Diet and Supplements

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Hiilawe
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/21/2009 7:42 PM (GMT -6)   
I'm recently diagnosed PC, PSA 3.2. Biopsy came back 8/12 positive, Gleason 3+4=7. I am strongly leaning towards having a daVinci to be done by Dr. Benjamin Chung at Stanford Hospital. Should I consider any special diet or supplementation regime to follow after surgery to help insure that I remain cancer free 40 years from now. I'm 57.

I have been very successful in keeping my Diverticulosis very well controlled by taking Probiotics and Digestive Enzymes for almost three years now. When my Diverticulosis was first diagnosed, the Doctor was pretty confident that intestinal surgery was in my future, but I have been virtually symptom free since using the Probiotics and Digestive enzymes. I wonder if similar results can be achieved to insure no reoccurrance of my PC after surgery.

Great site, this is my first day here.

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 5/21/2009 8:07 PM (GMT -6)   
There is a lot of information on the web about PC diet dos and don'ts. Some seems reasonable but some is highly speculative at best. One thing that most agree on is avoiding animal fats especially red meat and any dairy with fat. My personal bias is to rely on good diet and avoid supplements but that is just bias. Overall, a good diet is pretty much the same as a heart healthy one. In fact one friend warned me that I was actually raising the probability of dying of PC because I was reducing the probability of the more likely killer -- heart attack!
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3 + 4 = 7
CAT scan 1/09 negative, Bone scan 1/09 negative

Robotic surgery 03/03/09 Catheter Removed 03/08/09
Post surgical pathology report. Lymph nodes negative, Seminal vesicles negative
Surgical margins positive, Capsular penetration extensive Gleason 4 + 3 = 7
At 6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 5/21/2009 8:10 PM (GMT -6)   

Welcome Hiilawe,

I am reasonable new myself and you will see that are stats, age, psa, gleason etc, are very similar, the only difference is that I am about 5 months in front of you.  I too have been taking many supplements to try and help my situation.  So far things are going good and I will have my 5 monthly psa check-up next week, so fingers crossed it comes back ok.

As you can see by my signature, I had daVinci, on the day before X-mas day 2008.  I had the operation in Sydney, Australia, by  a  well respected surgeon here Dr. Philip Stricker. I was extremely pleased with the results and had no problems at all.  I have regained full control of the water works within a week, but Mr ED is still a problem, but I am working on it with Meds (Viagra etc) and starting to see some improvement, but they tell me it can take up to 12 mnths to 2 years to return.

As far as supplements/diet etc are concerned, I have become a Doctor Google, and have researched many different types of supplements and diets which claim to help with PC.  I can only suggest you do the same, as the choice is many and varied.

Don't forget to keep doing you pelvic floor muscle excersises, I found they really helped me with my recoverey.  I am looking forward to following your progress, please keep posting here, I have really found it a benefit, reading others posts, as you do learn so much.  As you will find out there are many here far more experienced than myself, whom are more than willing to help you with some really great advice.

Stay positive, non of us really wanted to be here, but we are......Cheers Nothard


Age 51yrs
DX 11/11/08
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4
Gleason 3+4=7
Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason 4+3=7 (60% Grade 4)
Stage T2c
Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week.
ED- taking Meds/ No results yet/still "NotHard"
PSA 28/1/09 0.03
PSA 24/2/09 0.03
"Everyday in Everyway I get better"


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 5/22/2009 7:47 AM (GMT -6)   
Hello Hiilawe,

Geezer's comment about the heart diet is good advice. Dr Ornish, the heart diet guru, also did a study with PCa and the diet had a beneficial impact on PCa as well. His diet is tough to follow though. Very low fat <12%.

There is also some advice on diet from Dr Myer's in his book on beating PCa with hormones and diet.

A third resource that seems popular is the China Study by Campbell. Essentially no meat, no dairy, no refined foods and lots of vegetables.

Good luck with your treatment.

Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
 
 
 


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 5/24/2009 4:50 AM (GMT -6)   

Geezer's comment about the heart diet is good advice. Dr Ornish, the heart diet guru, also did a study with PCa and the diet had a beneficial impact on PCa as well. His diet is tough to follow though. Very low fat <12%.

There is also some advice on diet from Dr Myer's in his book on beating PCa with hormones and diet. "

 

I agree, and I usually  suggest  Dr Myers book "Beating Prostate Cancer: Hormonal Therapy & Diet"  as essential reading for anyone who needs to consider hormone threapy.

Dr Myers has also published another  more detailed book on diet which is probably more applicable for someone interested in diet and supplements.


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 5/25/2009 5:47 PM (GMT -6)   
My Onc told me that there were large studies done on how the diet influencies the PCa. The only result they were able to derive is that people who eat diets rich in fish are better off. I was not able to find the study myself, though. Also, while he referred to this study he recomends what he calls a "heart healthy diet" - low fat/colesterol, aspirin regiment, reduced red meat/dairy, more fish and vegies - the usual stuff. I am trying to follow this (sometimes this is hard for a dedicated carnivour) and also added pomegrante juice and green tee supplements. Both were shown by several studies to reduce the rate of PCa growth.

Good luck with your surgery. I think your chances of remaining cancer free for the rest of your life are pretty good, given that it sounds like an early stage disease.

Previous 5 biopsies over 4 years negative

Dx Nov 2007, age 46

PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke

6 rounds of chemo (Taxotere+Avastin)

1/8/2008

33.90

1/11/2008

29.50

1/31/2008

38.20

2/21/2008

32.00

3/13/2008

26.20

4/3/2008

26.60

4/24/2008

20.60

followed by surgery at Duke (Dr. Moul) on 6/15/2008

Gleason downgraded 4+3=7, T2b N0M0, one small positive margin

PSA undetectable for 8 months, then

2/6/2009

0.10

4/25/2009

0.17

 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 5/25/2009 5:57 PM (GMT -6)   
H Hil, I noticed your post because of your diverticulosis....My husband has the Pca,,,I have the diverticulitis. I totally agree that the probiotics work very well for me, also chewing food more carefully and eating more slowiy. Since my original attack 1 year ago, I have not had a problem..knock on wood... My husband is fighting the beast....Pca...for seven years.. We eat mostly fish, chicken. meat once or twice a week,...He takes pomegranite juice twice a day, and also capsacin....We dont know if it works...We are living each day...Good luck to you and yours....Di
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Hip replacement total success..pain gone!!
PSA .7 2/10/09


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/25/2009 8:06 PM (GMT -6)   
Obviously good diets are good for every system, whether it be PCa or cardio, or IBS. I just wish someone could tell us why I had a Gleason 9 versus someone else with a 4 or a 5.

I have not been able to find any definitive study that cleary says red meat, or high fat, or lack of pomegranete juice. It all appears to be inuendo, and red meat and fat are always easy targets.

I am going to PO'd if I change my diet from a failrly reasonable diet, to what I will call an unreasonable diet, get 10 years out, come down with climbing PSA or metastatic Ca, and then read a study that says diet isn't really a key factor, but some other major factor we have overlooked. In our chemical laden society, it is hard to pick what chemical we are ingesting and eliminatiing through our urinary tract that could be a possible carcinogen that causes PCa.

Odds are good based on my initial numbers that I have 10 good years remaining, cancer free. I really want to enjoy life, not worry that the NY strip I am enjoying might be killing me !
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 5/26/2009 10:59 AM (GMT -6)   
goodlife,
I think "The China Study" has pretty clear scientific evidence that red meat and dairy have a significant affect on cancer. It was the largest study of diet and its affects that was ever conducted.
JT

64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

As of April 10 and 7 weeks on Casodex and Proscar PSA has gone from 30 to 0.62 and protate from 60mm to 32mm. Very minor side affects. Doc says all this indicates tumor is not aggessive

Awaiting schedule for seed impants

 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/26/2009 1:07 PM (GMT -6)   
JT

If I read the China Study book and nothing else, it is fairly convincing. If I look at some of the arguments by other scientists, I get confused. Is Campbell trying to sell a book, or sell being a Vegan ? Both possibilities.

Look at the following website for example

http://www.cholesterol-and-health.com/China-Study.html

To me, this puts some of the results of the China Study in question. Also, cancer is a big word, from a skin leison , to PCa, to liver, to etc. I guess I am still looking for the one that discusses PCa directly.

Thanks for the feedback. This is a big information game.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


Franklen
Regular Member


Date Joined May 2009
Total Posts : 54
   Posted 5/26/2009 2:00 PM (GMT -6)   
Goodlife,

On the other hand, the guy who wrote that article, Chris Masterjohn, can tell you all he knows from his education, which is a undergraduate degree in history.

He is closely connected with a organization that is completely opposed to Cambell and the China Study.

" Chris Masterjohn is the author of several articles appearing in "Wise Traditions in Food, Farming and the Healing Arts" - the quarterly journal published by the Weston A. Price Foundation. He's also lectured on vegetarianism and infant nutrition at the national Weston A. Price Foundation conferences in the Chantilly, Virginia and has lectured on cholesterol, vitamin K2, and vegetarianism in Maine on behalf of the Casco Bay Maine chapter of the Weston A. Price Foundation. "

So, while Campbell may not have all the answers and may have a "extra" vegetarian agenda, this guy Masterjohn has no formal scientific background and is totally biased in his own right.

The internet, where everyone is a expert,and can make assertions about anything.

Franklen

Post Edited (Franklen) : 5/26/2009 2:04:09 PM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/26/2009 3:12 PM (GMT -6)   
JT

I couldn't agree with you more ! All of it only adds to my pressing question. Does anyone realy know why I have Gleason 9 ? Did I eat too many hamburgers and shakes ? Or. in the bigger picture, does it really matter ?

I guess if I was 20 years old, the diet thing might be worth the self deprevqtion. At this point , I'm a little fatalistic. The horse may already be out of the barn.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


Gmike
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 5/26/2009 4:11 PM (GMT -6)   
I've posted this before but it seems relevant to this discussion.

Dr. Patrick Walsh is one the most respected uro's in the country. From his book "Guide To Surviving Prostate Cancer."

On diet he says "Animal fat is bad for you, especially the fat found in red meat and dairy products. Men who eat a lot of these foods are more likely to develop advanced prostate cancer and die from it. Why? There is an enzyme in prostate cancer cells that craves the fatty acids in dairy products and red meat. Consequently, when a man with prostate cancer consumes a diet high in these foods, his cancer cells get nine times more energy than normal cells. ......."

Here is an expert who lays out his opinion. We know that PCa takes a long time to develop. Unfortunately we can't go back and change our diet from 30 years ago. There is the possibility that we can influence the reoccurrence and the progression of the disease. I have tried to cut red meat and dairy from my diet and it is extremely hard to change life long habits.

Mike
PSA
2004: 2.0
2006: 4.0 (40% Free)
2007: 3.1
2008: 5.03
2009: 5.20 (21% Free)

Biopsy (age 58)
August 2008: 1 core of 12 was "atypical" Prostate weight 46 grams
May 2009: ??

Family history: Father and Grandfather both had PCa


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/26/2009 4:20 PM (GMT -6)   
Well said Mike !

As a guy just grappling with the newness of having a life threatening diagnosis, I am also trying to be careful not to jump on the first log that floats by. Sometimes the log turns out to be a turd.

All of these guys have many more degrees behind their names, and much more upstairs than I, but as time progresses, we find even men and women we call experts are mistaken.

My mom told me ********** could lead to blindness. I think she was wrong.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 5/26/2009 6:00 PM (GMT -6)   
As you can see everyone has varying opinions of supplements. Here is what I know, when I went to the Cancer Treatment Center of America I felt as though I was at the end of my rope. In addition to a few lifestyle changes the put me on a vitamin regime that I feel truly gave me more energy and helped me sleep better. Did it cure me? No way, but it does help cope with side effects. Just my thinking.

peace and grace
dale
My PSA at diagnosis was 16.3
age 47 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
Testosterone keeps rising, the current number is 156, up from 57 in May
T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%
 


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 5/26/2009 8:37 PM (GMT -6)   

Welcome Hiilawe,

I wish you all the best with your treatment.

Feb 10, 2009: Meeting with dietician.  She tells me I need to cut back on fats and increase vegetables and fruit intake.  Exercise a bit more, too.  OK . That can work for me.

March 3, 2009: Meeting with Urologist for biopsy report (see signature). There goes the diet.  Bring on the comfort food!  Try to keep exercising up until surgery.

Post surgery: Dinner brought to the house every night for 3 weeks.  Very nice and tasty, but not a heart healthy diet.

I guess it's time to get back to better eating.  Although, I am hoping that the beer tastes good again soon.

DS

 


PSA 01/07 was 1.2, PSA 01/08 was 1.9, PSA 01/09 was 2.5.
BIOPSY 02/24/09, adenocarcinoma DX at age 52
 Right:GS 3+3=6, tumor 3/6 cores, 10% involvement,PNI-Yes
 Left: GS 3+3=6, tumor 1/7 cores, <5% involvement,PNI-No
LARP 04/09/09,nerve sparing. Final pathology:
 GS 3+4=7, Margins uninvolved, 2 lymph nodes negative.
Catheter removed on 04/17. First no-pad day was 05/03.
ED treatment is 25 mg Viagra nightly.
First followup PSA blood draw 05/21, results on 05/28/09
 
 


Patrick1935
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/28/2009 12:00 PM (GMT -6)   
WHY SURGERY....HAVE YOU SERIOUSLY CONSIDERED RADIATION ? I DID IMRT AND CAME OUT IN GREAT SHAPE, NONE OF THE DIAPERS, LEAKING, ED THAT YOU MAY EXPERIENCE WITH THE KNIFE REGARDLESS OF HOW IT IS HANDLED.

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 5/28/2009 3:42 PM (GMT -6)   
When I changed my diet my PSA went from 40 to 30 after rising consistantly for 10 years. Also My heart risk numbers went from high risk to low risk in just 1 month. This is enough for me to continue it.
Just like some people get lung cancer who don't smoke, but we all know that smoking causes lung cancer. People who eat a healthly diet may still get prostate cancer but at a lower rate. I also believe that although diet may not cure PC it can slow it down.
JT

64 years old.

I had an initial PSA test in 1999 of 4.4. PSA increased every 6 months reaching 40 in 5-08. PSA free ranged from 16% to 10%. Over this time period I had a total of 13 biopsies and an endorectal MRIS all negative and have seen doctors at Long Beach, UCLA, UCSF and UCI. DX has always been BPH and continue to get biopsies every year.

In 10-08 I had a 25 core biopsy that showed 2 cores positive, gleason 6 at less than 5%. Surgery was recommended and I was in the process of interviewing surgeons when my wife's oncologist recommended I get a 2nd opinion from a prostate oncologist.

I saw Dr Sholtz, in Marina Del Rey, and he said that the path reports indicated no tumor, but indolant cancer clusters that didn't need any treatment. He was concerned that my PSA history indicated that I had a large amount of PC somewhere that had yet to be uncovered and put me through several more tests.

A color doppler targeted biopsy in 11-08 found a large tumor in the transition zone, gleason 6 and 7. Because of my high PSA Dr. suspected lymph node involvement, 30% chance, and sent me to Holland for a Combidex MRI, even though bone and CT scans were clear.

Combidex MRI showed clear lymph nodes and a 2,5 cm tumor in the anterior. I was his 1st patient to come up clear on the Combidex which has a 96% accuracy,

I've been on a no meat and dairy diet since 12-08 and PSA reduce to 30 while I awaited the Combidex MRI.

The location of the tumor in the anterior apex next to the urethea makes a good surgical margin very unlikely. Currently on Casodex and Proscar for 8 weeks to shrink my 60 mm prostate. Treatment will be seeds followed by 5 weeks of IMRT while continuing on Casodex and Proscar. So far no side affects from the Casodex.

As of April 10 and 7 weeks on Casodex and Proscar PSA has gone from 30 to 0.62 and protate from 60mm to 32mm. Very minor side affects. Doc says all this indicates tumor is not aggessive

Awaiting schedule for seed impants

 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/28/2009 7:19 PM (GMT -6)   
JT

This PSA is some curious stuff. I was scheduled for a biopsy because my PSA went to 4.47. The next month, my PSA dropped to 3.44. about 25 % drop. I did nothing.

Yours dropped frrom from 40 to 30 after you made a diet change. about 25 %.

Then add in the latest AMA statements about PSA, and how doctors are over-racting to it and scaring men unnecessarily, yet the large majority on this forum owe their detection to PSA testing.

Does my drop from a 4.47 to a 3.44 mean my cancer activity changed, or is it due to lab technique, or diet, or does it just fluctuate like that ? Pretty curious stuff !
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 5/29/2009 9:49 PM (GMT -6)   
My wife's cousin (who is an MD) had his DaVinchy in July last year. After he was diagnosed, he modified his diet drastically - no meat or dairy. A "brick" of toffu a day. Lots of salmon. Lots of vegetables. His PSA went down significantly. He attributed this to soy - it is known to lower the testosterone. He is "undetectable" since surgery and looks great. Lost 20 pounds.

Previous 5 biopsies over 4 years negative

PSA going from 3.8 to 28

Father died from PCa @ 78 - normal PSA and DRE

Dx Nov 2007, age 46

PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke

6 rounds of chemo (Taxotere+Avastin)

1/8/2008

33.90

1/11/2008

29.50

1/31/2008

38.20

2/21/2008

32.00

3/13/2008

26.20

4/3/2008

26.60

4/24/2008

20.60

followed by RRP at Duke (Dr. Moul) on 6/16/2008

Gleason downgraded 4+3=7, T2c N0MX, one small positive margin

PSA undetectable for 8 months, then

2/6/2009

0.10

4/26/2009

0.17

5/22/2009

0.20


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 5/30/2009 11:47 AM (GMT -6)   
Godlife,

PSA is made up of two factors, the psa your prostate generates and the psa the cancer generates. The prostate generated psa can flucutate due to a number of causes from sex and bike riding to infections. The lower your total psa the more influence your normal prostate has on the number, hence the larger % fluctuation..The PSA generated by the PC usually has a steady increase and tends to fluctuate only when given treatment. I think in my case the PSA generated by my prostate was at max 6, so everything else was PC.
You're right in that there is some fluctuation. I've had about 40 or 50 psa tests and have seen a 10% difference in labs when taken just a week apart.
The psa drop could be a result of something other than diet, but it dropped 4 months in a row and that has never happened in 10 years. MY heart related numbers Chol, HDL, LDL, Tri and Glucose all dropped from high to low in the same period so I have to attribute this to diet.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DX BPH and continue to get biopsies yearly. Positive Biopsy in 10-08, 2 cores of 25, G6 less than 5%. Scheduled Surgery as recommended.

2nd Opinion from Dr Sholtz, an Oncologist said DX wrong, path shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G 4+3 approx 2.5cm diameter.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and burining urination. Daily activities resumed day after implants.

Scheduled for 5 weeks IMRT in July

JohnT


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/30/2009 4:35 PM (GMT -6)   
JT

Thanks for the information. There really is so much stuff to try and absorb, and try to make sense of it with regards to our personal situation.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


Herrmm
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/30/2009 9:22 PM (GMT -6)   
confused  I'm new to this list and just beginning to explore. I'm 51, just had my first PSA test and it came back at 4.8. Next step is a urologist. No family history. Lots of cancer in the family but all pancreatic. I've been looking for explanations and finding little useful information to help the novice. One report I saw said that level represents about a 35 percent chance of cancer. Thanks to those posting here - this is the most information I've found. Please keep the information coming.
Tom
Illinois
 

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/30/2009 9:57 PM (GMT -6)   
Tom,,

AS you have probably read through the different posts, the PSA is merely a warning signal that tells the urlogist to look more cloely. Rate of change seems to be important, as does level, but a 4,8 by itself does not necessarily indicate cancer,

The biopsy which I woulod assume the urlogist will do will tell you what is actually happening. And then with prostate cancer being a relatively slow growing cancer will slloe you to look at options for treatment if indeed cancer is found. From wait and see, to radiation, to sugery.

I too have found this forum to be extremelyy vslluable, and even encouraging. We are not the only ones with prosate issues, and the men and women on this site truly care av=bout each other. There is little if anything thaqt cannot be discussed on this site.

Good luck in your journey, and keep in touch with us.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


Herrmm
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/30/2009 10:07 PM (GMT -6)   
Thank you, goodlife. I'm looking forward to what I can learn from the conversation here.

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Monday, April 23, 2018 3:52 AM (GMT -6)
There are a total of 2,954,480 posts in 324,123 threads.
View Active Threads


Who's Online
This forum has 162165 registered members. Please welcome our newest member, carole68.
189 Guest(s), 3 Registered Member(s) are currently online.  Details
goshawk, 1000Daisies, Patulsius