Welcome new friend-RHC Jr

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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/28/2009 10:04 AM (GMT -6)   
In another thread, RHC Jr said:

Hello -
Just a short note on my situation. I had da Vinci robotic surgery at Naples Hosp. on 12/15/2008. 1 night hosp. stay. Immediate recovery from the surgery. Catheter removed 12/23/08. Complete ED and incontinent. Decent retention while lying or sitting, but unable to control anything once I stand. Will start biofeedback on 3/3/09. As to the ED, I recently was prescribed a starting 30 day dosage of 5mg. of Cialis. Currently, no erectile response to, nor any side effects from, the Cialis.



Welcome to the Forum, hate the reason you're here, glad you came. How about fixing a Signature with the relevant details of your Journey so far? It will help others to know your situation when they respond to you. Go to Control Panel, then Edit Profile, then scroll down to the bottom and fill in the signature section. Again, welcome
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 2/28/2009 10:52 AM (GMT -6)   
Hello and welcome here, RHC. You arer a bit two months post surgery, so all good things do take time. Glad you found us here, great place for patient to patient support. Glad you are on the recovery side of your surgery, and hope you continue to do well, and to keep us posted here. If you need anything, or have any questions or suggestions, fire away!

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/28/2009 2:43 PM (GMT -6)   
Thank you James C. and David for responding.

I looked for this website to ease my frustration (and possibly give me some advice) with respect to my current challenge of incontinence. From the date of the surgery (12/15/2008) thru 1/15/2009, there was no progress whatsoever. Starting with the 1 mo. anniversary, I began to experience some retention at night (while prone). However, I immediately evacuate upon standing. Can't stop it, and it can be a little or a lot. So, I have resorted to holding myself with my hand prior to rising. That procedure does get me into the bathroom and permits me to evacute into the toilet. This situation has not changed to date - approx. 2-1/2 mos. post-surgery, except that I also experience some retention while sitting. I must go thru the same hand procedure prior to rising, or I immediately evacuate (and I find that I am unable to stop it merely by squeezing the muscles around the penis only - I must squeeze with my fingers).
I perform kegel exercises every day (as well as perform stretching exercises and lift weights). I try to alter the kegel routine - sometimes constantly squeezing for 25 reps. per session; sometime pyramiding the reps. (i.e., 1 for 1 sec.; 2nd for 2 secs., etc.). Lately, I have tried performing the kegel exercises while standing over (straddling) the toilet.
I start biofeedback on Tues. (3/3/2009). Hopefully, they will tell me that I have not been doing the kegels properly - then show me the proper way - and the change quickly leads to continence. In the meantime, does anyone have any suggestions as to the kegel routine (or anything else) that might help me improve my situation. Thanks in advance for your attention. Incontinence has been frustrating, and questions of ED are not even relevant unless and until this incontinence is controlled.
Last PSA prior to biopsy  -  11.9
Biopsy  -  8/7/2008
Cancer findings at left lateral and left medial apex of prostate
Gleason score  -  3+3 = 6
Staging  -  T1c
Prostate size/weight  -  128 cc./ 99 grams
Bone and CT scans  -  9/12/2008  -  both clear
Age at biopsy  -  65         Health  -  Excellent  (Lift weights, play golf & tennis (incl. singles))
da Vinci RP surgery  -  12/15/2008 at Naples Hosp.
Surgeon  -  Dr. Wm. Figlesthaler
Hosp. Stay  -  1 night
Catheter removed  -  12/23/2008
Post-Op blood test  -  2/2/2009     PSA  -  undetectable
Scheduled for 12 weeks biofeedback, starting 3/3/2009
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/28/2009 2:52 PM (GMT -6)   
Hang in there RHC,
In over two years here, I have seen many get passed this point and do so in great shape. As James said ~ welcome to heaingWell. Kegels don't always help and sometimes you may be aggrivating the situation. I would not advise over stressing the muscles in the area. If it isn't working then start looking into, like you have, additional steps. Try to be patient.

On the other front, it sounds like you are doing well with your PSA and that is great news. Stay well. And stay positive!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

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