Sorry to see your report. However, my stats are very similar to yours. (see signature) I went to Mayo for a second opinion based on the article that Wife33 recommends. I met with a Dr Blute and his assistant. In spite of my lymph node involvement the recommendation was surgery since it was the local nodes. I was told that it would probably require follow up with radiation. And hormones at some time after the surgery and radiation. I did not elect to do the surgery but I did do the radiation.(IMRT) It was a combined protocol that radiated the suspect nodes and the prostate. And I am much like the fellow who jumped off of the skyscraper who would say at each floor "so far, so good". I am about seven months post radiation and in the middle of a two year hormone course. I feel as good as I felt before discovering I had the problem. My oncologist is optimistic about my prognosis and tells me not to obssess over the PSA. Good advice. Life, for now, continues in some manner of normalcy.
My reasons for not continuing with Mayo were primarily logistical and financial as I am over 2000 miles away and uninsured. Dr Blute was quite informative in regards to my case and treatment options. Be aware that Mayo has a bias towards doing the surgery based on thier past case experience. You may want to go there for a second opinion if things permit. They were very accomodating when I called to schedule one and had me in about two weeks later.
I guess my point is don't give up. There are options and there are experienced physicians and hospitals that will take on the tough cases. Jim, I sincerely wish you the best of luck and some solution to your problem.
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones