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Oncas
Regular Member


Date Joined Jan 2009
Total Posts : 390
   Posted 4/13/2009 2:13 PM (GMT -6)   
Somewhere along the threads I recall a post suggesting that a list of good medical oncologists was avaailable and that recommendations might be made to accomodate one's geography. Good referrals are so hard to come by. Can anyone suggest a good guy given my locale?
 
Oncas (Jim)

Age 61
Northeastern Penna.
11/08/08 annual checkup (3 yrs late) PSA 8.04 from previously 2.7 in !!/05
1/23/09 biopsy 12 cores positive, 10 cores Gleason 7, 2 cores Gleason 8 70% tumor
2/06/09 cat +bone scans clean ..
3/26/09 RRP surgery Post op path .. upgraded to Gleason 9 (5+4), seminal vesicles involved, several positive margins, 2 of 9 lymph nodes positive.
4/4/09 Dr. advising wait for significant rise in PSA and initate hormonal treatment.


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 4/13/2009 4:06 PM (GMT -6)   
Oncas,
The PCRI.org web site has a list of prostate oncologists as well as surgeons and radiologists. It tells where they are located and gives contact info.
JohnT

64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

JohnT


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/13/2009 4:38 PM (GMT -6)   
Jim,
How far are you from NY City? Memorial Sloan Kettering has some dandy oncologists who specialize in prostate cancer. Also the Fox Chase Center is pretty well known. If you don't mind the travel, these are great starts. And I recommend a major center at some point. You can always be treated locally for radiation (IMRT is highly recommended after failed surgery).

Jim I have weathered the storm of this next route you probably have to consider. It ain't so bad and I am doing well. Hang in there. You can contact me directly if you'd like to. My Email is enabled and in my profile.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

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