Day one was pretty easy. Except the flying across the country part. My accomodations are nice. A very nice room at a Turnberry in Miami. We had a dinner plan that included me sitting at a table of doctors and PhD's talking Twitter...LOL. I actually don't use Twitter but at least one of the doctors does. One of the highlights of the night was an intense discussion between Dr. Gerry Chodak and PCa advocate Mike Scott.
I also met a PhD (Rhonda Fine) who specializes in sexology. She is an advocate in prostate cancer because she believes that a sex therapist should be part of the treatment process. And get this ~ she thinks it should be BEFORE treatment that a patient should see a sex therapist. After the discussion, it was clear to me she is probably right. She thinks it's wrong that we guys settle for the thought that men who undergo prostate cancer therapy should wait or not worry when sex does not come back in short time. Thus her reasoning is to keep trying. And don't be afraid to try new things. Mostly, be vocal about
it and don't sweep it under the rug...She has worked with patients treated in many ways. And ED affects most she said whether with surgery patients right away, or RT patients start having issues at year 1 or 2. And there isn't much that can be done with a patient on hormone therapy. She did give me some hope when she talked about
guys getting at some restoration of their sex lives a year after ADT. I like that because I may stop all treatments next week. It's been two years without intercourse for me because of my advanced therapies.
Anyway. Day one was definately a learning experience. Now on to Day Two ~ The show. Camera crews have arrived and did the setup today. I was given my list of interview questions. So if I put my foot in my mouth, you'll know I had time to think about
it first. The crew is comprised of the broadcast group for Pat Robertsons CBN. The director is a prostate cancer survivor (as is Robertson). Show starts at 9:00.
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
My Journal is at Tony's Blog
My InfoLink page is at Tony's Prostate Cancer InfoLink Page