Impotence and Leakage

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

spisam
Regular Member


Date Joined Jan 2009
Total Posts : 47
   Posted 5/4/2009 8:14 PM (GMT -6)   
It is 2 days shy of four months since my robotic surgery. I never had an ED problem but I did have a severe leakage problem. I started out needing 6 to 8 pads a day with gradual improvement over time. Today, for the first time, I went the entire day pad free. It took four months but I made it......a dry day.
 
I'll probably still use a light pad when I go to the fitness center or play golf. The moral of my message to guys reading this is to have patience. With time you too will be dry and pad free.
 
Sam 

pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 5/4/2009 8:32 PM (GMT -6)   
Hi spisam,

My surgery is approaching 5 months now. Like you I was using 8 to 10 pads a day right after the catheter was removed. It's been a slow but steady improvement since then. I'm fully continent when seated or lying down. Recently I found that I had no leakage while standing still but still have problems when walking. Based on the steady progress I've been experiencing I'm fully optimistic that I;ll be pad free some day. As you say, be patient.

Bob
Age 69, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin

Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative

First post PSA < .1 Jan 16 2009
Second post PSA < .1 Apr 17 2009


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 5/4/2009 9:01 PM (GMT -6)   

Guys, I am 2 weeks out from catheter removal and am wondering if you were doing kegel exercises routinely. I am generally OK laying down and almost OK sitting (some leaks) but still leaky walking around the neighborhood and if I walk around my office now that I have ventured back to the secular world. I know it takes time but I am wondering about the relationship between those exercises and getting control. Do they help and is there anything else that worked for you, or others out there in advancing the cause of control?

TeddyG


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 5/4/2009 9:34 PM (GMT -6)   
Guys,
I started physical therapy 2 weeks after the catheter was removed. I do several sets of Kegels every day. I started out dry from the first night and using 2 pads during the day. Walking and playing golf are the 2 activities that cause most of the leakage. I'm now just shy of 3 months and still use about half a pad a day. It seems like the last few drops will not go away. I'm hoping that soon it will stop.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 5/4/2009 9:36 PM (GMT -6)   
Hi TeddyG,

There seems to be a lot of conflicting information about doing Kegal exercises. Some information says you should do it often and other information says too much exercise is harmful. Very confusing. I do weight training and have learned that you should exercise a muscle group and then give it a day of rest. I felt that the pelvic floor muscles should be treated the same way.

I work the pelvic muscles via Kegal exercises on alternate days, allowing a day of rest between exercise days. For exercise I do 4 sets of 20 reps which is about enough to observe muscle failure.

Based on available information it's hard to say if this is really helping me or hindering me. I am seeing consistent improvement over time although it's taking longer than most people. My surgery was complicated by the size of my prostate and took nearly 6.5 hours. Some of the extra time was due to repairs made to the bladder.

I just feel fortunate that I'm healing as well as I am.

Thanks for listening,
Bob
Age 69, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin

Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative

First post PSA < .1 Jan 16 2009
Second post PSA < .1 Apr 17 2009


LarryC
New Member


Date Joined Mar 2009
Total Posts : 3
   Posted 5/4/2009 9:46 PM (GMT -6)   
Everyone says "be patient" and that's what I am attempting to do.
Anyone dealing with depression yet?
(Perhaps more on that later).
57yrs of age, otherwise great health....Now 8.5 weeks post-op, gleason was 6 (two out of ten biop samples positive).  Did the robotic (Patrick Foley, Memorial Hospital, Chattanooga, TN) (His lineage folks invented the "Foley Catheter")  Many, many thanks, huh???
Still sore on left side, needing a pillow seat BUT had 13 biopsies during surg due to weird growth of prostate gland--attaching itself to pubic or pelvic bone. 
Thanks be to God, however, psa is zero at 6 weeks.
Still some leakage, but like some of you, lying down or sitting takes the pressure off.
Still no erection, but signs of life are there.  May need a little viagara to jump start!
Someone suggested my left side is sore because that is where I keep my wallet.
It is a great point since the robot alone was $24,000 for 5.8 hrs.  Wouldn't we like to make that kind of money??
Blessings to each of you!!
Larry
 

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 797
   Posted 5/4/2009 11:18 PM (GMT -6)   
Larryc,
Haven't felt like asking my doc for depression meds--those can knock out your libido like HT.
But talking to the folks here helps a lot. Even my wife thinks so. So, talk some more if you feel like it.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09 still undetectable!


spisam
Regular Member


Date Joined Jan 2009
Total Posts : 47
   Posted 5/5/2009 7:48 AM (GMT -6)   
I would get depressed when the leaking would not stop. But Purgatory and others on this Board gave me hope and said to be patient. It helped. Also, I do pilates three times a week. My trainer started a recovery program for me after surgery, slowly building up. My instructor finished the sessions with keegel type excecises using a rubber ball, compression ring and springs for various moves in the lower area. I felt it helped more than the keegels.

My wife also had me go padless when at home. I wet lots of pants but she told me it was like potty training a baby. Cause and effect. Who knows, but something worked.

Sam

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 5/5/2009 10:31 AM (GMT -6)   
I continue to be frustrated, but I seem to be very much normal. Dry at night, pretty dry when sitting -- more movement results in more leakage. It also seems worse in the evening when I am tired.

about pain on the left side. I was told that the incision there is larger and that it is used for drains and other "housekeeping" and so takes the most beating. Four weeks out I am still a bit tender there.
Age at diagnosis 67, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3 + 4 = 7
CAT scan 1/09 negative, Bone scan 1/09 negative

Robotic surgery 03/03/09 Catheter Removed 03/08/09
Post surgical pathology report. Lymph nodes negative, Seminal vesicles negative
Surgical margins positive, Capsular penetration extensive Gleason 4 + 3 = 7


RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 5/5/2009 4:38 PM (GMT -6)   
Hi Guys:
 
Sorry to be somewhat of a wet blanket in this conversation, but I have no other choice.
 
I am 20 weeks post-op per da Vinci robotics, and I remain totally incontinent. I ooze 2 - 2-1/2 oz. of fluid every hour (24/7).  As to ED, that subject for me is drowning under this incontinence issue.
 
I continue to play tennis on most days. I kegel every day, religiously. I follow the weight training principles discussed by pa69, except that I also add the principle of muscle confusion by varying the exercises. Over the summer, I will add the pilates and core exercises discussed by spisam.
 
I have completed 10 of 12 biofeedback/ES sessions without any noticeable improvement. A cystoscopy produced pretty pictures --- no answers. Patience?  I have none.  That has drowned, too.  But, it doesn't make much difference because I am still required to deal with the facts as they exist, and not as I wish them to be.
 
I do applaud each of you for publishing your trials and tribulations, and especially your triumphs.  I add the current portion of my tale so that anyone who is researching this topic prior to making a choice as to remedies can get a more complete picture of the possible outcomes.  While I recognize that my situation could change overnight, I only can tell the tale as it exists today.
 
RHC Jr.
Last PSA prior to biopsy  -  11.9
Biopsy  -  8/7/2008
Cancer findings at left lateral and left medial apex of prostate
Gleason score  -  3+3 = 6
Staging  -  T1c
Prostate size/weight  -  128 cc./ 99 grams
Bone and CT scans  -  9/12/2008  -  both clear
Age at biopsy  -  65         Health  -  Excellent (other PCa)  (Lift weights, play golf & tennis (incl. singles))
da Vinci RP surgery  -  12/15/2008 at Naples Hosp.
Surgeon  -  Dr. Wm. Figlesthaler
Hosp. Stay  -  1 night
Catheter removed  -  12/23/2008
Post-Op blood tests  -  2/2/2009 & 3/27/2009                     PSA  -  undetectable
Scheduled 12 weeks biofeedback, coupled with electrical stimulation  (started 3/3/2009)
 


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 5/5/2009 4:58 PM (GMT -6)   
Hi RHC Jr,

I never thought of varying the kegal exercises. Maybe that will help the process along. Thanks for the tip.

Wishing all of you the best,
Bob
Age 69, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin

Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative

First post PSA < .1 Jan 16 2009
Second post PSA < .1 Apr 17 2009


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 5/5/2009 5:55 PM (GMT -6)   
Also for anyone else researching options, it is possible to be fully continent after surgery. I am one, and there are others in these forums. Opinions are divided on Kegels, but supposedly they help with ED too. I think it worth-while to continue with them even though short-term they seem to be having no effect.

Although lucky with continence, ED is quite another matter. Non-nerve-spared, I expected to have ED and I have -- no natural erections of any kind at 13 months post-surgery. But I live in hope....
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/5/2009 9:38 PM (GMT -6)   
Hey guys, I'm pullin for every one of you to dry up. The few of us leakers here know exactly how you are feeling now. Many of us dealt with the leaking and depression for months if not years before we tried other options. All I want to say is give your body time to heal. Try to keep going on with your life. Do the things you want. Carrying pads and extra cloths is no fun. But, it may be what you have to do for a while.
Good Luck,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
    Jan, 31st, 2009 - PSA 0.00  Next test in July, 2009  
 
 
 
 
 
 
 
 
   
 
   
     


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 5/6/2009 1:04 PM (GMT -6)   
I'm 8 months post op and still not dry.  Immediately after surgery and for several months I was going through 10 pads a day.  At the 3-month point the flow stopped substantially and since then it's continued to get better.  Currently, I could get by with 1 pad a day, and I'm very active.  There are times when I need up to 3 pads a day - depending upon what I'm drinking and other factors.  I've started sleeping at night without wearing a pad and that feels good.  Though, one night I woke up having wet the bed a little.  My Urologist tells me I'm proceeding in a "text book" fashion - and I'm satisfied with my progress.  I want to mention, also, that the pads I now use are much lighter than the ones I was using at 10 a day - so whatever flow I'm having is far less.  It's important to keep in mind which of the pad strengths we use - so we're comparing apples to apples, etc.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1 light pad per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

 


RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 5/6/2009 1:55 PM (GMT -6)   

Mavica:

In the process of going from 10 pads per day down to 1 pad per day, did you alter your lifestyle in any respect?  More specifically, did you intentionally reduce your intake of fluids?  The general notion expressed on this message board and in other places is that the Advance Male Sling (and other slings) is recommended for persons with mild to moderate incontinence.  Rightly or wrongly, I look at 10 pads per day as being heavy incontinence, while 1 pad per day would be mild to moderate incontinence.  Did you get to the preferable stage (mild to moderate) via a natural progression, or did you employ some regimen and make a special effort to take you to that place?

(BTW, in either case, I congratulate you on your reduction in pad usage.  The feeling of relief must be fantastic.  The feeling of hope for a solution must be even better.)

RHC Jr.


Last PSA prior to biopsy  -  11.9
Biopsy  -  8/7/2008
Cancer findings at left lateral and left medial apex of prostate
Gleason score  -  3+3 = 6
Staging  -  T1c
Prostate size/weight  -  128 cc./ 99 grams
Bone and CT scans  -  9/12/2008  -  both clear
Age at biopsy  -  65         Health  -  Excellent (other PCa)  (Lift weights, play golf & tennis (incl. singles))
da Vinci RP surgery  -  12/15/2008 at Naples Hosp.
Surgeon  -  Dr. Wm. Figlesthaler
Hosp. Stay  -  1 night
Catheter removed  -  12/23/2008
Post-Op blood tests  -  2/2/2009 & 3/27/2009                     PSA  -  undetectable
Scheduled 12 weeks biofeedback, coupled with electrical stimulation  (started 3/3/2009)
 


Jake T
Regular Member


Date Joined Mar 2009
Total Posts : 44
   Posted 5/7/2009 8:29 AM (GMT -6)   
Hey guys
I was so focused on finding a surgeon and removing the cancer i didn't pay any attention to the incontinence part of this whole thing. I had my catheter out last Thursday. I thought everyone was going through 2-3 pads a day, well i went back to work on Tuesday(5 days after the catheter was removed) and going through about 8 or 9 pads a day. Like everyone else night time is much better, i wake up and make a trip to the bathroom every hour, but during the day it is nothing but leakage. I am glad i read this post to find out there is hope and to have patience, thanks and be well, Jake                    Age 56,
DRE 12/22/08 PSA 1/09 3.4 PSA 2/09 3.8
Biopsy 3/9/09 3 out of 12 positive
one core 80% one 40% one 2%
Gleason 6 Cat Scan Neg.
di vinci robotic surgery at Mount Sinai NY 4/23/09
both nerves spared
margins and nodes clear
catheter out in 7 days 4/30/09

Drewboy
New Member


Date Joined May 2009
Total Posts : 17
   Posted 5/7/2009 8:42 AM (GMT -6)   
Dear Guys:
Been three(3) years since my surgery and had all of the issues discussed. Leaking, ED prolems, kinda depressed etc. I just deceided that I wasn't going to let it get me down. However, I did find that if I reduced any intake of caffenine, there was tremendous improvement. I don;t drink tea or coffe, but I did have maybe one(1) Coke a day and thus eliminated that as well. I also eleminated citrus drinks(orange juice, tomatoe juice etc). Alot of water. Bladder seems to like that. Probably going to do the Advance Sling to get out out of that one final pad. Can get erect now and if I take a very small dose of Levitra or Cealis works great(back in action again). Orgasims are even better now. I was also having trouble at first with the kegels and leaking and the doctor offered the electrical stimulus and it really sped up the recovery. All should do that to speed up recovery. Ask your doctor about that.
Drewboy

Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 5/7/2009 9:13 AM (GMT -6)   

 RHC, Jr.:

 

I've altered little or nothing in my lifestyle . . . as far as food and drink is concerned.  I drink lots of Diet soda (4-5 cans per day - which, about 75% is caffeine-free), I drink wine, water, etc.  I frequently walk a mile or two a day and I get to/from work by riding public busses and the subway.  I'm sitting in front of a computer most of the day, and up and down, walking around, up and down stairs, etc.  If I'd altered my fluid intake maybe that would or would have helped reduce leakage . . . I don't know.  Honestly, the light pads I'm using now are only a slight incontinence . . . but one I'd like to rid myself of in time.  After speaking with my Urologist about this, I'm led to believe my progress from "full flow" to moderate/light leakage is an expected progression and, prior to my surgery last September, the Urologist told me I'd probably leak heavily for the first three months - and that's what happened.  Being "patient" isn't easy for any one of us - whether it's talking about incontinence or ED, I know.  Hang-in there!

 

Mavica


Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

 


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 5/7/2009 9:40 AM (GMT -6)   
For what it's worth, I was dry at exactly 2 months after my open surgery. However, I did a drastic reduction in fluid intake except for water. As soon as the catheter was out, no coffee, tea, soda, soup, etc. Did have 1 beer a day and about 10 glasses of water.
 
I also walked 3 to 5 miles a day, doing kegels while I was walking. I may have had an advantage over others in that I had by-pass surgery in March of 2005 and my body had already gone through a major healing process. A cousin on my mother's side had the davinci and it took 18 months for him to stop using pads.
 
However, I really think that fluid intake makes a major difference on the incontinence factor.
Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 5/7/2009 2:15 PM (GMT -6)   
As a person 1 year out, I still have a small amount of leakage. One of the guys on this forum suggested "womens light pads" - well I tried it and it works. Never thought I would wear a kotex, but what the heck! The light pads are so small and thin they are almost like not wearing one. The heavier pads were hot and uncomfortable. For those who just have an ocassional drip - it's great.

RB
Age 62
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) 5/19/2008
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved

PSA <.04 7/12/2008

PSA <.01 10/30/2008

PSA <.01 4/03/2009

 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/7/2009 6:13 PM (GMT -6)   
Having had the Advance Male Sling done when I was leaking at a rate of 8-10 soaked "heavy" Depends Guards for Men I would recomend not to try the sling unless you are less than 3-5 pads a day. For a heavy "Leaker" I would recomend the AUS (Artificial Urinary Sphincter). I still use a light womens liner for daily use and a Depends Guard when playing golf. But, I never have to worry about wettin my pants anymore!
Hope things dry up for you but if not....just know there are things that can be done.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
    Jan, 31st, 2009 - PSA 0.00  Next test in July, 2009  
 
 
 
 
 
 
 
 
   
 
   
     


klondiker
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 5/7/2009 7:29 PM (GMT -6)   
At two months post open RP, I decided to skip the pads altogether. This decision was prompted by one poster who's wife felt that it would help to make him more aware of whatever it takes to stay dry. It did help, I had only one day that needed a pad; I think fatigue was the factor. I do not limit liquids except in the evening but am always aware of where the next toilet is and use it whenever available.
ED - just beginning to reawaken.
Age - 55
2004 PSA 2.7
2008 PSA 5.8
Sept 2008 PSA 5.66
Oct 2008 PSA 6.67
Biopsy on 11/25/2008 cancer found in 10% of one core , gleason 3+3=6
open RRP done on 1/14/2008. Pathology showed 20% of prostate cancerous, gleason 3+3=6, contained in capsule
First post op PSA 2/10/09 - 0.07
As of 2/11/09 down to one or two pads per day


Dandapani
Regular Member


Date Joined Jan 2009
Total Posts : 62
   Posted 5/10/2009 2:58 PM (GMT -6)   
Almost 5 months out from surgery and down to one pad per 24 hour period and it only has and additional 20-30 grams of weight (less than teaspoon) beyond the pad weight. I swear I can't find any yellow on the pad. It must just be sweat. :)

But, I'm still profoundly ED. No pills work.
Dan

PC diagnosis @ 53 YO
PSA: 3.4 - 3.7 for preceeding 10 years, new GP advised Urologist visit

09/18/08 12 plug biopsy
09/29/08 PC diagnosis, 1 of 12 plugs, 5% cancer, Gleason 3+3 (6), left side plug w/cancer
12/17/08 da Vinci robotic radical prostatectomy, lab confirmed biopsy, 5%, PIN rest of prostrate, negative margins
12/29/08 catheter removed
03/24/09 1st PSA blood draw, < 0.1% "undetectable"

current status: 1 pad/day, dry overnight; however, total ED


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 5/10/2009 3:48 PM (GMT -6)   
Dan, its most natural for a pad to absorb the normal sweat you generate and the extra from wearing the pad, probably all it is, sounds like you are dry to me.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 21, 2018 11:10 AM (GMT -6)
There are a total of 2,995,101 posts in 328,195 threads.
View Active Threads


Who's Online
This forum has 161316 registered members. Please welcome our newest member, Donna_S.
283 Guest(s), 9 Registered Member(s) are currently online.  Details
clocknut, mattamx, brrogers10, Bohemond, Bob in Elkridge, LauraBB, sunny days, borborygmi, Tall Allen