The Other Side.....not what you think!!!

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kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/30/2009 5:01 PM (GMT -6)   
    Hello Everyone,  I just had my "other side" checked out.  I had a colonoscopy today.  I was overdue because my PCa treatment had lasted over two years.  The test went well.  The Doctor did remove two polups but was 99% sure they would not be cancerous.  I am in the high risk group because my mother had CCa at the age of 37.  Yes, she is fine and went to my test today.  Like PCa, if any of you have family history of CCa please keep up on your test.  I think I would rather have a prostate biopsy over doing the cleansing needed for the colonoscopy.
   As far as my AUS and PCa everything is going very good.  I am so thankful the AUS is working so well.  I think my next PSA is in July.  I wish all you "New Guys" well in your search, decision, and treatment option.
    KW
 
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
    Jan, 31st, 2009 - PSA 0.00  Next test in July, 2009  


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/30/2009 5:08 PM (GMT -6)   
Hi Kelly,
For all the discussion about incontinance and side effects, you are a model patient in patience. Having befriended you too, I know that your attitude in infectious and amazing. There are many ways to combat prostate cancer and you have shown that the best way is with a positive attitude. I'll chat with you soon, possibly tomorrow (you know what I am up to tonight).

PS: sorry about that OU thing this weekend...

Peace, brother!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 3/30/2009 6:47 PM (GMT -6)   
Hi KW.  Glad your colonoscopy went well.  I have had a couple and had polyps as well as divirticulitis.  I agree, the prep for one of those is the pits.  By the way, even thought I went to Oklahoma State, I was pulling for OU this weekend.  I have been gone from Oklahoma long enough that I want all their teams to do well.  Unfortunately, my daughter - who also went to OSU - is not there yet.  She only thinks its a good day when OSU wins an OU loses. Maybe she'll come around sometime!  Best wishes.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 3/30/2009 7:56 PM (GMT -6)   
Good going KW! Di
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Hip replacement total success..pain gone!!
PSA .7 2/10/09


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 3/30/2009 8:07 PM (GMT -6)   
Hi, KW
Hated the prep. Worse than the procedure. Have had 4 colonoscopies due to family history. First one was botched and wound up in the hospital for a week. Hated to see OU lose as it was the last Big 12 team in, and even though I"m a KU fan, rooted for MU also. Gotta go with Roy's boys now. Hope you enjoyed that first meal after the procedure. To me, a cheeseburger never tasted so good.
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/30/2009 9:35 PM (GMT -6)   
KW - glad to hear your continued good success with your AUS . . . .we've followed your journey with much interest and have been pulling for you all the way.

;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May and November 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.

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