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FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 3/30/2009 7:36 PM (GMT -7)   
So, I thought I'd just start a new one.

So here's my update after seeing the doctor today.

My PSA is 36.36
To some that may seem high, to you regulars, that's 8 weeks post chemo stable!

Presently I am only on Lupron and Zometa as I await the next step.

We are currently awaiting for a phone call from MD Anderson and plan to go there to determine
if they have anything that might address my condition.

Tonight, I am somewhat at a loss for words....but I'm sure there will be more at my blog tomorrow.....

Tony, where are those pictures?
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (3-30-009)
PSA: 36.36
Treatment: Lupron
+ Atrasentan (or placebo)
[Finished Taxotere on January 26th]
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/30/2009 9:07 PM (GMT -7)   
Stay steady, there buddy!
And please take it easy. My pics for an old trip are on an album on my Facebook site I loaded Saturday after you asked. New ones coming. I just have to load them.

I have a better idea...Come out and I will play a round with you, take you to Zion, and Duck Creek...You can bring the hole clan....

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/30/2009 10:21 PM (GMT -7)   

FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 3/31/2009 6:47 AM (GMT -7)   
Tony - first a trip to Houston, then we'll see where we head next?!?!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (3-30-009)
PSA: 36.36
Treatment: Lupron
+ Atrasentan (or placebo)
[Finished Taxotere on January 26th]
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/4/2009 5:28 AM (GMT -7)   
Thanks for posting David, I think about you often. As I pray my daily prayers I can assure you that you are included. You are an inspiration to many so please hang in there and stay strong.

peace and much love
Dale

PS
I was a Memphis Tiger fan.
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/5/2009 10:55 AM (GMT -7)   
Thanks Dale!! Also, I'm glad to hear of your recent test results as well!!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (3-30-009)
PSA: 36.36
Treatment: Lupron
+ Atrasentan (or placebo)
[Finished Taxotere on January 26th]
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/7/2009 5:21 PM (GMT -7)   
Tomorrow I am off the Houston to visit the great people at MD Anderson. By pulling a few strings we were able to get an appointment with "the big cheese" at MDA.

Over the past 4+ years I have tried; Casodex/Lupron, HDK/Lupron, Niladron/Lurpon and most recently Prednisone/Atrasentan/Taxotere. Since finishing chemo on January 26th
my PSA has remained stable, though still in the mid-30's. I am only on Lupron and Atrasentan (or placebo). I am currenlty in no pain, just the usual minor aches and pains from the bone mets.
I am however still experiencing joint pain from the Prednisone withdrawl and will discuss that furhter in Houston.

We are hoping to find a few clinical trials to choose from but if not we plan to come back to KC and use plan B; DES or Estrodiol patches.
That's all for now - peace be with you all!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (3-30-009)
PSA: 36.36
Treatment: Lupron
+ Atrasentan (or placebo)
[Finished Taxotere on January 26th]
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 4/7/2009 7:57 PM (GMT -7)   
Hi, David
Bob in Belton, here. Have a safe trip and hope all goes well. I hope that there's truth to the saying that there is " Better living through Chemistry." Please let me know if there is anything I can do. I'm close and willing to help. Let me know.
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 Fully continent...ED progressing as expected.


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/8/2009 8:30 AM (GMT -7)   
B ob in Belton - if you have time on May the 9th, swing by our disc golf tournament.
I'd like to meet you in person!

details under 'events' at www.flhw.org

You don;t have to play, just stop by and say hi!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (3-30-009)
PSA: 36.36
Treatment: Lupron
+ Atrasentan (or placebo)
[Finished Taxotere on January 26th]
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/12/2009 6:05 PM (GMT -7)   
As some of you might know last week I went to MD Anderson to get guidance for the head of the PCa department, Dr. L.
We had to pull a few strings to get in to see him, but it was worth it.

He did not subscribe anything new. He did not enroll me in a clinical trial. He did not order any testing besides the blood work.

What he did do is send me home, and that's a good thing!

he told us we had done everything right over the last four years and the keep it up! He said we needed to remain and let the chemo to continue to work.
He added a few new blood markers to watch (I'll share later) and wished us luck and said he hoped we didn't need to come back to see him for a long time.

To some of you reading this, it might seem strange? How can you be happy with this David? Your PSA is in the mid-thirties?

The thing is I'm stable, and I'm asymptomatic.

Not sure what else to say? We returned to KC and got on with our lives. I played disc golf yesterday and today and we spent Easter in a house full of family!

Peace be with you all - good night!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (3-30-009)
PSA: 36.36
Treatment: Lupron
+ Atrasentan (or placebo)
[Finished Taxotere on January 26th]
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 4/13/2009 5:55 PM (GMT -7)   

HI, Dave,

May 9th sounds good to me.  I'll be there and watch you guys to get the hang of it.  May start myself if it's not to physically challenging.  I've got my daughter's wedding 2 weeks after this and I don't need a bad back or a broken neck while I'm trying to write the checks to the minister, string quartet, caterer,etc.

nono That just wouldn't do.  Glad to hear things went well in Texas and am looking forward to meeting you.

All the best,

Bob

 


 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 Fully continent...ED progressing as expected.


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/13/2009 6:26 PM (GMT -7)   
Looking forward to it!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (3-30-009)
PSA: 36.36
Treatment: Lupron
+ Atrasentan (or placebo)
[Finished Taxotere on January 26th]
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com

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