Total Urinary Incontinence and Foley catheter removal

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

softhackle
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/14/2009 1:39 PM (GMT -6)   
Hi,
I had surgery to remove my prostate gland on March 23, 2009. The Foley catheter was removed last Friday on April 23rd. As of now I am totally incontinent. My gleason score at the time of surgery was 6 and PSA of 26. Cancer was found on 50% of the prostate. Has anyone else gone through this? Does anyone know how long it will be before the total incontinence improves?
Thanks

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 760
   Posted 4/14/2009 2:43 PM (GMT -6)   
Softhackle,

Yes, I think shortly you will see many replies from folks who had the same experience. There is a complete range, from some guys who were fine right away (lucky!), to those who needed followup surgery like AUS. Hopefully you will fall somewhere in between. Some fellows took 3 to 6 months. As I recall, many times there was a plateau of no improvement for months, following by an almost overnight improvement. Anyway, I'm sure you'll hear this shortly from those who can describe it firsthand.

Good luck. And oh yes, welcome to the club that no one wants to belong to.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 4/14/2009 4:57 PM (GMT -6)   
Hi Softhackle,

I had my surgery in December, 2008 and the catheter was removed about 3 weeks later. Like you I was totally incontinent. I was using 10 and sometimes more pads a day.

In less than a week I could hold it if I was lying or sitting down. When I go up during the night the gush was more than the pad could handle, so I resorted to using a bottle as I got up. It worked very well for me.

about 2 months after surgery I could make it to the bathroom and still hold it as long as I was quick about it. Now I can hold it for a fair amount of time before I need to relieve myself.

For me it's been a gradual improvement and I'm happy with that. I still look forward to the day I'll be completely dry.

Good luck and God bless,
Bob
Age 69, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin

Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative

First post PSA < .1 Jan 16 2009


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 4/14/2009 6:07 PM (GMT -6)   
Hi softhackle,

You are very early in the healing process. According to what I have read, the average time for continence is somewhere between 2 and 6 month. Some men are lucky and heal a bit faster; some take a bit more time. Unfortunately, a few men have to wrestle with this problem for much longer. Patience is an absolute MUST for this dreadful disease. I did a lot of walking (still do) and regular kegel exercises and was dry about 2 month after my open RRP.
All the best to you.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA on the 26 Jan., 09, =0.05. PSA tests now every 6 month


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 4/15/2009 10:06 AM (GMT -6)   

Hi

I was totally dry in two months but was one of the lucky ones, I guess. I did walk extensively, doing kegels while I was walking. I averaged 3 to 5 miles a day. I also cut down on coffee and soda's until I was dry.

The first week after the catheter was out, was pretty heavy on the use of the pads. Good luck

 


Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


softhackle
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/15/2009 10:57 AM (GMT -6)   
Thanks for the helpful replies everybody. Stress incontinence I can live with. I just can't wait to past the total incontinence stage. I've been walking at least a mile each day and doing my kegels at least 4 times a day. Thanks again for the support.

P-Ca-duceus
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/15/2009 11:55 AM (GMT -6)   
Hi softhackle. I am also freshly post-op and I feel that life is one big Kegel right now. I am seeing improvement day by day. Keep up the good work with the Kegel excercises and activity and I am sure you will also see improvement over time.
Your brother in pads,
Bob.
12/2005-Age50-PSA 4.2-Biopsy negative
01/2008-Age 52-PSA 8.0-Biopsy negative (I should have known then)
01/2009 Age 53-PSA 17.8-Biopsy positive-Gleason 4+3, 1 of 24 cores!
Time to become my own best advocate
Special protocol MRI with Gadolinium dye at Brigham and Women's Hospital-
main tumor (1.9cm) is ANTERIOR, not accessible by biopsy. All is now clear.
04/02/2009-open RP with bilat nerve sparing- Dr. Jerome Richie (experience is #1)
Pathology- Stage T2cN0M0,Gleason 4+3, margins clear.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, July 21, 2018 8:30 PM (GMT -6)
There are a total of 2,984,057 posts in 327,176 threads.
View Active Threads


Who's Online
This forum has 161969 registered members. Please welcome our newest member, Alarik.
366 Guest(s), 9 Registered Member(s) are currently online.  Details
Steph6n, SergeFL, Alarik, PDL17, Justin01, RobLee, FLBeachgal, Going for brachy, Redwhite&blue