Two and a half months post Radical Prostatectomy (Jan.12,2009)

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unhappycramper
Regular Member


Date Joined Nov 2005
Total Posts : 113
   Posted 3/28/2009 6:11 PM (GMT -6)   
Hi all,

My Diagnosis after the prostate biopsy was a low-grade cancer. My PSA was only 4.8, compared to one person in this forum who had a PSA of 19.8 Pre-surgery!!! The doctor thought that with my father having prostate cancer,that I should have the surgery now,because in 20 or 30 years, I may not be a candidate for such surgery.

I'm 54 years old. I had the radical surgery on January 12th, 2009. I was supposed to be kept overnight, but because of the urethra sutured to the bladder leakage problem,they kept me over for nine days, I went home with my two new buddies, the Jackson-Pratt (JP) bag and the foley catheter, for about seven weeks, nono until they removed it,thinking the leaks were mostly not a problem and it would heal on it's own.

Adenocarcinoma of Prostate, Acinar Type-
Gleason's Score: 3+4 / Bilateral / Approx. 10% of gland Involvement / Perineural Invasion:Present / Lymphatic Invasion:Absent / Extraprostatic Extension: Absent / margins: negative for Malignancy / Then it goes on about the Seminal Vesicles,Bladder neck, and Vasa Deferentia, being negative for malignancy. If it's all malignant, why in the heck did he take it all out?

This was a nerve-sparing surgery, so he told me. Most of what he removed was on the right side. Does that mean I can get a half of an erection?

I haven't been on here but a few times since my surgery, dealing with the "Diaper" issues, (Down to 2 per day) None at bedtime. I'm also doing the Kegles, but not so much worrying about the erection issues, even though I tried it once, ok maybe twice, (FOR MEDICAL REASONS ONLY :-) I had bleeding in the urine problems, and wanted to know if it would bleed, No it didn't) and the doc was right, no erection, but intense orgasm...dry, and very weird. I hope I get some of this back. he has me on 25MG Viagra daily, he told me this should help kick-start the blood flow (if anything left) He also said I can do injections or use a pump. I have previously posted more on the prostate thing in this forum under my username.

If anyone has similarly gone through the same thing, please post....please. Especially the viagra thing....Does this really help us with our kind of surgeries?
Insurance does not cover this and these little blue pills are very expensive...CVS Drugs-$16.00 each 100mg pill. And Costco is $13.00 ea.

Thank you! yeah

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 3/28/2009 6:22 PM (GMT -6)   
You can get Viagra or any other ED meds from "alldaychemist" for less that 1$ a pill. Check there web site. THere are many here who get their ED meds from them and seem to be satisfied.
Age: 67
Retired in 2001 and living in Austin TX.
PSA 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed on Feb 9th
Surgeon: Dr. Randy Fagin, Austin TX.
Post op Pathology report:
Prostate weighed 57 grams
size:5.2 x 5.0 x 4.9 cm
10-20% involved
Bilateral
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
Lymph nodes: not dissected
seminal vesicles clean


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 681
   Posted 3/28/2009 6:37 PM (GMT -6)   
unhappycramper said...
Hi all, 





This was a nerve-sparing surgery, so he told me. Most of what he removed was on the right side. Does that mean I can get a half of an erection?
 


Thank you! yeah
 
Ok, I am feeling a bit quirky today...
I had one side nerve sparing surgery and now I have a "bent" erection.  Maybe because the nerves on one side were??  nahh must be something else. yeah
 
On a more serious note, I used Viagra and the only thing I got was a stuffed up nose and a head ache.  I tried the generic from AllDayChemist it seem to work better, but not enough.  I now use bi-mix injections with regular success.. yeah

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 3/28/2009 7:21 PM (GMT -6)   
My right side nerves were spared, and my errections are perfectly normal looking and straight. Unhappycamper, sounds like you had a pretty rough time, that long catheter time was no fun, I remember my own experience too well with that. Your post surgical pathology report sounds good, the extra stuff they took out, the only way they know if it is good or bad is to take it out, it's not like you are going to be needing any of it.

Glad to hear from you again, hope you continue to heal.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/28/2009 10:44 PM (GMT -6)   
Hang in there Camper, Your only a few months out of RRP. I'm sure your leakin will dry up soon. Just keep at the Kegeals. Keep workin at the erections too. It can take up to a year or more to get as much function back as you will. I also use Alldaychemist since my insurance will not cover the ED drugs.
Good Luck,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
    Jan, 31st, 2009 - PSA 0.00  Next test in July, 2009  

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