Thanks for the words of encouragement - it really, really helps. It is especially helpful to see the PSA numbers of others.
I have posted on this before, but I may again consider searching out a urologist who uses the "conventional" PSA test with a sensitivity threshold of 0.1. While attempting to switch assays earlier, I personally found a general lack of knowledge surrounding PSA tests and statistics in the medical community. I guess the type of information that I and some others are looking for comes from research scientists/doctors and statisticians, more so than the urologist/GP/nurse who is on the "front line", at least in my opinion. As others have experienced, I have had PSA numbers reported to me incorrectly on two occasions, as if there is not enough anxiety and uncertainty already. This time, I may first at least wait until I (hopefully) see a plateau or reduction in an ultrasensitive test result, and then switch doctors to go for the "conventional" test.
Does anyone know of a urologist in Silicon Valley that uses the "conventional" PSA test?
Age:45 (44 when diagnosed)
Father diagnosed and cured at age 52.
08/21/07: Diagnosed with T1c cancer
1 of 12 biopsy cores positive; 10% tissue
Gleason score: 3+3=6
PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)
10/19/07: da Vinci prostatectomy by Dr. Vipul Patel
Difficult surgery due to prostate inflammation.
Both nerve bundles spared.
Spongy erections began within 24hrs of surgery!
10/24/07: Catheter out; down to 1 Serenity pad/day next day.
Final pathology: neg margins, no capsular penetration,
Gleason 3+3=6, 5% tumor involvement, multi-focal.
11/04/07 First usable erection with Cialis
11/22/07 Thanksgiving - Bye-bye, pads
01/17/08 First post-surgery PSA result: < 0.008 ng/ml
03/17/08 Erection quality mostly back to pre-surgery levels with Cialis;
have not tried without meds yet.
04/23/08 Second post-surgery PSA result: < 0.008 ng/ml
07/30/08 Third PSA: 0.01 ng/ml
11/04/08 One year PSA: 0.01
Still taking 10mg Cialis every other day - enjoying the results
too much to stop yet.
02/07/09 Taking 5mg Cialis every other day - having too much fun to try
to stop for now.
03/23/09 PSA: 0.02