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jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/7/2009 8:07 AM (GMT -6)   
I am home after surgery on the 5th. I spent one night in the hospital (which was more than enough for me) and am home resting. Although it has been prescribed, I have not had reason to take narcotic painkillers. So far since I came home yesterday it has only been Extra Strength Tylenol. The only major discomfort has been some major stomach cramps as my gut begins working again. I had the ON-Q pain reliever system installed and since it is now empty I will be pulling the tiny tubes out soon.

The surgeon said he saved both right and left nerves and although he wouldn't guarantee anything, I am hopeful. He did say that my prostate was considerably larger than the 50cc he had originally estimated. I go back on the 12th to have the drain and catheter removed and review the biopsy of the removed prostate.

So far so good.+

p.s. My company announced a major layoff the day of my surgery but so far it doesn't appear I will be affected.
Age 62, Sex Male
PSA - 3-20-08 2.7; 4-17-08 3.1; 9-18-08 3.6; 1-22-09 3.8
DRE negative
Ultrasound/biopsy 2-12-09, 50cc
4 of 12 samples positive 3+3=6, Right mid-medial <5%, Right mid-lateral 10-20%, Right base medial 10%, Right base lateral 10% adenocarcinoma
RRP scheduled for 5-5-09

Remember, don't drop the bag!!!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 5/7/2009 8:15 AM (GMT -6)   
Hello again, Jack.
Welcome back to the other side, you made it through surgery. Sounds like you had a pretty uneventful surgical experience and you are doing well at home so far. Glad you don't need the pain meds, but if you do, please take them, unabated pain just prolongs healings after surgery.

You will feel better once the tube is out and they remove your new best friend the catheter. I will be hoping for a 100% clean pathology report for you, and so glad that you missed the layoff where you worked. I have been unemployed since late July, and after hundreds of resumes, still unemployed.

I hope you continue to recovery well, again, glad to have you back among the brethren.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 6 month on 5/9
 
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 5/7/2009 8:19 AM (GMT -6)   
Congratulations! on what seems to have been a successful surgical procedure, coming home and for still being employed!
 
about the pain:  On the way home from the hospital I filled the pain relieving medicine prescription . . . and never used it.  I, like you, did use the Tylenol but just a couple of times.  I was surprised I didn't encounter pain past the first day or two (mostly because my lower back hurt).+
 
about the catheter:  It was a non-issue for me and not a bother/annoyance . . . but I read comments from other people mostly to the contrary.  Sometimes, now, I wish I had the catheter connected!
 
Slow and easy wins the race. 
 
Welcome home!
 
 

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4823
   Posted 5/7/2009 8:47 AM (GMT -6)   
Great news and welcome to the other side...Sounds like you're doing well.

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 5/7/2009 9:14 AM (GMT -6)   
It is great that you are one step towards recovery.

I presume that your Dr told you to walk and it is important. Walking will promote healing and prevent some constipation problems. Walking also strengthens the pelvic floor and thus will promote return to continence. I set up a program of walking twice a day going farther each day.

The catheter is no fun, but you do get used to it. The worst part for me was that I had to sleep in the same position all night and woke up aching. After a couple of days I figured out how to adjust the night bag to give me a little mobility and that helped.
Age at diagnosis 67, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3 + 4 = 7
CAT scan 1/09 negative, Bone scan 1/09 negative

Robotic surgery 03/03/09 Catheter Removed 03/08/09
Post surgical pathology report. Lymph nodes negative, Seminal vesicles negative
Surgical margins positive, Capsular penetration extensive Gleason 4 + 3 = 7


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 5/7/2009 10:31 AM (GMT -6)   
Welcome to the "other side" of this disease...glad to hear your recovery is going very well for you. Lets us know what the path report says...here is hoping for you that it will also be uneventful.

Take care,
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month April 2009 .06


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 5/7/2009 11:11 AM (GMT -6)   
Jack,
Glad to hear from you and best wishes during the "Catheter Chapter" of this book. Once I felt that I could walk around, albeit slowly, I got out of my chair, hooked up the leg strap and went for a walk in the Spring rain. The birds were chirpping, the air smelled like Spring, flowers blooming and I was in fact re-born having had the surgery and related decisions behind me. Though I was tethered and still tender, it was the best feeling that I had since being diagnosed. I still feel that way.
Get out there and poke around the neighborhood.
TeddyG
Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 5/7/2009 1:41 PM (GMT -6)   
Welcome to the other side Jack. You just cleared one hurdle. I hope you get a good pathology report. Removing the catheter will be a relief for you. I had a lot of stomach cramps after my surgery and had to take some stool softener. Don't hesitate to do that. Good luck.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 5/7/2009 4:27 PM (GMT -6)   
Greetings, Jack.  Welcome to the other side.  Glad things have gone well so far.  I would also recommend that you make sure you are taking a stool softener.  It will help with the stomach cramps as you begin to eat again.  We'll also be waiting to hear a good pathology report in a few days.  Hang in there!  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 5/7/2009 6:41 PM (GMT -6)   
Hello Jack

I did not have any pain meds after the day of surgery. Never filled the script. Just too some tylenol for the 4 hour ride home. Hope you do as well.

Take care and start healing

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
Got a shot last week and it was great
A year an a half of zero's
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 5/7/2009 6:48 PM (GMT -6)   
Hey, Jack

Glad you're on this side of the healing. Walking is the best exercise you can do at this point, so keep it up. Heal well and you'll feel much differently once that daggone catheter is out. It's like the last day of school. Freedom!
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 Fully continent...ED progressing as expected.


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/9/2009 10:44 AM (GMT -6)   
A number of people told me how much easier it would be to empty my bladder after prostate removal, like a horse on a flat rock. What no one said was how much easier it would be to pinch off a steamer without that dang thing in the way down there. yeah
Age 62, Sex Male
PSA - 3-20-08 2.7; 4-17-08 3.1; 9-18-08 3.6; 1-22-09 3.8
DRE negative
Ultrasound/biopsy 2-12-09, 50cc
4 of 12 samples positive 3+3=6, Right mid-medial <5%, Right mid-lateral 10-20%, Right base medial 10%, Right base lateral 10% adenocarcinoma
RRP scheduled for 5-5-09

Remember, don't drop the bag!!!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 5/9/2009 7:57 PM (GMT -6)   
Congrats Jack:  Hope you healing continues in such a positive direction.  Welcome to the other side.

Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 ED- 5 mg Cialis daily, pump daily,


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 672
   Posted 5/10/2009 9:46 AM (GMT -6)   

Hi Jack,

Looks like you're doing well. Also, looks like we had surgery the same day.

Like you, the only real pain I had was from gas and bloating once my bowels started working again.

Good luck with your recovery.

 

Mike


Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: 1st week of May 09.
Physical State: 10 miles brisk walking per week (border collies), 20 minutes/day hard weights plus 5 minutes per day elliptical trainer (target before surgery is 20).
Mental State: Mostly good. Sometimes questionable. 
 


Jake T
Regular Member


Date Joined Mar 2009
Total Posts : 44
   Posted 5/10/2009 8:39 PM (GMT -6)   
Hey Jack, welcome to the healing side, good to hear everything went well. All the best , Jake



Age 56
DRE 12/22/08 PSA 1/09 3.4 PSA 2/09 3.8
Biopsy 3/9/09 3 out of 12 positive
one core 80% one 40% one 2%
Gleason 6 Cat Scan Neg.
di vinci robotic surgery at Mount Sinai NY 4/23/09
both nerves spared
margins and nodes clear
catheter out in 7 days 4/30/09

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/11/2009 9:48 AM (GMT -6)   
Congrats Jack!! May all your days from here on out be cancer free!! All the best to you in your recovery!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/11/2009 10:26 AM (GMT -6)   
Great work. Now the healing begins. You should remember to walk daily. It was most helpful to me during the healing. You have my thoughts and prayers for the coming days and for your job.

Peace,

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


55 and healthy in NJ
Regular Member


Date Joined Apr 2009
Total Posts : 58
   Posted 5/12/2009 8:59 AM (GMT -6)   

Best of luck.  I'll be joining you guys "on the other side" in just a few more days.  Looking forward to comparing post-surgery results.

Greg


Age 55
Physical exam (01/22/2009): blood pressure 130/85, good EKG; basically all-around healthy
PSA 4.9 (02/05/2009)
Urologist DRE observed slightly hardened left lobe (02/19/2009)
Chest X-ray normal (02/23/2009)
Biopsy (03/03/2009)
PCa present in all sextants, <5% to 50%
Prostate gland 37 grams
Gleason score 7 (in two sextants, scored 6 elsewhere)
Cystoscopy (05/08/2009), showed clear
MRI (05/08/2009), awaitng results
Robot-assisted laparoscopic radical prostatectomy scheduled for 05/18/2009
 
 
Surgery (daVinci robotic) consult with Michael Esposito, M.D., http://www.roboticurology.com/ (03/30/2009)
Radiation oncology (Varian IMRT/IGRT RapidArc) consult with Mark Macher, M.D., http://www.njneuro.org/fp/gammateam.asp (04/08/2009)
Other resources: Dr. Peter Scardino's Prostate Book (Peter Scardino (Sloan-Kettering), 2005); Urologic Robotic Surgery (Michael Esposito, Vincent Lanteri & Jeffrey Stock, 2007)


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/13/2009 8:42 AM (GMT -6)   
See profile update below yeah

ETA The surgeon gave me a sample of Levitra in the 20mg dosage as that was all he had. Could these be cut into halves or quarters?
Age 62, Sex Male
PSA - 3-20-08 2.7; 4-17-08 3.1; 9-18-08 3.6; 1-22-09 3.8
DRE negative
Ultrasound/biopsy 2-12-09, 50cc
4 of 12 samples positive 3+3=6, Right mid-medial <5%, Right mid-lateral 10-20%, Right base medial 10%, Right base lateral 10% adenocarcinoma

open RRP completed 5-5-09
Post surgical pathology report:
Gleason 3+3=6
Lobes involved - left and right
Extraprostatic extension - none
Surgical margins - very small area of margin involvement in right lobe
Seminal vesicles - Free of neoplasm
Vascular/Lymphatic invasion - none
J-P drain, staples and catheter removed on 5-13-09
T2cpN0MX


Remember, don't let the bastages get you down !!!

Post Edited (jacketch) : 5/13/2009 12:20:16 PM (GMT-6)

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