just found ou that I have prostate cancer

Did I do the right thing?
7
yes - 77.8%
0
no - 0.0%
2
maybe - 22.2%
0
what, ar you crazy? - 0.0%
0
better off doing it yourself - 0.0%

 
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drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/2/2009 3:01 PM (GMT -6)   
cool  I just found ou that I have prostate cancer.  I am ok with it.  My PSA is 4.8, very slight elevation.  My PCP had me do the blood thing again and the then see a Urologist.  Had a biopsy done and found Gleason to be 3 + 3 =6.  Second opinion by Johns Hopkins.  I have an appointment with my DiVinci robotic surgeon on 4/7 with the surgery scheduled for 4/20.  I have made an appointment with another surgeon for 4/8 just to get his opinion on my situation.  I have no symptoms other than the PSA.  Any words of encouragement will be appreciated.  Good luck to all.  Drummer.

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 4/2/2009 3:13 PM (GMT -6)   
Welcome Drummer...not sure I follow your story all that well and I do not really understanding what the poll is about either.

So you had a biopsy with a Gleason score of 6 and a PSA of 4.8...seems like you caught the cancer early. Do you know the percentage or number of cores involved. And when did you have the biopsy...was it recent? Surgery is a good option, but there are others as well. Just make sure you take the time and review all treatment options before making any final decision.

And Welcome to HealingWell...lots of caring folks here.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base) - Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (4+3) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA 5 week Oct 2008 <.05
       3 month Jan 2009 .06


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 4/2/2009 3:43 PM (GMT -6)   
drummer,

Welcome to the board that no one should have to join. Your stats are very similar to mine and I can tell you what I felt at the time, because I had been studying treatment options even before the biopsy, just in case. I wanted to live, I wanted the cancer out of my body, and I wanted as much of my love life left intact as possible. Build yourself a signature in the control panel and keep us updated. Only the best of luck to you, your gonna do fine.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA 2-17-09   0.00


drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/2/2009 4:20 PM (GMT -6)   
cool  I am not sure what the poll is either but it was an option at the time I posted.  I had the biopsy on Friday 2/13/09.  They took 12 cells and found cancer on 2 with an early "potential" on 2 more.  The 4 little devils were 2 together at 7:00 oclock and 2 together (potentail) at 1:00 oclock.  I met with a nurse practioner on 2/24 and just about made up my mind to go ahead with the robotic surgery then.  I did read a few books, talked with some firends and made the decision on 3/2/09.  The doctor was able to set up the surgery from my e-mail to him.  He has said that I can cancel after I meet with him on 4/7/09.  Good luck to all.
Drummer 

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4119
   Posted 4/2/2009 4:23 PM (GMT -6)   

Dear Drummer:

Without seeing your stats it's difficult for me or others to give you anything but broad advice.

Having said that, I echo LV-TX.  That is, surgery is probably a reasonable option.  However, for your own peace of mind and to make an informed decision, you should consult physicians other that surgeons.  You should see a radiation oncologist and a prostate oncologist.  Depending on your stats and age you might consider watchful waiting (aka active surveillance).  Radiation, brachytherapy or other, could be a good choice.  You might want to consider proton beam therapy or even a clinical trial like our colleague realziggy who posts on this site.

The bottom line is get yourself educated and consider all of the options before making a final decision.  This is a big deal and you want to be as sure as possible.

Good luck and I hope you take the time to research the possibilities.

Tudpock


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/1/09.

drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/2/2009 4:36 PM (GMT -6)   
cool  Hi Sandstorm,
I am 66 and very active.  I play the drums therefore the name drummer.  I have read a few books, "Prostate for Dummies" and another book by a renoun Prostate specialist.  The guys that I have talked too have had the "open surgery", radiation, seeds and of course the Divinci.  One friend did not catch it in time and it has burst into his bladder.  Based on what I ahve read and heard the Divinci is my best approach.  The guys that went with other treatments, that I have talked with, wish that they had gone with Divinci.  One reason that sticks out is, if the Divinci does not get all of the cancer, I can have other treatments i.e. radiation.  If I go with radiation first and it fails, I cannot go to the Divinci.  It seems that the other treatments have slightly higher risks.  Good luck to all.

drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/2/2009 4:42 PM (GMT -6)   
cool  Hi Tudpock 18
Thanks for your concerns.  I will know more after I meet with the Dr. on 4/7/09 but here is my info: 
I am 66 and very active.  I play the drums therefore the name drummer.  I have read a few books, "Prostate for Dummies" and another book by a renoun Prostate specialist.  The guys that I have talked too have had the "open surgery", radiation, seeds and of course the Divinci.  One friend did not catch it in time and it has burst into his bladder.  Based on what I ahve read and heard the Divinci is my best approach.  The guys that went with other treatments, that I have talked with, wish that they had gone with Divinci.  One reason that sticks out is, if the Divinci does not get all of the cancer, I can have other treatments i.e. radiation.  If I go with radiation first and it fails, I cannot go to the Divinci.  It seems that the other treatments have slightly higher risks.  Good luck to all.

coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 4/2/2009 5:42 PM (GMT -6)   
Drummer, if you decide to go with surgery, be sure you do some research on your surgeon. The skill of the surgeon is very important to your outcome. Make sure he / she has performed a good number of prostatectomies. You don't want the doctor practicing on you. I've heard the learning curve is about 300. My doctor had completed 1500+ at the time of my surgery.
Age 51, (50 at DX)
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00
Second post op PSA 2/10/09, 0.00


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4119
   Posted 4/2/2009 6:02 PM (GMT -6)   

Hello Drummer:

I certainly was not trying to talk you out of your choice of treatment.  Robotic surgery is a fine choice and most patients who are good candidates for that experiece excellent results.  However, the patients who are best informed usually choose to discuss the options with multiple physicians who practice different treatments.  I know I did and felt better for it since I felt my final decision was well founded.

Obviously you feel you have enough info, so I wish you the very best for cure and recovery.  Please stay with us on this forum and let us know how you progress.

Tudpock


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/1/09.

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4203
   Posted 4/2/2009 6:05 PM (GMT -6)   
Drummer,
Sorry to hear that you have joined the group. Please take Tudpock's advice. I think you are making an important decision much too quickly based on not a lot of information.
With a gleason 6 and at your age any treatment including none will produce about the same results. It is very unlikely you will die from PC no matter what you do. Make sure you understand the permanent side affects all treatment options as in some cases the treatment is worse than the cure.
The best advise for a favorable outcome is fairly simple:
1. Understand the biology of your individual cancer.
2. Choose the treatment option that best fits the biology of the cancer.
3. Choose the best specialist to do the treatment.
Other people's experiences may not be useful because each cancer and situation is individual and only you can determine what you are willing to accept in terms of risk and living with the side affects of treatment.
You can only do this by getting 2nd opinions from doctors in all fields, IE prostate oncology, surgery and radiation. Reading "Prostate Cancer for Dummies" is not what I would consider good research.
JohnT

64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

JohnT


drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/2/2009 6:48 PM (GMT -6)   
cool  We are all firends here even if we never meet.  I appreciate everyone's response and continue to  hash out in my mind the best course of action for me.  I should be spelling DaVinci correctly. 
 
The other book that I have read is Doctor Patrick Walch's "Surviving Prostate Cancer".
 
The biopsy was done at Lahey Clinic and the first lab report was also from Lahey in Burlington MA.  They sent my cells to John Hopkins for a second lab report and the report was the same:
 
{ight APEX: small focus of Adenocarcinoma of the Prostate, Gleason grade 3 + 3+ 7 and Left Base: small focus of adenocarcinome of the prostate, Gleason grade 3 + 3= 6.  John Hopkins went on to say; "The diagnosis of carcinoma is supported by the failure of immunoperoxidase staining for high molesular weight cytokeratin and P63 to demonstrate basal cells in the atypical glands.  Also favoring the diagnosis of cancer is the stains for RACEMASE (a marker preferentially expressed in prostate cancer) are positive"}
 
I frankly do not completely understand all of this technical language but will gather more information with my 4/7 appointment at Lahey and my 4/8 second (surgeion's) opinion.
 
Again, I will never take offense to any comments, suggestions, recommendations from you all.
Thanks and good luck all.
Drummer

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 4/2/2009 7:25 PM (GMT -6)   
Drummer,
Sorry to see here. I'm one year older than you but my Gleason score was much higher. I had no other choice but surgery. I had the Da Vinci Robotic surgery by Dr. Fagin in Austin Texas who has done over 1300 such surgeries. The advice that you are getting here are all valid. With your low Gleason and small number of positive cores, you have time to get other opinions and do what you feel gives you the best result. The Robotic surgery itself is the easy part, it is what comes next that you need to be aware of. It has been 7 weeks since my surgery and I still have some incontinence isues. Of course there is also ED which varies from person to person and how good your surgeon is in preserving your nerve bundles. Mine were removed due to my aggressive cancer and me wanting to get a negative margin which I did. Good luck with whatever you decide.
Age: 67
Retired in 2001 and living in Austin TX.
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Post op Pathology report:
Prostate weighed 57 grams
size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
Lymph nodes: not dissected
seminal vesicles clean


Number13
New Member


Date Joined Mar 2009
Total Posts : 8
   Posted 4/3/2009 2:29 AM (GMT -6)   
Hello Drummer,
Good to see from what you say that you are ok with the news. I was like that myself, I felt little emotion just a need to get on with the job. Perhaps it helps being male in that respect. Take a bit of time and advice before what you decide to do then good luck.
48 Years
Diagnosed 28 Jan 2009
12 Core Biopsy, 1 Positive
Gleeson 6
PSA 2.9
Prostage Stage T1c
RP on 9 March 2009
2 Nerve Bundles Spared
Catheter out 28 Feb 2009 - Dry from day 1
Prescribed 20mg Cialis twice per week.
ED - we are working on it.
Post op Biopsy results due 9 April 2009


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 4/3/2009 9:22 AM (GMT -6)   

Mr. Drummer,

I don't get to post here often these days, but I have a moment on my brother's computer.

It sounds like you have done your homework and are making an informed decision.  
I am a big fan of getting a second opinion after you have made your decision - with the best treatment facility you can coordinate.  (For my second opinion, I drove 150 miles to the prostrate oncolgist at M.D. Anderson, Dr. Matin.  I am sure you can find someone closer to Johns Hopkins.)

With a "gleeson 6" and being 66, you might be one of the people that could consider watchful waiting.
I had a "6" and only one of eight cores with 5% - but when they did the post-surgery biopsy, they found the tumor was larger than the biopsy suggested - and touching the inside wall of the gland.  I was lucky to have it removed in time.  As I plan to live another 30 years, watchful waiting was never a question - and my case suggested surgical removal. 
Some patients have co-morbidities that make surgery risky.  Every patient's decision is indvidual. 
Some would choose Proton Beam - but decide the cost doesn't warrant the possible benefits of that type of radiation.

Most will regain continence in 14 weeks.  Some don't - but except for proton beam, all procedures can lead to incontinence and E.D. 
E.D. issues are best studied by researching threads here by Swimom and others.

If you are sexually active and your life expectancy is only ten more years, then I'd say seriously consider watchful waiting.  Even still, I'd get a saturation biopsy if I were to really consider that.  My urologist pointed out that a lot can be missed with only a dozen or so samples of a gland that size.

Godspeed.

ICTHUS!
CCedar


2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
OPEN R P 16FEB07 at age 54. 1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  PSA: 6 mths <.003  :)   9mths & 1 Yr.<.008
:)
18mths & 2 Yr <.008 :)  
  5 Year Colonoscopy 19FEB08:  Clear!

duckfan
Regular Member


Date Joined Dec 2008
Total Posts : 40
   Posted 4/3/2009 10:01 AM (GMT -6)   
Sorry you had to join this club:( My husband just had brachytherapy done but not until he had checked everything else out. His Gleason was 3+3++6 and his PSA was low.

The best advice we got from this board is.....you have time, do tons of research and then make your decision.

Bless you.
62 year old with Multiple Sclerosis currently in remission
Last PSA taken in 2008 was normal
November, upon exam abnormality felt in Prostate
Biopsy taken December 10
6 samples taken
3 positive for Prostatic Adenocarcinoma
3 Negative
Gleason Score of 3+3=6
Grade T-2
Looking into DaVinci Surgery, no decision made yet.  Update, not a good candidate for surgery because of MS.
Saw a Oncologist who suggested 8 weeks of Radiation.  Not a good option because of the distance.  Would need to live away from home for 8 weeks. 
Had a MRI which showed no spread outside the prostate. 
Had brachytherapy done at Oregon Health Sciences on March 20th.  No ill effects, pretty easy procedure.
 
Link to Mr. Duck's Brachytherapy Journal
 


drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/9/2009 8:21 PM (GMT -6)   
cool  Thank you all for the helpful suggestions and good wishes.  I had a second opinion by a surgeon in Boston MA.  He has done over 1,000.  He confirmed what the first surgeon had told me.  I am proceeding with the DaVinci robotic and will have it done on April 20.  I tried for April 15 so that one pain would block out the other (tax day) but the 15th was booked.  There were many factors in my decision.   The prostate will be out.  They can use it for research.  They will test it to see if the cancer was contained within the gland.  etc etc.
 
I hope that my situation may help some other guys.  I sing in a church chior and 3 of the 5  guys have Prostate cancer.  One guy is watching and waiting.  The other guy is in a state of shock and needs some guidance.  I will give him this web site as it has helped me a great deal.  I will also relay what I have learned from this web site.
 
Thank you a good luck all.
 
Drummer

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/9/2009 11:01 PM (GMT -6)   
hi Drummer,
I am a Bluegrass/Country/Christian musician by hobby. I have played guitars, bass, Dobro for many years (33+). We have other musicians here and I have recently befriended a bass player for a pretty much big time 60's rock group as well. LOL we should get this wiley bunch a song.

Good luck in your treatment. Your decision is highly personal and it has to meet your requirements and expectations. Stay close. This is a great group here. You will be able to ask about any question and get an experienced answer.

Peace and may many blessings come your way.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 4/16/2009 10:41 PM (GMT -6)   
Hello Drummer:
If you examine my profile (below), you will see a situation similar to yours. A Gleason score of 6; low grade cancer staging (T1c). Age 65 at time of biospy and daVinci surgery. Good health, except for the PCa. Very active - tennis, golf, lift weights and bike.
I, too, aggressively made the decision for daVinci robotic surgery for many of the same reasons which you have stated. I rejected the other methodologies for many of the same reasons. I did seriously consider "watchful waiting", but at that time the logic of that approach was not persuasive. It seemed more logical to just get the cancer completely out of my body. If it means anything, at the time my doctor had performed in excess of 500 daVinci RRPs. In fact, my external recovery from the surgery was rapid; no pain whatsoever, and I returned to tennis in 5 weeks.
Prior to the surgery, I considered the possibility/probability of ED, and I made peace with that consequence. It was very difficult, but quite logical. However, it turns out that I did not adquately consider the possibility of extreme incontinence and its consequences. I currently am 17 weeks RRP, and am totally incontinent. It's not just damp or wet diapers; it's at least 7 soaked diapers per day, every day. Plus, I immediately void into my diapers upon rising from a prone or seated position. My sphincter is open (per a cystoscopy), and will not close, as per normal. Dealing with this extreme incontinence occupies a significant portion of my day. While it doesn't stop me from doing many things (tennis), it does alter my day and my thoughts. I often think that "watchful waiting" would have been a better choice, and I often consider how many years in my 70s I would forego for a current return to normalcy.
It is interesting to note the divergence in the comments from those of us in our mid-60s vs. the others who are younger. Remember --- with this surgery there are no "do overs". If any of the ancillary effects from the daVinci surgery has the potential of seriously and adversely affecting your life over the next 5 to 10 years, you owe it to yourself to incorporate those considerations, as well as your current age, into your decision making process.
Good luck, and if you continue with the daVinci surgery, I hope that at least your external healing will be as rapid and pain free as was mine.
Last PSA prior to biopsy  -  11.9
Biopsy  -  8/7/2008
Cancer findings at left lateral and left medial apex of prostate
Gleason score  -  3+3 = 6
Staging  -  T1c
Prostate size/weight  -  128 cc./ 99 grams
Bone and CT scans  -  9/12/2008  -  both clear
Age at biopsy  -  65         Health  -  Excellent (other PCa)  (Lift weights, play golf & tennis (incl. singles))
da Vinci RP surgery  -  12/15/2008 at Naples Hosp.
Surgeon  -  Dr. Wm. Figlesthaler
Hosp. Stay  -  1 night
Catheter removed  -  12/23/2008
Post-Op blood tests  -  2/2/2009 & 3/27/2009                     PSA  -  undetectable
Scheduled 12 weeks biofeedback, coupled with electrical stimulation  (started 3/3/2009)
 


drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/17/2009 6:24 AM (GMT -6)   
cool  Well, here it is Friday morning with the DaVinci surgery on Monday.  It is funny, I do not seem as worried as before and am sleeping quite well.  I have arthritis and had to get off the medication (meloxicam) which worked very well, ten days ago.  The arthritis is my only pain.  I greatly appreciate all the comments and feel as like we all know each other and care for each other.
 
I will post again after the surgery.
 
Thanks and good luck all.
 
Drummer

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 4/17/2009 7:29 AM (GMT -6)   
Drummer...keep the great attitude going and we will look forward to seeing you on the other side. BTW...I am on arthritis pain meds too...isn't that a bummer not taking them for 10 days before surgery....oh and for me after the surgery it took a few days to build the meds back up into my system, so I had joint pain on top of surgery pain to deal with. Best advise I can offer...get out of bed and start walking as soon as you can. That will help with both types of pain.

Good luck...I will look for your post surgery report when you are up to it.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month April 2009 .06


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 4/17/2009 8:44 AM (GMT -6)   
RHC Jr. said...
Hello Drummer:
If you examine my profile (below), you will see a situation similar to yours. A Gleason score of 6; low grade cancer staging (T1c). Age 65 at time of biospy and daVinci surgery. Good health, except for the PCa. Very active - tennis, golf, lift weights and bike.
I, too, aggressively made the decision for daVinci robotic surgery for many of the same reasons which you have stated. I rejected the other methodologies for many of the same reasons. I did seriously consider "watchful waiting", but at that time the logic of that approach was not persuasive. It seemed more logical to just get the cancer completely out of my body. If it means anything, at the time my doctor had performed in excess of 500 daVinci RRPs. In fact, my external recovery from the surgery was rapid; no pain whatsoever, and I returned to tennis in 5 weeks.
Prior to the surgery, I considered the possibility/probability of ED, and I made peace with that consequence. It was very difficult, but quite logical. However, it turns out that I did not adquately consider the possibility of extreme incontinence and its consequences. I currently am 17 weeks RRP, and am totally incontinent. It's not just damp or wet diapers; it's at least 7 soaked diapers per day, every day. Plus, I immediately void into my diapers upon rising from a prone or seated position. My sphincter is open (per a cystoscopy), and will not close, as per normal. Dealing with this extreme incontinence occupies a significant portion of my day. While it doesn't stop me from doing many things (tennis), it does alter my day and my thoughts. I often think that "watchful waiting" would have been a better choice, and I often consider how many years in my 70s I would forego for a current return to normalcy.
It is interesting to note the divergence in the comments from those of us in our mid-60s vs. the others who are younger. Remember --- with this surgery there are no "do overs". If any of the ancillary effects from the daVinci surgery has the potential of seriously and adversely affecting your life over the next 5 to 10 years, you owe it to yourself to incorporate those considerations, as well as your current age, into your decision making process.
Good luck, and if you continue with the daVinci surgery, I hope that at least your external healing will be as rapid and pain free as was mine  
Sorry to hear about your devastating incontinence issues. May I ask whether or not any  reason or explanation has been provided for such a drastic outcome- any pre-surgery major urinary related problems? I hope things improve for you- sounds like your worst nightmare.
 
I am in the process of trying to decide on a treatment method ( or not ) and your story scares the hell out of me.
 
 

 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
 
  "There may come a day when the courage of men will fail, but it will not be this day."


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 4/17/2009 8:49 AM (GMT -6)   
drummer said...
cool  Well, here it is Friday morning with the DaVinci surgery on Monday.  It is funny, I do not seem as worried as before and am sleeping quite well.  I have arthritis and had to get off the medication (meloxicam) which worked very well, ten days ago.  The arthritis is my only pain.  I greatly appreciate all the comments and feel as like we all know each other and care for each other.
 
I will post again after the surgery.
 
Thanks and good luck all.
 
Drummer
 
Good luck Drummer- you seem to have a great attitude and thats half the battle.
 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
 
  "There may come a day when the courage of men will fail, but it will not be this day."


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3211
   Posted 4/17/2009 2:35 PM (GMT -6)   
How do you get a drummer off of your front porch ?

Pay him for the pizza.

Why do guitarists keep drum sticks on the dash of thier cars?

So they can park in the handicap spaces.

What do you call a guy who hangs with musicians ?

A drummer
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16


drummer
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/22/2009 6:43 AM (GMT -6)   
cool  Well I had the DaVinci nerve sparing sugery on Monday 4/20/09.  All went well but I do have a lot of gas which I cannot pass.  My stomach is bloated about two belt sizes and there is pain in there along with pain aroun dmy right shoulder.  The Doctor was able to spare the nerves ad he believes from the look and feel of the prostat that the cancer was contained.
 
I am still strugglingwith the catheter.  I have had a couple of spills but my wife is very understanding.
 
All in all I am happy that I went this way and will add on as I get my post op meetings done.
 
Thanks to all for your kind help and good luck all.
 
Drummer

MERCEDESMAN
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/22/2009 7:32 AM (GMT -6)   
DRUMMER, I HOPE YOU GET WELL SOON.

I WAS DIAGNOSED THAT WITH GLEASON 3+3, PSA 5.1 AND FREE PSA 0.3. I AM TRYING TO FIND BEST FOR ME...I AM 56 YO VERY SPORTY....I AM CONFUSED ALREADY...I LIVE IN NORWAY, MY DR ADVISED ME TO HAVE AN open SURGERY...I PREFER HIFU...DOES ANYONE SUGGEST STHING TO ME?

REGARDS ALL

MERCEDESMAN
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