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Kneedeep
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/2/2009 12:08 PM (GMT -6)   
 
 
 Hi everyone. I had a radical Prostatectomy Monday 4/27/09 with the Da vinci assist. It's Saturday and I'm feeling better as each day passes. I'm not very well informed because I don't know all the stats of my biopsy, but I do remember the aggressiveness of the cancer was rated at 3+4=7  at least that's what I thought the Doc told me the rating was for. I wasn't told that there was gonna be more test after the surgery, I thought the surgery would be the end of it. I'm scheduled for a follow up appointment for Monday with the surgeon. I need to know more about what to expect and what questions I need to ask. I thought the catheter would be removed and I would be good to go. After reading here, I realize I'm in for some surprises and I'm glad I found this site. Please help me learn what I need to know. I guess the pathology report will determine what direction I'll be heading. I'll probably find out the results come Monday. Thank you,  Roger

TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 5/2/2009 2:05 PM (GMT -6)   

Roger, you did find a good place to ask and learn. I am surprised that your Doc did not at least point you in the direction of information that describes this journey. You will find it here. You have passed, what for me was the worst "mental" part of the journey, i.e. the Dx and figuring out what to do. You are "on the other side" as they say. That is good. Next step, catheter removal and discussion with Doc about post-op pathology report. Biopsies only give a sense of the real situation, though they are indicative of the situation. A pathologist examines the entire gland (and lymph nodes) and determines if the Pca has expanded outside the prostate. If so, then there may be more treatments to discuss. Based on Gleason 3+4 you have a high liklihood that it is contained and such a score is not considered "aggressive" but rather is on the "intermediate" level. "Low" would be 6 and under. The patholgy report will tell for sure whether it is 3+4 or something else.

Following the catheter removal/pathology review, the next chapter is dealing with "retraining" your bladder as a nurse told me. This can take up to several months to get total control, so we are told. Some take more, some less. I am 10 days out and still working on it but it seems to be getting better each day. After that, the next step is recovering in the ED department. Some bounce back quickly, others take a while, some, depending on the procedure do not.

One thing for sure though, we are all very grateful to have it out of us and behind us as we deal with the new chapters one day at a time.

Another thing you must do for yourself and your family, is study and understand what your own situation is as you proceed on the journey.

Best wishes to you,

TeddyG

 

 

 


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who ishelping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare but review of literature says ~1.3 %; family says "miracle."
Now working w/ post-surgery issues....
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 5/2/2009 6:36 PM (GMT -6)   
Kneedeep,
It is standard procedure for the doctor to schedule an appointment to remove the catheter and discuss you pathology report. Make sure that you get a copy of that report. It is important to have it in writing so you can put that information as part of your signature. Hopefully you will have a good report which is the first step. After that you will deal with incontinence and ED. I'm still using one pad 10 weeks after the removal of the catheter but there are others who did much better in a short period
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


Kneedeep
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/2/2009 7:31 PM (GMT -6)   

 

Thanks everyone, I'm feeling better just talking about this with someone who knows whats going on. After reading here I feel like some one has switched on the light and I'm not stumbling around in the dark. I will get a copy of the pathology report when available and figure out how to add it to my Sig. I know they took 12 biopsy's and from the six on the left side 5 were positive for cancer. The biopsy was done on March 4th 2009. I was originally scheduled for a biopsy in October of 2008, but the first urologist office had a problem with their probe and cancel my appointment several times, after that they said they would call me when the prob was repaired. When December rolled around I was so stressed out from worrying, that I called them and they had forgotten about me. I received a return call (on my answering machine) from the urologist that did the rectal prostate exam and scheduled the biopsy originally. She apologized over and over and said that the situation was inexcusable and assured me that My biopsy had high priority at that point. I returned the call and was told by a secretary that I couldn't get an appointment until Feb 2009. I received a second call from a  different secretary later that day and was told that I had a biopsy scheduled for Jan 2009. I was at the 2:00 pm appointment at 1:30 pm at which time I was told the doctor was tied up elsewhere and they wanted to know if I would mind waiting until 3:00 pm. I declined and had my General practitioner refer me to a different Urologist. This urologist got down to business and did the biopsy and then the surgery. I don't know how long this cancer had been in my prostate, but I can only prey that it didn't spread while I was setting around worrying for 6 months. Sorry for the ramble, but this is some scary stuff to have to deal with own your own.

Ohio State, No offense taken. Humor has got me thru many trying times in my life. I am called Kneedeep for a reason. I love to tell jokes and have a tendency to embellish a bit on my fishing stories. My fishing buds gave me the name and they have learned to number my stories, so when they have already heard a particular story, the just call out the number and I'll change stories. smilewinkgrin   Thanks for listening


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 5/2/2009 7:53 PM (GMT -6)   
Welcome to the forum Roger I to am glad you found us. I am happy you are on the otherside of the journey, however in many respects the journey is just begining. You will be writing new chapters in the book of life and I hope they are all good. You will find wonderful wisdom and insight here at HW please take advantage of all the knowledge available to you. I am not the medical guru that so many are, I focus more on the emotional and spiritual aspects of dealing with cancer. We all have talents here at HW so be sure to use us.

peace and much love
dale
My PSA at diagnosis was 16.3
age 47 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
Testosterone keeps rising, the current number is 156, up from 57 in May
T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%
 

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