Decided to take a breather from HW for awhile

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/14/2009 12:39 PM (GMT -6)   
This was a tough call for me to make, but I have decided to take a total break from HW for awhile.  No, I am not mad or upset, nothing like that.  Since I started dealing with the possibility of having PC back in 2007, to my dx. in 2008, the surgery, the complications, my recovery, etc, I feel totally overwhelmed on the subject.
 
I think my wife and a few close to me are right, you can know too much sometimes, and its counterproductive to your overall well being.  Now with my latest setback, I feel like all I have been through has failed, and I am now starting at square one again, but perhaps in a worse position, because it appears the surgery failed to contain, as it was hoped, and as my pathology report claimed.
 
I have always enjoyed my time here, never thought I would be here so much, or to care so much for people I will probably never, ever meet in real life.  But then I get really caught up, almost obsessed in my empathy and sympathy for others.  I don't know if that is a blessing or a curse sometimes.  I feel everyone's hurt around me, hyper sensitive to how they are feeling or might be feeling.  I have often gone to bed at night burdened with the hurts and fears of those posting here, it's that real to me.
 
I know there are some here they will be tickled pink that I won't be around for awhile, well, then  I am doing them a good service by not being here.  To everyone else, I tried to help, I really do care, and we are a brotherhood dealing with a very unfair and brutal enemy, Prostate Cancer.
 
Right now, everytime I am here, it just keeps bringing my own situation to the front lines over and over again, I find myself hardly ever being able to have a break from the situation at hand.  I don't want to be thinking about PC all the time, it's too hard, and it hurts too much sometimes.  I want to think about living and enjoying whatever life there is left to enjoy.  My short and recent vacation to Florida showed me something I had forgotten, there is a non-medical world out there, a place where people aren't thinking about cancer and dying and so forth, and it felt good for those 5 short days.  Hope that doesn't come across as being selfish.
 
I will be back to report after 5 1/2 weeks or so, after they do this next crucial PSA test.  If it as high or higher, I am certain I will be shuffled off to my former oncologist.  I hope I am dead wrong, but I predict the next one will be between 1.3 and 1.6. If my post surgery PSA is really what it is in 6 months from surgery, then it would indicate a distant reaccurance, and  I am no fool, I already know that radiation will just be an expensive and aggervating experience (for the 2nd time for me), and that it probably won't work.  So what's the point?
 
I will be checking back today for any last messages, my e-mail is available if anyone really needs to get a hold of me, and then starting tommorow, I will vaporize for awhile, not even lurking, to give my mind and heart a break as I come to terms with what might be lying next for me in this unchosen path in life.
 
For any new friends that come along during that time, I know in advance that there are many decent men/women here that will welcome you, care for you, and advise you the best they can.  That thought allows me to leave with a clear conscious.
 
I wish only the best for each and every person here.  Often we agree, sometimes we have to agree to disagree, but we are all on one team, with one common purpose, to defeat the beast known as Prostate Cancer.  May God bless you and keep you.
 
David in South Carolina
aka Purgatory


Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 

Post Edited (Purgatory) : 5/14/2009 11:44:47 AM (GMT-6)


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 5/14/2009 12:53 PM (GMT -6)   
From someone who has only been here a short time may I say that your insightful and caring words will be sorely missed.

The best to you in your journey to a more healthy life and God be with you and your family.
Age 62, Sex Male
PSA - 3-20-08 2.7; 4-17-08 3.1; 9-18-08 3.6; 1-22-09 3.8
DRE negative
Ultrasound/biopsy 2-12-09, 50cc
4 of 12 samples positive 3+3=6, Right mid-medial <5%, Right mid-lateral 10-20%, Right base medial 10%, Right base lateral 10% adenocarcinoma

open RRP completed 5-5-09
Post surgical pathology report:
Gleason 3+3=6
Lobes involved - left and right
Extraprostatic extension - none
Surgical margins - very small area of margin involvement in right lobe
Seminal vesicles - Free of neoplasm
Vascular/Lymphatic invasion - none
J-P drain, staples and catheter removed on 5-13-09
T2cpN0MX


Remember, don't let the bastages get you down !!!


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 5/14/2009 12:57 PM (GMT -6)   
Will be thinking of you. Best of luck!

Previous 5 biopsies over 4 years negative

Dx Nov 2007, age 46

PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke

6 rounds of chemo (Taxotere+Avastin)

1/8/2008

33.90

1/11/2008

29.50

1/31/2008

38.20

2/21/2008

32.00

3/13/2008

26.20

4/3/2008

26.60

4/24/2008

20.60

followed by surgery at Duke (Dr. Moul) on 6/15/2008

Gleason downgraded 4+3=7, T2b N0M0, one small positive margin

PSA undetectable for 8 months, then

2/6/2009

0.10

4/25/2009

0.17

 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 5/14/2009 12:57 PM (GMT -6)   

David,

You have been a valuable resourse to all of us. I hope you don't leave for good as we need your experience. I understand your need to just get away for a while. Good luck.

JohnT


64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

As of April 10 and 7 weeks on Casodex and Proscar PSA has gone from 30 to 0.62 and protate from 60mm to 32mm. Very minor side affects. Doc says all this indicates tumor is not aggessive

Awaiting schedule for seed impants

 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/14/2009 1:19 PM (GMT -6)   
Hi David,
Thank you so much for the love and support you have always shown. Your story is a very inspirational one to me and so many others. But I completely respect your decision to take care of number one right now. You owe it to yourself to do so. You are and will always be a friend at HealingWell. We are very interested in your progress, so please keep us updated.

It is a very difficult thing to get close with members of a cancer forum. I have the ability to be close and keep things in acceptancce to me. At one point last year, I was neither posting well nor helping people. I decided to take a break, too. Low and behold, I discovered that depression was setting in and besides losing my mother to cancer, my condition and therapy side effects were at issue as well. But once I saw what was affecting me, I addressed it. That was very important for me. I have always stayed close to what I believe in and it starts with my faith. But I also believe that with all that I experienced these last 2 and a half years that I may be of value to new members at this forum, and with what I learn from the members here I can bring it with me in the work I do as an advocate for prostate cancer patients everywhere.

I love you, David. I will keep you in my prayers, that you receive peace and love around you at all times.

Tony
 Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 5/14/2009 1:24 PM (GMT -6)   
David, you will be missed. Thanks for the work and time you have given us to make this Forum better. Until next time, here's wishing you health, wealth and happiness. I think we all need to step back once in a while and take a break. That's why I sometimes go for several days now without posting or participating. It can get a little intense daily dealing with this disease, in ourselves and others. But, I do love nailing a spammer....lol Have an easy road, my friend
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
21 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 5/14/2009 1:43 PM (GMT -6)   

You will be missed, David. You have been a friend and strong supporter to many here, myself included.

I know that sometimes a person just needs to step away for a bit.

I hope you come back and may you have peace of mind and heart.

 

Mike


Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Physical State: Home office in basement. Up and down 10-20 times a day. Walking lots of circles around inside of house and back patio. Bit sore but coping very well so far.
Mental State: Pre-surgery anxiety gone. Now waiting for path report, cath removal and staples out. 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 5/14/2009 2:01 PM (GMT -6)   

God Bless you David.

You've given more then your fair share here. Now turn your magic around and "Heal thy self."

 


Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
xx/xx/xx   - 3rd Quater skipped
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 5/14/2009 3:04 PM (GMT -6)   

Greetings, David.  We'll definitely miss you here, but understand perfectly why you need to get away.  At about the six month point, I did the very same thing and came back a couple of months later.  I don't know what it is but there just seems to come a point when you need to get away from the daily reminder. 

I don't know why exactly - maybe out similar backgrounds, history and even to a certain degree our treatment and stats - but I have felt a stronger connection with you than with some of our brothers and sisters here.  You have made a valuable contribution and we look forward to having you back at some point in the future.  Have a great break and we'll look forward to hearing from you again when the time is right. In the meantime, please know you will continue to be in our prayers.  David


Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4271
   Posted 5/14/2009 3:15 PM (GMT -6)   
David, how can you go...I didn't send you the commission checks yet???  LOL
 
Seriously, I completely understand.  You have been a faithful, comforting and extremely helpful member of this community and I know your words and compassion have helped many.
 
I'll miss you, but look forward to getting your results in a few weeks.  And...I have a feeling that you will be pleasantly surprised with some low numbers.  I'll say a prayer for you.
 
Best wishes,
 
Tudpock (aka Jim)
Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 5/1/09.

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 5/14/2009 3:24 PM (GMT -6)   
Hi David,
 
I can understand and I sympathize with your decision. Your example of courage and wisdom will be missed. Hopefully it will be just a 'holiday' and not a permanent  absence.
Wishing you all the best in the years yet to come.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA on the 26 Jan., 09, =0.05. PSA tests now every 6 month


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 150
   Posted 5/14/2009 3:31 PM (GMT -6)   
Hi David,
I agree with all the rest of the guys that we will really miss your compassion and input. I do understand that sometimes you really need a break. You take some time off and we all will be looking forward to your return. You will be in my thoughts and prayers.

David
Age 53
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....
FINISHED 01/14/09 YEA!
05/14/09
1st PSA after Salvage RT <0.04..... Another YEA!


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 5/14/2009 3:48 PM (GMT -6)   
David,

I've enjoyed and appreciated your company. Remember back when we had to have our catheters taken out and put back in about a day apart from each other? But you're right, you don't want to get overly involved in the forum, to the point where it's bad for you. It can be worse than watching soap operas or playing video games blush

I look forward to hearing from you in a few months.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09 still undetectable!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 5/14/2009 3:57 PM (GMT -6)   
David: I must chime is with "We will miss you. You have been a great help to me in my new battle with this. I can not express just how very much. I do understand that we must do what we must to keep our head together in these times. The board is for help and if hanging here is slowing you progress then you mus do what you must do. We all support you decision and would probably do the same thing.

Stay well my friend.

Jeff
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 ED- 5 mg Cialis daily, pump daily,


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3251
   Posted 5/14/2009 4:36 PM (GMT -6)   

Dear David,

   I feel what you are saying and I suppose that is the reason that I check in less than I used to. Pca. becomes the focal point in all things said and done. I must say however that you have been here for me in the good and bad times and you will surely be missed. I know that having a recurrance must be very depressing but it is just a battle my brother. I battle that you will fight and win. I would like you to consider an herbal supplement that I began taking on day one of my dx. My oncologist who has stage 3 Pca also takes it. He is also in total remission. A very good friend of mine was given less than 6 months his dx (malignant melonoma stage 4) was told to go home and get his affairs in order. He takes it and has been Cancer free for 7 years. I know that not everything works for everybody however it wont hurt you. It is called Pau' D Arco. It is treebark from Brazil. You can buy it at any health food store. I buy it online at herbspicetea.com. I purchase 2000 vegie caps for 40 bucks and they wave the shipping, as apposed to 1000 for 20 bucks and 20 bucks shipping. I take 10 tablets a day and have for the last three years. I believe that Gods amazing grace is the reason I have done so well but it may have been his grace that led me to this product. If you want to stay in touch please note my E-mail. I will make my phone available to you as well. Go with God my brother. Todd


dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 5/14/2009 4:51 PM (GMT -6)   

David,

I have only been a club member for a month or so (5 weeks since RP) but I have noticed the magnetic effect of this forum. I feel that I need to connect with those who have been through the processes that I have, some better, some worse. I can certainly see how it can become a focal point. Take that breather, walk in the rain and collect your energies for yourself and your family.

Thankyou for being a steady and solid voice on this subject in this place.

TeddyG


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/14/2009 5:01 PM (GMT -6)   
Wow, just got home, so many responses, so many good feelings. Almost makes me feel selfish. It's not just the PC or being here a lot, I want all to know that. I have been out of work since late last July, other than some minor consulting gigs, some tax work earlier in the year, I have not been able to find a job. It's murder in my area. I went on an interview Tuesday afternoon, they said they got 300 resumes just in the first 2 hours and had to pull their ad. The 2nd interview I went on this week, the guy got 500 responses in the first day, and said they were coming from almost all 50 states. At 56, its hard to stand out, and any of you older brother's know there really is age bias out there when looking for work. So its not just the PC, I have been making money one way or the other since I was 6 years old. The first 25 years of my 35 marriage, by choice, my wife didnt work outside the home. THen she went to nursing school and thank goodness, she is a great nurse and in big demand.

I know that some of what I am feeling is feeling sorry for myself. This weeks results took me by surprise this soon. And it still might be a fluke, or spike for some other reason. I apolgize if I sound like a wimp. A counseler once told me that I had unrealistic expectations on myself, and that I was ruthless to how I treat myself. SHe might have been right.

I will be back, that is a promise, and I always keep my word. I am not trying to rid myself of you wonderful brothers and your wives, I just need to try to get my head straight, and get back the feeling of wanting to live on no matter what. I can't help anyone here anymore, if I can't help myself first. I hope that makes sense.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 5/14/2009 5:42 PM (GMT -6)   
David,
As you can see you will be sorely missed by your brothers here as your input and opinions have helped many. But I do completely understand your need for a break especially at such a stressful time. Our dealing with and seeking to understand our disease can often become all consuming and we do often need a break to refocus our lives. Enjoy the break and take time for yourself. Undoutably we will all still be here when you return. Take care,
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/14/2009 6:17 PM (GMT -6)   
Billy, I trust with all my heart that everyone I know will still be here, and unfortunately, I know there will be some new friends too, that have to join our happy gang. So I want everyone else that knows better, to take real good care of them, we all know too well about the initial shock and awe, the depression and sometimes despair of a PC dx, and the fear, no matter how tough we pretend we are on the outside, we are but flesh, and fear lives in all of us.

I shall return, and hopefully, I will have a better vision of my own situation, and my own life, and then I will be wanting to get back into the flow of HW once again.

This sabatical hurts my heart, but my head tells me I need to do this for a short season.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 5/14/2009 7:17 PM (GMT -6)   
David,
I remember the first time I posted here. I knew very little about PC other than the fact that I had an aggressive kind. You were one of the first people to post an encouraging response. You were and still are a very supportive contributor on this Forum. I'll never forget what your help has meant to me. When I saw that you may have a relapse, I showed your post to my wife and we both said a prayer for you. I hope that the bounce is nothing but a lab error and wish you the best of luck. Hang in there David.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/14/2009 7:18 PM (GMT -6)   
David-
You have done so much for this site and have been such a friend to so many of us. I will miss you, but completely support you doing what you have to do to heal well. Your health is always first and foremost and I hope you find some much needed rest on your HW vacation :) You will always have friends here to welcome you back when and if you are ready!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 5/14/2009 7:18 PM (GMT -6)   
David-
You have done so much for this site and have been such a friend to so many of us. I will miss you, but completely support you doing what you have to do to heal well. Your health is always first and foremost and I hope you find some much needed rest on your HW vacation :) You will always have friends here to welcome you back when and if you are ready!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/14/2009 7:41 PM (GMT -6)   
EdC, thanks for the words and the prayer.

Doting Daughter, I will be back, I promise, as soon as I can get my act back together again.

Funny thing happened today, was home alone, a door to door salesman came to the house, ignoring my "no solicitation" sign, was peddling expensive gutter systems.

I answered the door, and said, "Listen, I will save you a lot of trouble. I have been out of work since July, and I am battling Prostate Cancer."

He put away his gutter brochures, and pulled out a little spiral bound notebook, and asked if he could add me to his prayer list at his church. I consented, and he wished me the best and left me in peace.

It's nice to see a kindness from a complete stranger.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 5/14/2009 8:14 PM (GMT -6)   
David,
You and I came to this place at about the same time and I can see why you think you need to take a break. There's a lot of information you need to get your head around and sometimes it's best to step back and take a breather and act, perhaps, like you don't know the first thing about it. Starting fresh on a new journey isn't easy...but, start you must.

See you down the road, partner.

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 Fully continent...ED progressing as expected.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/14/2009 8:24 PM (GMT -6)   
Thanks Bob
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 

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