incontinence at night

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texican
Regular Member


Date Joined Jan 2009
Total Posts : 36
   Posted 3/1/2009 12:05 PM (GMT -6)   
Hi, I have been a Lurker here for a couple of months and learned a lot from this great forum. Thank you all!

I am trying to get continence back but it is a problem especially at night. I am using about 3 pads a day right now as I near the second week without the catheter. The pads work fine for the dribble.

I am getting up several times a night to relieve myself. Last night I was up about 5 times since I feel pressure on my bladder and don’t want to “flood” the bed as has happened before. It seems that my body thinks my bladder is full but that can’t be since not that much comes out when I make my nocturnal trips to the bathroom. When the flood happens far more urine comes out than the pad can hold and I am not even aware of it until I wake up and everything is wet. It seems like the floods come when I am lying on my side so I have been forcing myself to sleep on my back. I don’t really get much sleep between the times I am getting up.

On the one hand my urologist says to drink large quantities of liquids but the more I drink, the bigger the problem seems to be.

John
Dx December 22, 2008
Age 69
PSA 1998 5.2, 2000 2.5, 2003 5.4, 2004 7.4, 2005 15.9, 2006 20.5, 2007 31.5, 2008 34 and 32.9
Biopsy 1998-no cancer, 2003 - no cancer, 2006 - 12 samples, no cancer but PIN, Dec. 2008 - 12 samples, 2 positive with Gleason 4+3 = 7 on each. PIN on 3 others.
Di Vinci surgery on 2/10/2009, Austin TX
Pathology post surgery T3a, Gleason (4+3)7 with tertiary pattern 5.
Catheter removed on February 23.
First PSA followup on April 6, 2009


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/1/2009 2:39 PM (GMT -6)   
    I always sleep on my back so it was not that big of deal with me.  It will take time for the bladder urge to go away.  Just hang in there.  I'm sure you will bet better soon.
   KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
    Jan, 31st, 2009 - PSA 0.00  Next test in July, 2009  


stxdave
Regular Member


Date Joined Nov 2008
Total Posts : 65
   Posted 3/1/2009 3:11 PM (GMT -6)   
Hi Texican,

Drinking plenty of liquids during the day is fine but I would shut the liquids off after dinner altogether, and eat early.

You may want to buy a package of the complete diaper type pads just for night time.

If you don't have a rubber or plastic mattress cover, get one just in case.

I empathize with your problem.

Dave
Dx'd 1999, Age 60, PSA 43, Gleason (3+4=7), T3c
42-3d EBRT w/Lupron/Casodex for 24 months and PSA remaining to be <0.1 for the entire 24 month period.
July 2001 - 2nd opinion required to go intermittent ADT.
MDAnderson biopsy revised Gleason (4+5=9).
Intermittent ADT, Lupron only, with PSA threshhold established at 1.0.
March 2007 - Diminishing returns with Lupron, conferred with MDA urologist for bilateral orchiectomy. Uro asked for biopsy of prostate again. Biopsy resulted in tumors found with Gleason (5+4=9).
August 2007 - RRP and bilateral orchiectomy. PSA <0.1
99% continent immediately
September 2008 - PSA 0.45
November 2008 - PSA 0.67
December 2008 - Resume Casodex
December 2008 - Stricture in bladder neck requiring surgical removal. 99% incontinent immediately.


Life is not waiting for the storm to pass, it's learning to dance in the rain.


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 3/1/2009 3:14 PM (GMT -6)   
Wow. You are just 20 days past surgery - still in the very early stages.

After 30 years of sleeping on my stomach, I was forced to learn to sleep on my back. I think that is essential for a while at least. That lets your bladder fill to the level of your urethra before you feel any pressure. The time it takes your bladder to reach that point, the pressure you feel, and the involuntary control you have built up determine how much sleep you get. I had to get up once or twice a night at first, but I started to sleep thru the night after a few weeks. I know some guys get up a bunch of times each night - and others are dry at night from day one.

Drink large quantities of liquids? I don't think you should restrict your fluid intake, but I would drink a normal amount. I would not go out of my way to drink large quantities - especially near bedtime.

Good luck!
kcragman
Age: 53; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.
Feb 2009: PSA at 9 months was undetectable.


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 3/1/2009 4:54 PM (GMT -6)   

texican,

1. your catheter was just removed a week ago.  still very, very early.  i started out using 12 pads per 24 hours, including 1 per hour at night.  got better gradually.

2. try sleeping on your back.  should help some.

good luck.


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology results - cancer confined to the prostate
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, nine month PSA 0.1, 13 month PSA 0.4 (recurrence was likely due to very high Gleason, even though margins were deemed clear after surgery)
Radiation using Calypso Localization System to begin in January 2009


texican
Regular Member


Date Joined Jan 2009
Total Posts : 36
   Posted 3/2/2009 9:28 AM (GMT -6)   
Thanks everyone. Last night I took the advice I found here and slept on my back only. I didn’t drink any liquids after dinner. I did get up 4 times to go to the bathroom but my pad was still almost dry this morning. I thought this problem had something to do with my bladder not holding more fluid but it is probably more related to the bladder position with respect to the urethra as suggested by kcragman.

John
Dx December 22, 2008
Age 69
PSA 1998 5.2, 2000 2.5, 2003 5.4, 2004 7.4, 2005 15.9, 2006 20.5, 2007 31.5, 2008 34 and 32.9
Biopsy 1998-no cancer, 2003 - no cancer, 2006 - 12 samples, no cancer but PIN, Dec. 2008 - 12 samples, 2 positive with Gleason 4+3 = 7 on each. PIN on 3 others.
Di Vinci surgery on 2/10/2009, Austin TX
Pathology post surgery T3a, Gleason (4+3)7 with tertiary pattern 5.
Catheter removed on February 23.
First PSA followup on April 6, 2009


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 3/2/2009 7:53 PM (GMT -6)   
I got up more at night after surgery than before surgery. Good advice in above posts. I stopped drinking at 6:00 p.m. and still got up a lot at night. i also soaked a couple of pads during the night. It does get better. It didn't take long before i was sleeping during the night. I remember the old joke that someone said... I pee every morning at 7:00. The problem is I don't wake up until 8:00. it does get better. don't rush it as you have come a long way.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8
margins clear
9 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue

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