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Mikey13
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/21/2009 1:22 PM (GMT -7)   
Hi
Looks like a great place to get information. I'm post op 5 days. The catheter is difficult to deal with and hopefully out by Monday. I don't have much sensation urinating. Just seems to happen. Is that normal? Also, my dr. wants me not to walk, said to stay still and mellow out (which is difficult for an EverReady Bunny). Seems to contradict advice given to most others.

Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 5/21/2009 1:32 PM (GMT -7)   
Mikey13,

Welcome to this site. I am a new member also, but I have been monitoring the posts for a while. The wealth of information out there as well as the support from the veteran members is incredible.

Catheter is a pain, but you'll get through it. I did not have control or even sensation of urinating with catheter in and for a while after it came out. I walked around, but not much - catheter made it difficult.

Greg

Previous 5 biopsies over 4 years negative

Dx Nov 2007, age 46

PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke

6 rounds of chemo (Taxotere+Avastin)

1/8/2008

33.90

1/11/2008

29.50

1/31/2008

38.20

2/21/2008

32.00

3/13/2008

26.20

4/3/2008

26.60

4/24/2008

20.60

followed by surgery at Duke (Dr. Moul) on 6/15/2008

Gleason downgraded 4+3=7, T2b N0M0, one small positive margin

PSA undetectable for 8 months, then

2/6/2009

0.10

4/25/2009

0.17

 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 5/21/2009 1:47 PM (GMT -7)   
Yes, the cath is a great bother. A nurse told me that the appointment to have a cath out is the one appointment that nobody forgets.

You shouldn't have any feeling of urination because all that is now inside a rubber tube. Do note what others have said about keeping the tip of your p**nis lubricated.

I don't understand the no walking. Generally they try to get you walking in the hospital within a few hours of the operation. Either you misunderstood or there is something quite special about your case. Be a nuisance -- call your doctor's office and ask
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3 + 4 = 7
CAT scan 1/09 negative, Bone scan 1/09 negative

Robotic surgery 03/03/09 Catheter Removed 03/08/09
Post surgical pathology report. Lymph nodes negative, Seminal vesicles negative
Surgical margins positive, Capsular penetration extensive Gleason 4 + 3 = 7
At 6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 5/21/2009 2:01 PM (GMT -7)   
If your doctor is definite about the no walking, then follow his advice -- he may have tailored it for your circumstances.

But most of us here were and are encouraged to walk. I went for daily one hour walks (not my usual pace!) with the catheter still in place.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 5/21/2009 3:50 PM (GMT -7)   
Greetings, Mikey.  Welcome to the forum.  I found the catheter to be a royal pain although as my wife (who is a nurse) said - you needed it and it helped you.  I never knew when I was going - it just happened.  One of my favorite days in my life was getting the catheter out.  Make sure you do keep it lubed well where it enters your body!  My doctor told me to take short walks every couple of hours in the house and if the weather was nice I could go outside.  Only ventured out one time while I had the cath in but after it was gone started walking more.  Please keep us posted on how you are doing.  David
Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/21/2009 4:13 PM (GMT -7)   
Hi Mikey,
Welcome to HealingWell. When I arrived here I found the brotherhood (and sisterhood) to be amazing. There is a lot of caring and compassionate support going on here. I was able to walk with the catheter in. In doing so I learned it was best done with tight briefs to hold the catheter still. And loose pants like sweats. I did ok. But like our friend Piano says, do what your doctor suggests. If he'd like you to take it easy, then take it easy. In short time this whole part of this will be a memory. Stay with us, and mostly stay positive. A good attitude will go a long way.

Peace,

Tony
 Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 5/21/2009 4:15 PM (GMT -7)   
Mikey13, glad you found us. I agree with Geezer99. Call your doctor to verify your are clear with his / her instructions on walking. It seems that many of us were encouraged to walk but You may have a special circumstance. Call your doctor to be sure. yeah
Age 51, (50 at DX)
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00
Second post op PSA 2/10/09, 0.00


fogball
Regular Member


Date Joined Mar 2006
Total Posts : 31
   Posted 5/21/2009 6:04 PM (GMT -7)   
 
 
    Mikey 13,
  
    Something doesn't seem kosher here. Usually the physical activity starts
 soon after you reach your bed. (post- op)  Some form of compression stocking
 is in place (perhaps hooked up to a pneumatic device that sort of kneads or
 or massages the legs). You are instructed to wiggle your toes & twirl your ankles.
 When you are up to it they unhook you and get you on your feet do a few laps 
 around the nurses station or up & down a corridor, You return to bed, get hooked 
 again and after some time repeat the drill. You increase your trip distances & times
 with each outing and after all tests check good (urine samples, physical etc) plus
 a bowel movement or gass passage the attending MD will let you go.This proceedure
 or something like this is performed to help prevent blood clot formation. Blood clots
 are a potential threat following surgery and they usually originate in the deep veins 
 of the legs. The most common and simplest prevention method is leg activity in
 some form. Patients who are mobility challenged are prescribed blood thinners. Now
 this is important; clots can form days or weeks after surgery! I find it strange that
 walking is discouraged rather than incouraged as part of your rehab. But what the
 heck do I know? Mebe they Invented a new pill or proceedure since I went this route!
 Regards
 Fogball
 
 

55 and healthy in NJ
Regular Member


Date Joined Apr 2009
Total Posts : 56
   Posted 5/22/2009 1:25 AM (GMT -7)   

Mikey,

I agree with fogball.  Looks like you and I had our surgeries at the same time.  Currently I'm off my feet on the bed more than I would like, and walking less than I would like, but that's because my urine color has been deep pink more often than it's been clear, and my discharge instructions say if that happens to drink more and take it easy.  So I've been balancing the need to exercise with the need to rest and heal.  I also confirmed with my doctor's office that this is the right move, and I suspect you are having similar issues.  Everyone's case is different, and everyone heals differently.  The guy that runs the local PCa support group told me he had his operation on a Monday and was back to work on Wednesday.  But he also said he had zero abdominal pains or cramping, whereas it seems like I've had it since I woke up from the anesthesia.  I would say as long as you have discussed your individual situation with your doctor, then the best thing to do, as usual, is to follow your doctor's instructions.  Having said that, I also believe there is nothing wrong with asking lots and lots of questions, so that if nothing else you can adjust smartly as your situation changes.

Greg


Age 55
Physical exam (01/22/2009): blood pressure 130/85, good EKG; basically all-around healthy
PSA 4.9 (02/05/2009)
Urologist DRE observed slightly hardened left lobe (02/19/2009)
Chest X-ray normal (02/23/2009)
Biopsy (03/03/2009)
PCa present in all sextants, <5% to 50%
Prostate gland 37 grams
Gleason score 7 (in two sextants, scored 6 elsewhere)
Cystoscopy (05/08/2009), showed clear
MRI (05/08/2009), "No findings are present to suggest extracapsular tumor."
Robot-assisted (daVinci) laparoscopic radical prostatectomy (05/18/2009) by Michael Esposito, M.D. and Vincent Lanteri, M.D.  Both nerve bundles spared.  Awaiting final pathology report to verify that PCa was contained within the capsule.
 
 
Research:
Surgery (daVinci robotic) consult with Michael Esposito, M.D., http://www.roboticurology.com/ (03/30/2009)
Radiation oncology (Varian IMRT/IGRT RapidArc) consult with Mark Macher, M.D., http://www.njneuro.org/fp/gammateam.asp (04/08/2009)
Other resources: Dr. Peter Scardino's Prostate Book (Peter Scardino (Sloan-Kettering), 2005); Urologic Robotic Surgery (Michael Esposito, Vincent Lanteri & Jeffrey Stock, 2007)


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2455
   Posted 5/22/2009 7:15 AM (GMT -7)   
Hi Mikey and welcome. The catheter without a doubt was a pain. I started walking 2 days after my robotic surgery. I started with 1 mile and kept increasing it every day. After 1 week I was walking 3 miles with the catheter in. By te ebd of the walk the bag attached to my leg will be more than half full. Walikg will help you later in getting your continence back. Good luck.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1

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