Penile Implant for a 21 year old Questions

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mike21
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/26/2009 2:39 PM (GMT -6)   
Hey my name is Mike. I'm only 21 but think the only way to save my sex life and mental health is to get an implant (probly 3 piece AMS LX). I'm in college and not being able to have sex is killing me slowly. My penis function went downhill for about 2 years, first it was just cold and firm in the flaccid state, working only with viagra and cialis, and as of 4-5 months ago stopped working correctly all together even with drugs. (Years ago I stupidly did steroids, thyroid meds, various penis stretches, jelquing as i though things were not sufficient when all along I was fine.I dont know which thing did the damage and have spend years trying to figure out. All I know is my penis has gotten continually worse and viagra and cialis no longer work at all for me.) I can go into more detail maybe later if needed but my question for now is about counteracting the shortening from the implant:
 
First off I was wondering if I could have my suspensory ligaments cut to give me an extra inch or so which I fear I may lose. I'm a young guy and this is very important to me. From what I've heard, the downside to this operation is that the penis loses stability. Would the implant have enough power to make the purpose of the suspensory ligaments not be needed? Would it make up for the instability I mean? Do you think these procedure could be done together? (implant and suspensory cut). Is there anything else I can do to get some length or girth back?
 
Also, as far as girth what should I expect? I've had severe girth shrinking in the past 2+ years as my corpus cavernosum has hardened and lost all elasticity and i feel my vains have hardened in the penis. (doctors dont see this and had a penile doppler done and said everything was fine, but its not. They tried saying it was in my head.) Do all cyclinders of the pump expand the same amount girthwise? Will girth keep expanding as far as my skin will stretch as I pump? Could I maybe regain much of the lost girth now?
 
Most Importantly, What steps should I take to get this done. What do i need to tell doctors, who should i see when my uro says I'm too young to even think about an implant? I know I need it and don't want to wait until I've missed any more experiences of dating or sex thing before I end up eventually getting it like I know I will. Who should I turn to now that my uro won't help me here?
 
Lastly, how noticeable is it? If i could find some way to keep a girl from touching my testicals, could it be conceiled? Obviously this getting out would be very embarassing for a college student like me. Could I pump up during kissing or undressing? Or maybe say i have to go to the restroom and come back with an erection maybe tucked under m belt or kept conceiled by wearing tight boxers?
 
I know I've asked about a million questions here but I'm desperate, depressed, and really need to fix myself. I can go into more detail about my history and the state of my penis if that would help any.
 
So please help me out I really apreciate it.
Mike

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/26/2009 2:50 PM (GMT -6)   
Mike,
My goodness. You are way too young for this. Welcome to Healingwell. You have found a forum that has many guys experienced with penile implants. I am not one of them so I will let them post the advice they can give. Your urologist may be right and that you need to be patient. But see another for a second opinion. Second opinions are common recommendation here. Have you tried injections?

Very smart seeking a forum like this one for this advice. Peace to you. I will try to fing Gene's post on implants and bump it up for you to read. So look for it.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/26/2009 5:23 PM (GMT -6)   

Mike,

You seem so sure you have damage, but I am puzzled that the doctor has not confirmed that.  He should be able to tell by whatever test is available and by feeling of it himself.  But I will attempt to answer some of your questions.  You evidently have done research by knowing which implant you would choose.  But none of them will add any length to what you presently have.  Mine did not.  I lost some, but I'm still not sure whether it was due to my prostatetectomy or the implant. It probably was from both. As I mentioned in my Q & A post (below), I think I lost about 3/4 inches.  My AMS is not the one you mentioned, but I think I gained some girth with my CX.  I think now that if I had a choice, I would have gone to the LGX if what most guys who have received it say is true...and I'm sure it is. 

I direct you to a Yahoo Penile Implant site which will avail you to lots and lots of guys who have had these things, of course because of some state of ED.  I would post the link, but I understand it is against the rules without permission.  Email me and I will send it to you.

You really need to see a reconstructive surgeon... one who does penile implants and lots of them.  Don't go to one unless he does lots and lots of them each year (some say 100 per year).  My surgeon in Dallas does about one per week and he is considered THE guy to go to in Dallas.  Regular urologists are going to be very suspicious and you should probably be suspicitous of any surgeon who is gun-ho to implant you too.  He will want to know for sure he is helping you and not harming you.

I do not know about the ligament thing.  There is a guy on here by the name of Art.  He will be your best help on Healing Well.  Look for his posts because he's the most experienced with these things.  I think he will notice your post and that mine has been bumped up and he will get back with you.

Gene214 


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 


mike21
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/26/2009 6:33 PM (GMT -6)   
To be honest I'm not completely sure I have damage. I don't have scar tissue according to the penile doppler and a uro's exam and that is the only test they would do. I was told it was in my head an recommended to see a sex therapist. However, its been two years since its worked like it should. It feels different. Its hard to explain but it has a different phyhsical appearance and feel. It started off always being cold to the touch and smaller than it would ever be after swimming in the coldest water. However, at first it would still function erect, and then when that stopped it would still function erect only with viagra or cialis but then shrink down immediately to an embarrasing size right afterwards, and now nothing works. It seems firm in a flaccid state. Perhaps whatever I did caused prolonged lack of blood which damaged something, or maybe I damaged my suspensory ligament or something because it has no stability at all. Its become very veiny, unelastic, painful and very "tight" all the time. Every vein feels hard and the corpus cavernosum doesnt even feel like spongy tissue anymore it just feels like a large hard vein, even when flaccid. I don't get spontaneous erections, it never hangs like it used to, i could go on and on with symptoms but at this point I don't think its going to help. I've seen multiple uro's and all just feel it and say they think its fine. I know its not in my head though I've found many threads online with ppl with the same symptoms who don;t know why its happening to them whose symptoms only get worse. I've finally lost hope of it ever getting better. A VED which I am getting is my last shot.
 
No I have not tried injections just cialis, viagra, and pt-141. My penis will get semi-erect, but it will not stay erect, is smaller, a different shape, not firm, hard and inflexible in a bad way. It kind of feels like its trying to push blood in, but the tunica will not let it expand.
 
But yeah, I will go to whatver surgeon wherever as long as he's the best. Right now I'm thinking of Dr. Eid, in NY, who has performed over 3000 of these which I think is the most in the world. He's apparently the best of the best but if anyone has any other recommendations please let me know.
 
And yes I hope to hear from Art as I've seen him on many forums and have read i think almost every post of his as I've done countless hours of online research over the years.
 
As far as it being discreet, could a girl tell i had an implant? I know it would seem like I have a third testical but if I kept her away from my testicals somehow, could she tell then?
 
As far as loss of length, I could deal with 1/2 maybe 3/4 inch loss and long as I kept girth but still if I could get that back with a suspensory surgery than would be ideal.
 
Lastly, and most importantly, what steps should I take now to try to get this done. Keep going from uro to uro until one says yes? My current uro is saying that I am too young to even consider it, but I think thats more of a reason for me to have it. I'm missing way more sexual experiences being young, attractive, and very social than if i were older anyways. And seeing how its only gotten worse over 2+ years, I don't see it getting better. I can't keep missing these experiences I feel like I've been robbed me of so much social growth by having to miss out on so much. When I go home with a girl from a bar or party I have to pretend to pass out drunk right before sex. I have a girl who is in love with me and I like her even more but have to reject her constantly because I know we can;t have a relationship in this state. Its caused me so much stress and pain I honestly can't keep going like this I need to do something. I need to find some way to get one of these put in and try to be as normal as I can. My goal is to find some way to have one of these put in this summer before Junior year of college so at least half of college can be normal. Well I am rambling this isnt really helping anything so ill stop that but I just need to get all the steps to getting one of these in. Like once I'm approved to have one by a uro, how long will I have to wait for the surgery?
 
thanks again for your help everyone

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/26/2009 7:23 PM (GMT -6)   
Gene214, go ahead and post the link. The Rule is to prevent people from advertising their own home-brewed forums, help sites and such. If you have no control over or ownership in it, then it's a valid link that we can use....
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 4/26/2009 7:46 PM (GMT -6)   
Mike21

Before you do anything else, you really need to try the VED which you can buy over the counter in most large cities. I have even seem them in the malls, the Unique Gift Shops usually carry them. You don't need a fancy, expensive one to see if a vacum will make you hard. If the VED works, then I think you are a candidate for injections.

I agree with the doctors who think you are too young, do you realize that if you get one now, you will probably have to have 4 or 5+ implants over the next 50 years? And your sex life will be completely gone when you are 70+ because of the scar tissue.
Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/27/2009 8:24 AM (GMT -6)   

Mike, go to Yahoo, groups and then do a search on penile implants.  You will have to register.  Perhaps you already have found the site.  It sounds as if you have done lots of research.  If things are as you indicate, and you've tried every other option, then it sounds as if someone like the doc you mentioned would be the one to contact.  But try to get out of the panic mode.  I'm sure that's difficult, but you seem like a ripe candidate to to make some mistakes.  So slow down to find the right help.  I hope this helps.  Art... where are you?    

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 

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