PCa can eat my shorts...

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/26/2009 7:21 PM (GMT -6)   
This weekend, Ruthie and I are loading up the RV and heading to southern Utah again.  When I came here two and a half years ago, I was scared and completely new to prostate cancer.  In fact, I learned about what was next from the vets here more than from my doctors.  It seemed like between each step on the learning process I would take time to reflect on my life.  I thought I was dying from this stupid disease, but I wasn't.  I chose to get out more and spend time doing things I loved with family and friends.  For me that was a great choice and today I still feel the same way.
 
I write this with a story in mind.  In the past week, I met an entertainer that was a member of quite a famous group dating back a few years.  He is scared and worried that he is dying.  Like you and me he has to learn to live with a cancer diagnosis.  I hope he does, but for now the notion that he has cancer is much to bear for him.  I do understand, but I feel like just shaking him and letting him know he is going to do just fine.  He does have favorable numbers, so there is every reason to believe that he is going to be just fine.  Just like the many I have greeted here when they showed up, he is in need of support.  Just like I did.  I am blabbing this out to let all those who are new to this know ~ it get's better.  At least in the sense of dealing with it.
 
As I get ready to head out to Zion tomorrow, just like we did when I was diagnosed,  we will be celebrating my second year in remission we passed this last week.  I have advanced prostate cancer but it can just eat my shorts.  I plan on having a great time and can't say enough how theraputic it is to keep on keepin' on. 
 
If you are new to this, please, don't let it consume you.  If you do, it will.
 
Peace to all, and have a great weekend! 
 
Tony
 
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 3/26/2009 7:25 PM (GMT -6)   
Have a fabulous trip Tony! You have traveled a lifetime in these past two years!! Cheers to the next 40!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/26/2009 7:28 PM (GMT -6)   
Good advice for one and all, Tony, now just go and enjoy your trip!
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 3/26/2009 7:46 PM (GMT -6)   

Have a great time, Tony!  Life does go on and we should embrace all the time we have here.

Bob


 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 3/26/2009 8:11 PM (GMT -6)   
Hi Tony
 
 
Enjoy your trip, you deserve it.  That is part of our wonderful country I would like to visit sometime so  enjoy your stay.
 
Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
Got a shot last week and it was great
A year an a half of zero's
 


montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 3/26/2009 8:25 PM (GMT -6)   
Have a good time. I use to think about this cancer on the hour, now I can go 2-3 wink .
 
Have a great time and stay in remission.
 
Never had the chance to visit Utah except changing planes in Salt Lake City.  Do plan on a trip this summer to El Paso to visit my daughter and then on the AZ to visit my son, who is patrolling the border, dangerous job these days.
 
Again have a great time
 
Ron
diagnosed sept 2006 @ 54 years old, live in Georgia, gleason 3+4=7, (r) lobe only

psa 4.7 (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern. If I can find out about PSA velocity, why didn't he know!)

Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT

RP Emory Atlanta December 2006. Path-negative margin, negative lymph nodes, negative SV, both Lobes involved, 40% gland involved
multifocal perineural invasion, Gleason 3+4=7

Fully continent 2 weeks post catheter removal

1st psa April 2007-<0.04, 6 mos-<0.04, 9 mos <0.04, 1yr <0.04, 21 mos <0.04, 2 yr 0.04 (rising?) 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 3/26/2009 8:32 PM (GMT -6)   
Well said! Enjoy.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8
margins clear
9 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue


NV RTRD 2007
Regular Member


Date Joined Jan 2009
Total Posts : 75
   Posted 3/26/2009 10:59 PM (GMT -6)   
Enjoy your trip. We should be thankful and blessed we could still enjoy life. That's right if this PCa goes to your mind everyday-- it will just cause headache and stress.
Age 54; Age DX 53
PSA: May 07- 2.9; Dec 07-4.3; Jan 2008- 6.1; May 2008- 6.4; Sep 2008- 7.3 ; Sep 2008- 9.6
Bone Scan: Mar 2007- Normal without evidence of metastatic disease.
Biopsy Mar 2008: 6/6 core right gland- No evidence of malignancy; 5/6 core left gland- positive Gleason score 3+3=6 average tumor volume 5 mm.Clinical Stage II.
Transrectal ultrasound at UCSF Jun 2008: 7x14x10 mm hypoechoic lesion in left gland. DRE positive, PSA Density- 0.23 and Prostate volume - 27 CC.
RRP: 4 Dec 2008; Discharged - 8 Dec 2008; Cath removed- 18 Dec 08.
Pathology Report: Prostate- 33 grams; L/R pelvic lymph node -No evidence of malignancy; Right Lobe- No definite tumor; Adenocarcinoma, Gleason 3+4.
Post PSA: 7 Jan 2009 - <.05.
              10 Mar 2009 -<.05


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 3/27/2009 12:25 AM (GMT -6)   
Hey Tony! have a good trip, I too like you just get on with things, only think about the curse as PSA time approaches, we are going away with friends next week for two weeks of fishing, sitting on the beach watching the sun go down etc. and of course a few reds. :-) :-) :-)

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive

Gleason 3+4=7 right side tumour adenocarcinoma stage T2a

RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.



Post op PSA 0.5 26th Sept.

PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.

Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 0.5


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 3/27/2009 12:48 PM (GMT -6)   

Tony,

Congratulations on the two year milestone. That is huge! But most of all, congratulations on the way you bless us all with your positive attitude and encouragement. Enjoy the well deserved trip to Utah.

Rev. Bill in San Diego

 


Age 60 (59 when Dx) PSA 4.4
Biopsy 5/15/08 Gleason (3+3=6)
Bone scan and pelvic CT: clear
HT - 2 mo Casodex, 3 mo Trelstar
RRP Surgery 9/15/08 La Mesa California
Post-OP Gleason 3+4=7, Stage pT2c pN0 MX
Seminal vesicals, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free
Perineural invasion & Distal Margin: Carcinoma present
IMRT adjuvant radiation (35 Treatments) End 1/27/09
PSA (10/13/08): <0.1
PSA (3/13/09): <0.1
 


kdnole
Regular Member


Date Joined Jun 2007
Total Posts : 152
   Posted 3/27/2009 3:45 PM (GMT -6)   

TC, I admire your courage and strength to continue to make memories and live your life as it's meant to be. We all get speed bumps, some bigger than others but they are only bumps. I too I have decided to live life to the best and fullest that I can.

PURA VIDA - "Pure Life"

 

 
Age 45
PSA 4.8
Gleason 3+3=6
T2
Biopsy - 3 of 12 (2@20% / 1@80%
Da Vinci 7/31/07 @ Duke
2.5 hr. surgery, released from Duke within 14 hrs.
Saved both nerve bundles. 
Foley out 8/10/07
Positive Pathology Report 
Near left side nerve bundle
New Gleason 7
Oncology visit in the near future for radiation
Back to work 3 weeks following surgery - Sales
 
9/13/07 - 1 Post PSA Undetectable less than 0.1 
 
9/17/07 - Pad Free! 
 
10/11/07 - ED, Trimix injection .2cc Tooo much but it worked. Now on .05cc, 3 times a week
No luck with viagra or pump. 
 
11/19/07 - 5 mth. PSA 0.1 (Ouch)
02/11/08 - Scheduled for CT Scan and MRI
2/27/08 - Started IMRT Radiation treatments
(6 weeks, 5 days a week)  
4/14/08 - Radiation complete with "NO" side effects.
6/17/08 - 1st Post Radiation PSA scheduled
PSA - Undetectable


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 3/27/2009 4:47 PM (GMT -6)   
Thanks for the inspiration you give to all of us here Tony. Congrats on the two year mark. Enjoy your weekend, you earned it.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA 2-17-09   0.00


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 3/27/2009 5:12 PM (GMT -6)   
Tony,
Have a great time. I plan on taking a trip somewhere if and when my first PSA come out zero.
Age: 67
Retired in 2001 and living in Austin TX.
PSA 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed on Feb 9th
Surgeon: Dr. Randy Fagin, Austin TX.
Post op Pathology report:
Prostate weighed 57 grams
size:5.2 x 5.0 x 4.9 cm
10-20% involved
Bilateral
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
Lymph nodes: not dissected
seminal vesicles clean


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 3/27/2009 10:37 PM (GMT -6)   
Hi Tony & Ruth, By now you would be enjoying the travels so have a great time this weekend and enjoy it to the max! Stay safe! Lana & CJ.
Creed_three
Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03: November, 2008 (repeat PSA with instructions to lab to calibrate carefully) = 0.02.
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/29/2009 7:00 PM (GMT -6)   
Lana, we had a great time!!!!

All thanks! It means a lot. Ruthie and I are home now...drat....But the worn out dog is happy...

Ron, Mika...definately a trip that lingers in the mind. Spring was looking very nice. It didn't come without a hitch though. We were driving iv 30 MPH winds on the way back. Good thing the RV weighs 15 tons...yikes, that was a workout.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/31/2009 1:25 PM (GMT -6)   
cool   Check what I just posted about my PSA results.  Sure wish I had this blog around in 05 when I was diagnosed; or at least before my surgury in May 06 as it may have woken me up.  Instead I let the doctors scare me into getting the surgery.  My uro said, "Your prostate was so small that I had difficulty sparing the nerves on one side". skull    Shouldn't he have noticed that the SIZE might indicate something afoul?  I think someone screwed up!

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3240
   Posted 3/31/2009 4:22 PM (GMT -6)   
Hey Buddy. If you get bored with utah Hang a left and head to Gods country. We will put you up for the night.
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16

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