New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/15/2009 9:07 AM (GMT -6)   
My doctor - Jason Engel - told me yesterday that he had recently sat on a panel for something (medical journal? not sure) with Dr. Lepour (a big prostate guy from Boston, I think) and a 3rd Dr. and they were supposed to speak TRUTHFULLY about the ED results they were seeing. Engel says getting the truth from a lot of prostate surgeons is tough - for a variety of reasons.
 
Anyway, Engel says he told the interviewer that he was seeing ED progress for up to 3 years, and Lepour said he was seeing ED progress for up to 5 years!! FIVE YEARS!
 
Just wanted to pass this along, because some of us have had to fight a long fight concerning this issue.
 
kcragman
Age: 53; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.
Feb 2009: PSA at 9 months was undetectable.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4112
   Posted 5/15/2009 5:48 PM (GMT -6)   
darn. How long can we wait for wood. This is totally wacked. Why can't these guys can't figure it out. ED really SUCKS!
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 ED- 5 mg Cialis daily, pump daily,


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 5/15/2009 6:02 PM (GMT -6)   
I had read of three years, and I'm not sure whether five years is good or bad news! I guess the important thing is that we should all continue with our therapy.

We don't see many (any?) guys in here who had RRP five or more years ago. If there are any of you lurking, how have you fared on the ED front?
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 15, 2018 3:40 AM (GMT -6)
There are a total of 2,992,824 posts in 328,010 threads.
View Active Threads


Who's Online
This forum has 161203 registered members. Please welcome our newest member, youmange.
194 Guest(s), 3 Registered Member(s) are currently online.  Details
youmange, hgfgdfssdd809, drdos