I am new to this forum, stumbled across it in a desperate search for answers that I can believe, and can use some advice. I have conversed with two Urology Oncologists...the second one today and the news was very different from the first...or maybe it is just news that was not spoken previously.
I am 59, PSA 5.5, 12 of 12 cores positive. Partins 4+3. Bone scan clear. CT scan clear. Happily married. 2 children and 6 grandchildren...mother, sister, brother living. Lots to live for.
The suggested course of action, today, is to bite the bullet, skip efforts to save the nerves, and resign my self to ED for the rest of my life as the cancer is deemed aggressive and the probability of requiring subsequent radiation and hormonal therapy is high...resulting in a libido level so low that I won't care.
I am trying to find out if Surgeon 2 is just 'telling me like it is' (which I appreciate if that is the case) or if he is bring overly cautious. He has roughly 700 robotic RPs to his credit so there is considerable experience to draw on.
My questions for anyone with experience or similar conditions....
- Is my cancer really that aggressive? No one has really said specifically. No one until today acted like this was a real emergency..wanting me in the OR next week.
- Is my condition so advanced that I should be willing to give up any hope of avoiding ED and agree to deliberately remove the surrounding tissues due to the probability of 'microscopic extracapsular extension'. Included are the pelvic lymph nodes.
- Given the stage 3 diagnosis what is the probability of recurrence? Todays consult indicated that my probability is 100% for recurrence.
- How does everyone's spouse/SO deal with the ED?
I am desperate to hear some plain talk from anyone with similar experience. I will make my own decision but I have a very limited pool to draw on at the moment and I need to make some decisions quickly...it has been two months since the diagnosis and everyone is concerned.