Any experience out there with a product called Dribblestop?

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RFP
Regular Member


Date Joined Mar 2009
Total Posts : 30
   Posted 3/26/2009 5:34 PM (GMT -6)   
Just wondering if anyone has had any experience with a product out there called Dribblestop.  It looks interesting but it doesn't look like its very comfortable.  See below WEB site
 
 
RFP

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/26/2009 6:21 PM (GMT -6)   
Gee, RFP, it looks so midevil. There's no way I would entrap my poor winkie in a device like that. Be interesting if anyone here has ever tried that contraption.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


Gunner59
Regular Member


Date Joined Nov 2008
Total Posts : 110
   Posted 3/27/2009 9:16 AM (GMT -6)   
Hmmm, I don't think so..........

Looks like it might make a good ponytail holder tho :)
Age 48 at diagnosis
3 Jul 08 PSA 27.21
Biopsy positive 3+3=7 9 of 24 punches
Bone scan clear
22 Sep 08 Laproscopic Radical Prostatectomy and bilateral pelvic Lymphadenectomy
Gleason 3+4 after prostate removal, lymph nodes clear
Stage T2B
PSA at 3 months=undetectable


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/27/2009 10:18 AM (GMT -6)   
Or a hot dog holder, so you can put the condiments on without getting any on your hands
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


Berb
Regular Member


Date Joined Mar 2007
Total Posts : 93
   Posted 3/27/2009 3:46 PM (GMT -6)   
Hi RFP
 
I used one off an on for a few months, after concluding that I was unlikely to regain continence naturally.  If adjusted correctly, it was not painful, although you could feel the pressure there.  However, over time I found that, especially when running, the pressure of the urine in the penis itself at the point the clamp was applied became quite painful and required frequent release, even though there may have only been a half cup full of fluid there. I gave it up after a while and switched to a condom catheter for some months, and eventually had an artificial sphincter fitted.
 
I do believe it's worth a shot though.  It's not expensive and might work as part of your solution.
 
Berb
59 when diagnosed, now 60 years old
Da Vinci surgery Jan 10, 2007, nerves spared, no cancer detected outside prostate
Pre surgery PSA 8, Gleeson 3+4=7, T1C, 3 out of 12 biopsies had cancer
Complication 1: urine favoured drain tube over catheter, extra time in hospital, catheter in for 2 weeks
Complication 2 - urinary tract infection - Citrobacter (hospital bug), 6 weeks antibiotics cleared up
Complication 3 - fungal growth on genitals (candida albicans) probably from antibiotics
Aug'07 Urodynamic study for continuing incontinence 8 pads per day; diagnosed bladder neck stenosis
Oct'07 CT scan indicated nothing abnormal; cystoscopy showed narrowing at anastimosis - dialated
Dec'07 averaging 9 pads a day, started acupuncture (no benefit after 10 treatments)
Jun'08 AUS fitted
Aug'08 AUS activated - highly effective
Post surgery PSA tests: all undetectable


GarthK
Regular Member


Date Joined Feb 2009
Total Posts : 74
   Posted 3/27/2009 5:00 PM (GMT -6)   
Hmm... A C-clamp for little Willy. Not a good idea methinks. And it looks like about three bucks worth of parts for almost $90.

I'll pass on this one now that I just spent nearly $500 on $20 worth of plastic vacuum pump.

:-)

Garth
Vitae:
DOB: Q4'46, HT: 5'9", WT: 180
PC:
Biopsy: 12/08
Cores: 4 of 12+ positive
PSA: <2.5
DRE: Slight enlargement, one node
Gleason: 3+3
Surgery: RRP on 1/21/09
Catheter: 15 days
Pathology:
Adenocarcinoma occupying 5% of prostatic volume (right posterior aspect)
Gleason: 3+2
No extraprostatic extensions
Perineural invasion within prostate only
No angiolymphatic invasion
No seminal vesicle invasion
Clear margins
AJCC: pT2a
Post-op PSA's
3/10/09 < 0.014 (undetectable by machine)


RFP
Regular Member


Date Joined Mar 2009
Total Posts : 30
   Posted 3/27/2009 5:18 PM (GMT -6)   
Berb, You have been successful with the
artificial sphincter or AUS process.  I think these are the same correct?  How does this work and what is involved?  I am a newbie at all this and I'm just trying to understand.  Can you still bike, run, workout at a club etc. Is it almost being back to normal.  Can you drink a few beers?  Thanks for any reply.
RFP

brodie12
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 3/27/2009 8:55 PM (GMT -6)   
RFP Unfortunately I am well acquainted with the product. It is the best one on the market in my opinion (I have tried a couple of others) It is light , safe , and durable . I only wear it at work and in other social situations (parties, nights out etc. I Don't use it when I exercise - Golf (change at the turn) - biking (change every two hours ) - hiking (also every two hours ) . It has enabled me to lead a fairly normal life. I am not ready to take the plunge yet like Berb and KW have . Best of luck Brodie

Berb
Regular Member


Date Joined Mar 2007
Total Posts : 93
   Posted 3/27/2009 10:04 PM (GMT -6)   
Hi RFP,
 
Yes, AUS stands for Artificial Urinary Sphincter.  Excellent information is available on the AMS 800 website as follows:
 
 
In a nutshell... A cuff is placed around your urethra just behind the scrotum, and a silicone pump about 1-1/2" long is placed in your scrotum.  The cuff is inflated and this squeezes the urethra shut preventing leakage.  When you want to urinate (you feel normal urges so you'll know), you hold the pump in one hand and squeeze it with the other, and it opens the cuff.  You urinate, and the cuff automatically closes after around 60 seconds.
 
There is NOTHING that I used to do that I don't still do.  I run regularly, and have completed a number of marathons and ultramarathons since it was installed, including a 100 km run lasting 15+ hours on off road mountain tracks.  I don't ride a bike but my surgeon says no problem, that some of his patients participate in long bike races - but you need to get a "split" bike seat.  I don't go to the gym, but I do pushups, situps, light weights at home, and anything that I previously lifted I now lift with no sense of strain.
 
It is not a perfect seal, and I get a few small squirts if I sneeze or do something that puts an unusual pressure on the abdomen.  I use a light panty liner which I replace 2-3 times a day.  I guess total losses in a day would amount to around 1/4 of a Depends Guard pad - probably less.  Most of this is caused by my own impatience in not standing long enough at the urinal after urinating to give the cuff time to close properly - I accept the losses into the pad instead.
 
The only adverse thing I've found is that my bladder does not hold as much as it used to, but this is nothing to do with the AUS. If I get a cup full in my bladder now, I'm close to maximum and the urge to go is intense.  My doctor says my bladder shrunk because it went 20 months empty.  For some people, the bladder recovers to its previous size, but that has not happended with me.  I believe I also have some "urge" incontinence, possibly due to the learning my brain received from years of frequent low volume urination at night before my cancer was detected. I've learned to live with that.
 
It took me some months to convince myself that the AUS was for me.  I'm happy I did it. 
 
I'm happy to answer any more questions you have.
Regards
Berb

59 when diagnosed, now 60 years old
Da Vinci surgery Jan 10, 2007, nerves spared, no cancer detected outside prostate
Pre surgery PSA 8, Gleeson 3+4=7, T1C, 3 out of 12 biopsies had cancer
Complication 1: urine favoured drain tube over catheter, extra time in hospital, catheter in for 2 weeks
Complication 2 - urinary tract infection - Citrobacter (hospital bug), 6 weeks antibiotics cleared up
Complication 3 - fungal growth on genitals (candida albicans) probably from antibiotics
Aug'07 Urodynamic study for continuing incontinence 8 pads per day; diagnosed bladder neck stenosis
Oct'07 CT scan indicated nothing abnormal; cystoscopy showed narrowing at anastimosis - dialated
Dec'07 averaging 9 pads a day, started acupuncture (no benefit after 10 treatments)
Jun'08 AUS fitted
Aug'08 AUS activated - highly effective
Post surgery PSA tests: all undetectable


RFP
Regular Member


Date Joined Mar 2009
Total Posts : 30
   Posted 3/28/2009 4:29 PM (GMT -6)   

Berb, thank you for the excellent information on the AUS process and Brodie, thank you for your comments on the Dribblestop Product. Not sure what I am going to do if things don't get better.  I'm only going on 9 weeks now since the bag is off but I have (I believe) stress incontinence and cannot hold off going whenever I get up from sitting or get out of a car. I'm going to continue doing my Kegels and I might try that electrical stimulation process with my Physical Therapist to see what happens. I might try the clamp first and condom catheter down the road and then if all else fails, the AUS process.  Brodie, don't know if you read the information that Berb sent on-line, but they mention a clamp called "The Cunningham Clamp"  Did you try this one?  I might send out a New Topic on the site to see if anyone has heard of this Clamp.  Thanks again Berb and Brodie for your replies and info.

RFP


brodie12
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 3/28/2009 7:03 PM (GMT -6)   
RFP I did try the Cunningham and it is O K , but I like the Dribblestop a little better - it is much lighter,easier to work with , and much cheaper ( you get two for $ 88.00 ) Good luck Brodie

RFP
Regular Member


Date Joined Mar 2009
Total Posts : 30
   Posted 3/30/2009 4:55 PM (GMT -6)   
Brodie12, Thanks for your reply and support. I'm going to purchase the Dribblestop as a temporary measure to get myself active again until I can get the continence back. I'm hopeful that I can get it back naturally with Kegels etc. One thing you stated earlier was that you did use it for working out like biking, golf or hiking. You said you used in only for social activities. What was the reason for this. Did it not work and hold the urine or dribbles in? I spoke to the inventor of the product and he said you can do almost anything you want. It might even help with bladder control if you are on a timing basis like I am. My Physical Therapist wants me to try and bring the memory back in the bladder to go every 1 1/2 hours. Let me know and thanks again for your kind words and support.
RFP

brodie12
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 3/30/2009 8:25 PM (GMT -6)   
R F P I don't use it when exercising because I will lose a little urine when I do something fairly strenuously , like hitting a golf ball. lifting something very heavy . etc . It's O K for biking normally ,but I dont use it because it gets uncomfortable during a long ride . Its still early for you - odds are very good that you should be fine thanks Brodie

RFP
Regular Member


Date Joined Mar 2009
Total Posts : 30
   Posted 4/1/2009 12:17 PM (GMT -6)   

Brodie, appreciate your reply and comments using the Dribblestop product.  I ordered a set and will try this out.  Will comment on the site after using the product.  Thanks again

RFP

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