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snuggleup
Regular Member


Date Joined Mar 2009
Total Posts : 43
   Posted 5/4/2009 3:21 PM (GMT -7)   
Thanks all for your support in matter. Husband had RRP 2/17/09, Last week I tried getting him in the mood and he wound up without an erection, but did get an orgasm ,and urine came out. Does this mean that it will be permenant, or part of the healing process? Thanks for all your input. THANKS ALL.. God Bless

carver
Regular Member


Date Joined Jan 2009
Total Posts : 27
   Posted 5/4/2009 3:48 PM (GMT -7)   
A vacuum erection device used with constrictor BAND/BANDS (not the rings) should stop any leakage you describe and give him a sufficient erection. See   http://www.firmastore.com/ for a picture of the bands and rings. While I use the injection method most of the time, I also use the vacuum erection device (ved)with a constrictor BAND or two! Note that both rings and bands give out after multiple use just like a normal rubber band does. ( The constrictor bands are basically rubber bands.) They are folded over the ved tube and then slipped off onto the base of the penis once the erection is created by vacuum.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 5/4/2009 4:49 PM (GMT -7)   
Usally, that would be all part of the healing process, snuggleup. It's only been a little over 2 months since his surgery. Hopefully, he will continue to heal in that department. Has his doctor already talked to him about ED, ED drugs, pumps, injections, etc. yet?

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 5/4/2009 4:59 PM (GMT -7)   
No erection and urine at orgasm is quite normal at two months+ out. There is a good chance that both will improve with time and practice. Pulling a big Kegel at orgasm might help too -- it did me.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 5/4/2009 5:01 PM (GMT -7)   
Has he been taking any drugs such as Viagra, Levitra or Cialis? I started on both Viagra and Cialis as soon as the catheter was out. It still took four more months and Caverject to make me hard. Now at 11 months, I'm having noctural erections again without any help. But I figure I have at least another year of healing before I can drop the drugs or the injections.
Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 5/4/2009 5:27 PM (GMT -7)   
Hi, Snuggle
Give it time. It's stilll early yet and one question I have is, did the Doc take the nerve bundles, or were they spared? My doc took a wide swath from the left side, since that was where the cancer was prevalent. It has taken some time, but, I'm finding things are getting back to normal. Whatever that is. VED along with ED drugs do help and it alll comes down to practice. My wife and I pick a night to give it a shot and the anticipation of that actually does help. Go figure, as I used to be a "regular" guy, the adjustment makes the moment more meaningful and enjoyable.
So, be patient. Good things come to those that wait.

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 Fully continent...ED progressing as expected.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 5/4/2009 5:28 PM (GMT -7)   
Greetings, Snuggleup.  What you are describing is very typical and in nearly all cases will get better with time.  I was told to be prepared for up to 2 years of these type of issues.  At just over 1 year it is certainly better, but still have occasional issues.  Be patient and love each other and you will be fine.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 5/4/2009 5:34 PM (GMT -7)   
Sorry. I forgot to mention that if he urinates before you guys get going it will help. Stand there and go..go..go. Lying on his back will also help as will the bands.
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 Fully continent...ED progressing as expected.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2455
   Posted 5/4/2009 7:44 PM (GMT -7)   
snuggleup,
My first orgasm after surgery squirted some urine, three months since, I no longer squirt any urine. It is important to urinate prior to getting started. Also don't forget, that having some bladder control is also important.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


snuggleup
Regular Member


Date Joined Mar 2009
Total Posts : 43
   Posted 5/4/2009 8:12 PM (GMT -7)   
Thank you all for your advice and suggestions. I forgot to mention, that his nerves were spared, and his doctor has yet to precribe ED medications. I had noticed that members started early on with Cialis, Viagra,ect. We have an appointment first week of June for his first PSA reading, and regular checkup. Is it normal to hold off on giving these meds for three months after surgery? Thanks once again,, Take care all..

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 5/4/2009 9:32 PM (GMT -7)   
It isn't abnormal but, meds right after surgery seems much more common.

Swim
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 5/5/2009 5:43 AM (GMT -7)   
My urologist purposely waited till the first 3 months post surgery checkup to schedule the "ED Talk" with me. He was totally amazed when I told him that I didn't have any need at that time, because I was getting natural usable errections on my own. I still wonder if my 2 month plus on the catheter helped in some odd way,or the fact they he never traumatized the right side nerve bundle (as he couldn't physical reach it due to difficulties), or he was just one heck of a surgeon. He definitely was humbled enough not to take any credit, but he's that kind of doctor.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 

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