Burning Urination

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

BurningBush
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 4/29/2009 1:20 PM (GMT -6)   
This is Burning Bush, member since March. I still have my symptoms as posted in March. I have only had 5 responses. Surely there is more people out there with the extreme burning and incontinence that I am experiencing after High Density Radiation. Although my Oncologist and Urologist say that I am a "Rare"case. Seeds in only for a short time, twice. Still hurting. Sorry to be a "Whiner", but I am looking for answers. I really am not looking for some mechanical devises, even though I have not heard of any for my problems. Any help would be greatly appreciated.

Thank You

Burning Bush

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 4/29/2009 1:55 PM (GMT -6)   

It would have been better to post in your original thread since it has more information.

Original Thread:

http://www.healingwell.com/community/default.aspx?f=35&m=1431945


New member. I had Brachy therapy in the form of High Density Radiation (no seeds). Finished my treatment last March 19th, 2008. Along with HDR, I had 30 days of external radiation. Several months ago I had a pain in my rectum, went to Internist, he gave me suppositories for 30 days, two a day, seemed to help, but for several months I have been experiencing incontinence, and severe burning upon urination, on a scale of 1 - 10 the pain is a 12. I have been seeing a Urologist and my Oncologist and they have had me on just about every antibiotic known, along with meds. that turn my urine different colors. I have had urine analysis's, a cystoscope, and I am awaiting the result of a swab of my penis, for bacterial infection I believe. Any suggestions and/or help.

 


Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 4/29/2009 1:57 PM (GMT -6)   
Since you've had two professional medical doctors that have not been able to do anything - I'd go looking for one till I got some help.

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/29/2009 9:42 PM (GMT -6)   
Sorry to hear you are still suffering the problem. I don't have any answers but if I were you I would pound on another medico's door in order to find another doc who may be able to find a solution.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 4/29/2009 10:26 PM (GMT -6)   
I have a friend who had Seeds and HDR and ended up with what sounds a lot like what you are going thru.  After several visits to his Doctor over many months he was finally given sulfur pills which helped him a lot.  I don't know if this will be of any help to you, but it may be worth mentioning to your Doctor.  All the best to you on your journey to recovery.  Allan
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.
PSA remains undetectable.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 4/30/2009 7:49 AM (GMT -6)   
If they had you on the pyridium, the med that turns your pee orange and stains badly, it should have cured the burning part of your issues, if that didn't work, it really puzzles me. The only comfort I can give is there has to be a concrete medical reason for this, and it's just going to take the right doctor at the right place to find it out. Good luck to you, and hope your suffering ends soon.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 4/30/2009 7:04 PM (GMT -6)   
Dude, I had severe burning and when I had to go I had to go. More than once I wet myself. I would awaken several times a night to use the bathroom. It was not until my uro found a stone in my bladder that I was able to rid myself of the burning by having the stone surgically removed. Many Dr. examined me and found nothing wrong. It might be worth a look. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 10:36 PM (GMT -6)
There are a total of 3,005,970 posts in 329,290 threads.
View Active Threads


Who's Online
This forum has 161814 registered members. Please welcome our newest member, thk.
280 Guest(s), 6 Registered Member(s) are currently online.  Details
ANB, mauricesr, 61Impala, Ultimo_G, mareish, trumpet123