please post symptoms ...

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wizdel
New Member


Date Joined Apr 2007
Total Posts : 6
   Posted 3/14/2009 12:48 PM (GMT -6)   
I started having slight lower back pain about 3 years ago. I've been to many doctors (except a urologist), and have never formally been diagnosed with anything. The lower back pain now is much worse and persistent, and I have pain around my hips also. My anus, and the area between my anus and penis,  and all the way to my lower back always feels inflammed 24/7 now.
 
I'm having trouble urinating sometimes,  because it feels like something is inflammed and stoping my stream. This also seems to be affecting blood flow to my penis, and I am having real problems with erections and my penis is starting to shrink...almost feels like it's not getting any blood and almost always feels very shriveled and hurts slightly most the time. I can tell my penis muscle is getting smaller. And the inflammation seems to be affecting the nerves down my legs, as I live with constant muscle pain and twitching throughout both legs.

I'm 45, and currently seeing an arthritis doctor who has me on NSAIDS (which are not helping at all). He's ran tests for arthritis and they've come back negative. I am now going to make an appointment with a urologist. I've been doing some online research, and now I'm concerned that I may have prostate cancer. The back pain is unbearable, tough to live like this. I had a colonoscopy about 7 months ago, and they removed a polyp. I was concerned about colon cancer because of the peristent lower back pain and "inflammation" I feel all the time. Would he have been able to determine prostate cancer?
 
I'm scared...

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/14/2009 12:58 PM (GMT -6)   
Try reading up on urological conditions, also and it includes PCa, prostatitis and alot more.

www.wmfurology.com

www.marinurology.com

Maybe find info that might be of use.
 


wizdel
New Member


Date Joined Apr 2007
Total Posts : 6
   Posted 3/14/2009 1:09 PM (GMT -6)   

hi zufus,

I have spent the last 2 days reseaching online and reading all about PC and related prostate issues and their associated symptoms. Seems that the severe lower back pain along with atrophy in legs and penis mostly seemed to be associated with PC in all the symptoms I read. I just wanted to get some real world views.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/14/2009 1:18 PM (GMT -6)   
Hi wizdel,
You really need to see your doctor and have a PSA screening. Simple screening would help you ease your worry. I have advanced prostate cancer and had no symptoms. But my PSA test was high. Eventually we found the disease, but even still I did not do so much in worrying before the diagnosis. I have always had back problems, as many do. Get to your doctor, get that PSA test.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 3/14/2009 2:51 PM (GMT -6)   
It is possible to have PCa and prostatitis at the same time and therefore also possible to have perhaps a lesser diagnosis of PCa and more of prostatitis in a possible mix. I am not qualified to know what you may have or may not. So as Tony has pointed out find an experienced urologists and get testings and verifications and know what are the actual facts, then if you seek more answers, do a drive by right here.

Hope you have other causes than PCa for your pains and such.


 

Post Edited (zufus) : 3/14/2009 3:19:29 PM (GMT-6)


rocket1952
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 3/14/2009 4:39 PM (GMT -6)   
wizdel, I have many of the same symptoms and would be interested if you figure out your diagnosis. In the past I have had prostatitis symptoms and now have some rear-end pain and back pain. I also had a spike in PSA which sent me to a urologist to ask about PCa (normal DRE). However my next PSA test returned to baseline (for me about 3.5) showing almost zero PSA velocity and 2 uros did not want to do a biopsy -but I'm keeping an eye on my PSA.
I highly recommend what the other posters are telling you -get to a urologist and get examined and have a PSA test and DRE (simple and painless) and discuss prostatitis as well as PCa. Then please followup with us. (I'm not an MD).

PS. I once started a thread here asking people to post their PCa symptoms. I would say the majority (not all) had very view symptoms with the most common as urinary rather than pain symptoms

Best of luck
Rich
Age now 56.
History of chronic prostatitis.
Can't find earlier PSAs think they were in the 2-3 range
3/14/05 PSA 3.2
4/24/07 PSA 3.56
9/25/08 PSA 6.9 -note, taken after a DRE. Started concern about PCa.
12/12/08 wait until prostatitiis symptoms minimun, no DRE,
no sex, PSA 3.58
At this time, continue monitoring PSA- no biopsy (if correct PSA velocity is close to zero). Continue to have some prostatitis symptoms. Saw second Uro who did not recommend biopsy.

Post Edited (rocket1952) : 3/14/2009 4:13:13 PM (GMT-6)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 3/14/2009 5:33 PM (GMT -6)   
wizdel,
I would take note of Tony's an zufus' suggestions. While the symptoms you describe could be indicative of PCa they also could be due to a lot of other things. It is not a wise move to find a disease to fit your symptoms as this can cause you much perhaps unnecessary worry. If you were being treated for arthritis I would assume this involved x-rays of the painful area and should have shown any bone changes due to Pca spread if present. You are on the right course with your urological consultation. A DRE and PSA test are the first step in detecting prostate cancer. Bear in mind none of us here are doctors but most are reasonably informed patients offering helpful advice. Stay with us for if it turns out to be PCa you are at the best place for support and advice and if it turns out to be something more benign then your post and subsequent findings will be invaluable for the next newcomer with the same symptoms and questions.
good luck with your tests.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01

Post Edited (BillyMac) : 3/14/2009 4:36:21 PM (GMT-6)


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 3/14/2009 6:03 PM (GMT -6)   
wizdel -

You asked for real world experiences. I (and others on this board) never had any symptoms at all. I had a just-by-random-circumstance blood test when I applied for some life insurance. My PSA popped positive and that started the ball rolling. about 6 weeks later, I chained sawed down a dead tree in my back yard the day before my cancer surgery. I seriously felt fine. As far as I am concerned, the PSA test saved my life.

This disease appears to present itself in a wide variety of ways. There are some excellent advisors on this board. I would listen to their advice. At the very least have a PSA check done.

Good luck to you,
kcragman
Age: 53; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.
Feb 2009: PSA at 9 months was undetectable.


wizdel
New Member


Date Joined Apr 2007
Total Posts : 6
   Posted 3/14/2009 6:40 PM (GMT -6)   

Yes, I plan to make an appointment asap, and I'll report back when I get results. I've gone to my general practitioner many times and complained about the pain in my back and the affect is has on my lower extremity muscles. He actually checked my prostate last summer by feeling it, and said it seemed normal.

I feel like I have constant 24/7 nerve pulses shooting down my legs. I'll look at my calve muscle and see it constant twitching.

I've been on Lipitor for 1.5 years, so don't know if that could be adding to the muscle problem. I also feel like I've lost my sex drive. Which is not a good thing because I'm married. But my penis is very tender most of the time.

Just curious if anyone else here is experiencing atrophy in your penis? Sorry to ask that, but I'm miserable. I feel like I want to cry.


rocket1952
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 3/14/2009 6:50 PM (GMT -6)   
I'm not suggesting that this is your problem, however since you bring it up, Lipitor does have side effects in some people including back and muscle pain. http://www.rxlist.com/lipitor-drug.htm
Age now 56.
History of chronic prostatitis.
Can't find earlier PSAs think they were in the 2-3 range
3/14/05 PSA 3.2
4/24/07 PSA 3.56
9/25/08 PSA 6.9 -note, taken after a DRE. Started concern about PCa.
12/12/08 wait until prostatitiis symptoms minimun, no DRE,
no sex, PSA 3.58
At this time, continue monitoring PSA- no biopsy (if correct PSA velocity is close to zero). Continue to have some prostatitis symptoms. Saw second Uro who did not recommend biopsy.


wizdel
New Member


Date Joined Apr 2007
Total Posts : 6
   Posted 3/14/2009 7:07 PM (GMT -6)   
Thanks for the link rocket. I am aware that some people experience muscular pain on Lipitor. Problem is, I was experiencing the lower back pain for over a year before I started taking Lipitor.
 
I see in a prior post, you said you were experiencing similar symptoms. Does that include muscular atrophy? I feel it in my legs and penis. I am just curious if anyone else is experiencing the muscular problem, because I didn't see this as a symptom in any of the online literature I've researched for prostate related issues.

rocket1952
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 3/14/2009 8:07 PM (GMT -6)   
To answer your question widzel, for me I don't seem to have much muscle atrophy and leg pains - I'm mostly having back and rectal pain, but I also have some issues with Irritible Bowel Syndrome which may contribute. There is some anecdotal discussion that lipitor may affect muscle strength http://www.askapatient.com/viewrating.asp?drug=20702&name=LIPITOR http://money.cnn.com/2006/06/08/news/companies/lipitor/index.htm etc search google. It might be worth discussing with your physician just in case it may make your problems worse. Again I am not an MD and am just making suggestions

Rich
Age now 56.
History of chronic prostatitis.
Can't find earlier PSAs think they were in the 2-3 range
3/14/05 PSA 3.2
4/24/07 PSA 3.56
9/25/08 PSA 6.9 -note, taken after a DRE. Started concern about PCa.
12/12/08 wait until prostatitiis symptoms minimun, no DRE,
no sex, PSA 3.58
At this time, continue monitoring PSA- no biopsy (if correct PSA velocity is close to zero). Continue to have some prostatitis symptoms. Saw second Uro who did not recommend biopsy.

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