 PM (GMT -6)   
Hi James.  I have never taken Viagara nor did I take anything else presurgery.  Post surgery I have taken both Cialis and Levitra and the ADC equivalent of Levitra.  I too take it just prior to going to bed 2 times a week.  I never know the side effects because I am asleep.  For what its worth, I also am ready to go whenever I need to be - need a good bit of stimulation but thats part of the fun!  My doc wants me to take it for rehab and it works fine.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 2/25/2009 6:28 AM (GMT -6)   
Sam, as you can see from below, Jeff found that levitra works best for him. keep experimenting and you'll find the right one. best wishes!! kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
switched to Levitra - works much better than Viagra & Cialis - fewer side affects
summer of 2008 - have had a few erections with no drugs! yeah!!
8/08 - 2 yr PSA <0.1


RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/27/2009 10:21 PM (GMT -6)   
Hello -
Just a short note on my situation. I had da Vinci robotic surgery at Naples Hosp. on 12/15/2008. 1 night hosp. stay. Immediate recovery from the surgery. Catheter removed 12/23/08. Complete ED and incontinent. Decent retention while lying or sitting, but unable to control anything once I stand. Will start biofeedback on 3/3/09. As to the ED, I recently was prescribed a starting 30 day dosage of 5mg. of Cialis. Currently, no erectile response to, nor any side effects from, the Cialis.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/28/2009 10:06 AM (GMT -6)   
RHC Jr. Welcome. I started you your own thread so you don't get missed in the flow of things. A big Welcome, just for you...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


Texman
New Member


Date Joined Oct 2006
Total Posts : 7
   Posted 3/1/2009 7:42 PM (GMT -6)   
Ok guys. I had Davinci 2/15/07. No problems. Continence is back 98%. PSA still 0.1 every three months.
Doctor said he saved nerves. BULL!!!
To this day Viagra and Cialis do nothing for me for a usable erection.
I have been on injections (for intercourse) for one year using Bimix (Phento .5mg and Papa 30 mg) I use a 1/2 cc syringe, 5/16 inch needle, 31 gauge. (The solution is 10ML and costs about $100 at a compounding pharmacy. It last 3-6 months before it loses its effect.) The syringe has a total of 50 possible units. I usually use 6-8 units for a rock hard erection that can last 30 minutes - 3 hrs. I never know. I guess it depends on where I'm injected (usually 3:00 or 9:00 looking down)
My doctor says that I'm not using hardly any medicine. He cannot explain why I'm having to use anything at all. Guess he needs to go back to med school. By the way, I had to tell the doctor to start the injections. He did the usual (Viagra 3x's a week, vacuum pump, etc.)
after surgery. Guys, its up to us to find what works best. After surgery, I don't think the doctors really have a clue about sex.

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 3/2/2009 9:23 AM (GMT -6)   

Texman

I would get a prescription for Levitra to see if it makes a difference. I was also using both Viagra and Cialis. Like you, no response to either one, so switched to Trimix which works great. I also never know how long it will last and I'm on a minimal dose.

But when I tried Levitra, I was at 75% of normal the first time and have continued to improve. I have found that the different drugstore chains do make a difference. Go to a store that is close to a retirement community or has a lot of senior business. Levitra has a shelf life of 3 years and some stores don't sell enough to re-stock that often.


Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


bigote
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 3/4/2009 8:14 AM (GMT -6)   
to; James C. doing a great job as forum moderator, keep it up !!!
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