Watchful Waiting Website

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Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 5/11/2009 7:34 PM (GMT -7)   
A friend of mine sent me this website - the website founder is a friend of his. Anyway, it brings up some really good points. In my PCa support group, there are two guys doing watchful waiting. Under the right circumstances, this is a great way to approach the disease. For younger guys, it is probably not a good way to go, and the site itself says if you are gleason 7 or over, this site is not for you. Anyway, not endorsing it, just offering it for perusal. Another tool in the bag!

http://www.watchwait.com/index.php

Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.
One year PSA - undectable!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 5/11/2009 7:38 PM (GMT -7)   
Glad they excluded Gleason 7's, it would be sucide to watch a Gleason 7 blossom quickly into something ugly. I am a little beyond watchful waiting, lol. But glad to know there is a site for this.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 5/11/2009 7:44 PM (GMT -7)   
i have a buddy (62) in my group who had 1% cancer in his prostate. Gleason 6. He has terrible ED and probably should have done watchful waiting for years to come. My heart breaks for him.
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.
One year PSA - undectable!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/11/2009 9:04 PM (GMT -7)   
Great post Paul,
And a great website. It's great they took the time to outline who this option may be best for.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

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