You and your husband have my thoughts and prayers for a good outcome and that you have peace in your travels. I went to one of my connections and dug up a few discussions on Abiraterone. Mike Scott is doing a great job keeping all the prostate cancer advocacy groups together and informed. Here is that list of discussions...
One man's story from London...
I hope these help. May peace be with you
Amy, we also had a member here on the trial, but he drew the placebo arm. He is a very dear friend of mine, and if you want to talk to him, I am certain he will be available...
Here is his link...
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1