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Oncas
Regular Member


Date Joined Jan 2009
Total Posts : 390
   Posted 4/12/2009 4:35 PM (GMT -6)   
Happy Easter guys,
 
Seventeen days after RRP surgery and getting a pretty good grip on my unexpectedly dismal pathology report and my incontinence issues. The more time I spend on this forum the more I recognize the importance of attitude.
Quick query about the incision. It was pretty much a non issue since the surgery. I noticed that it has a thick ropelike swelling beneath the surface. A little itchy and sore but nothing super painful. Swelling is not really visible on the suface. This may be normal as I don't believe that I was told what to expect. Is this how these incisions usually heal?
 
Oncas (Jim)

Age 61
Northeastern Penna.
11/08/08 annual checkup (3 yrs late) PSA 8.04 from previously 2.7 in !!/05
1/23/09 biopsy 12 cores positive, 10 cores Gleason 7, 2 cores Gleason 8 70% tumor
2/06/09 cat +bone scans clean ..
3/26/09 RRP surgery Post op path .. upgraded to Gleason 9 (5+4), seminal vesicles involved, several positive margins, 2 of 9 lymph nodes positive.
4/4/09 Dr. advising wait for significant rise in PSA and initate hormonal treatment.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 4/12/2009 5:09 PM (GMT -6)   
Oncas,
Happy Easter to you and sorry about your pathology report but remember, it not the end of the road. There are people with stories worse than yours who are still doing well many years after their surgery.
As far as the incision, I had a big black and blue area for a while and when it healed, it left a little not. According to the therapist, if you messages regularly, it will go away.
Age: 67
Retired in 2001 and living in Austin TX.
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Post op Pathology report:
Prostate weighed 57 grams
size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
Lymph nodes: not dissected
seminal vesicles clean
1st PSA test 4/7/09 result 0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/12/2009 5:34 PM (GMT -6)   
Mostly sounds normal about the incision, my staples were out at 10 days, but a lot of the swelling below the surface last for a good 6 weeks or so after surgery.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 4/12/2009 5:36 PM (GMT -6)   
I hope I'm not out of line, but if I had your signature, I would be pressing my Doctor for more aggressive
treatment.

Testosterone feeds PCa, I would ask the Doctor to start me on hormones TODAY.

Tony? James? What do you think?

On the incision, rubbing in Vitamin E oil and massaging several times a day will help greatly.

Billy
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.


Oncas
Regular Member


Date Joined Jan 2009
Total Posts : 390
   Posted 4/13/2009 8:48 AM (GMT -6)   

Completely understand the caveat expressed by mlbsm. This is cetainly a supportive community bound by a common enemy and I don't feel that analyzing treatment options necessarily goes against our purpose. Our wealth of experience is our most valuable tool. As for the reasoning behind my surgeons treatment plan, he apparently feels that there is not enough benefit to early ADT intervention to justify any quality of life sacrifices. I myself am not sure that I am in total agreement but I have not yet been able to acquire other opinions for comparison.  What opinions have others heard re this protocol?   I have been able to schedule an appt. with a radiation oncologist but I suspect that given my situation I should be trying to find a good medical oncologist instead. It's kind of scary because I'm sure that all specialists are biased somewhat toward their own specialities and the ultimate treatment decisision falls solely in the hands of the patient. I guess PCa is rather unique that way. The realization of node involvement certainly takes much of the wind out of one's sails but I remain committed to staying alive for many more years and I will learn what is necessary and do what is necessary to accomplish just that.  In the meantime it's a beautiful spring day... enjoy.

Oncas (jim)


Age 61
Northeastern Penna.
11/08/08 annual checkup (3 yrs late) PSA 8.04 from previously 2.7 in !!/05
1/23/09 biopsy 12 cores positive, 10 cores Gleason 7, 2 cores Gleason 8 70% tumor
2/06/09 cat +bone scans clean ..
3/26/09 RRP surgery Post op path .. upgraded to Gleason 9 (5+4), seminal vesicles involved, several positive margins, 2 of 9 lymph nodes positive.
4/4/09 Dr. advising wait for significant rise in PSA and initate hormonal treatment.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/13/2009 8:55 AM (GMT -6)   
Jim, you will have to become two people in one, if not so already. You will have to be the Jim that is pursuing every possible angles for future treatment options and paths, continuing to learn and go way outside the box for possible solutions, but on the other hand, you need to be just Jim, and enjoy each and everyday, get back into all the things you love to do, be with those you love to be with, and tell yourself, life goes on. I think all of us spend so much time, thought, and energy on our PC, that we forget that we could die of a thousand other things on any given day by sheer providence alone. By the time a perfect new solution for PC comes along, we could get hit by a bus. I am a little younger than you, and its only now, that I am starting to realize how short life really is, with or without PC. I am trying to teach myself to enjoy it all, the good and the bad, because that is all we get in this world.
My best to you brother.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 4/14/2009 10:12 AM (GMT -6)   
Sorry for offending you Ohio, but if my Dr. suggested I waited until he saw "A significant rise" in my PSa before doing anything, I'd be walking to another Dr. REAL FAST.
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.

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