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DanaA
Regular Member


Date Joined Jan 2009
Total Posts : 71
   Posted 4/15/2009 6:11 PM (GMT -7)   
I posted here a few months ago when my boyfriend had an elevated psa. Today they told him T2c Gleason 4+4 10 PSA. They scheduled surgery a month from now at the VA here in Ohio. I told him he needs an opinion from a specialist. Anyone have one in Ohio to recommend? Someone recommended a book to me before also, but I can't find the post. Any advice would be great. Thanks for reading.
 
Dana

 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4168
   Posted 4/15/2009 7:44 PM (GMT -7)   
I would see Fred Lee in rochester MI. I know Ohio State will agree with that.
JohnT

64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

As of April 10 and 7 weeks on Casodex and Proscar PSA has gone from 30 to 0.62 and protate from 60mm to 32mm. Very minor side affects. Doc says all this indicates tumor is not aggessive

Awaiting schedule for seed impants

 


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 4/15/2009 9:35 PM (GMT -7)   
DanaA,
Cleveland Clinic is in Ohio and #2 in the nation for PC.  Where in Ohio are you.
Best Wishes,
Tim
 
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03
      Apr/09 .03


DanaA
Regular Member


Date Joined Jan 2009
Total Posts : 71
   Posted 4/16/2009 3:10 AM (GMT -7)   
Thank you for the replies. We live near Cleveland, he's in Euclid. His psa was 12 at Christmas and now is a 10. He had a psa in January that was 10 also, then the biopsy a couple weeks ago.
 
Dana

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 4/16/2009 4:03 AM (GMT -7)   
Dana,

Under resources post in the top of this forum there are a number of comprehensive books under books recommended by members. We used the first couple listed when my husband was diagnosed - Scardino and Walsh's books. All books listed have been highly recommended by forum members so worth a look. Good luck with your search for information and Specialists in your area. I am sure you will find a wealth of info here. There is also lots of information under various topics in the members thread section of the same thread at the top which you may want to browse through as questions come up. kind regards, Lana
Creed_three
Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: Oct 2008: 0.03:
Nov, 2008: 0.02; April 2009: 0.03 
 

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