Question about night control

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Charlierobert
Regular Member


Date Joined May 2009
Total Posts : 24
   Posted 5/23/2009 8:48 AM (GMT -6)   
I have had three consective nights where my pad is dry in the morning, but I only can do that by getting up every hour or so.  this is very tiring?  Is there a possiblity that I will be able to sleep thru the night at some time?

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/23/2009 11:37 AM (GMT -6)   
Charlierobert:

I've run this before - but my advice is, sleep on your back. If you sleep on your back, your bladder will hold a certain amount of urine up to the level of your urethra. At that point you start to feel pressure. So your sleep depends on the size and shape of your bladder, and the amount of unconscious control you have built up.

I slept on my stomach for 30 years, so changing was an issue for me. But you gotta do it.

If you are already sleeping on your back, and you get up every hour a week after surgery - time to call the doctor.

kcragman
Age: 53; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.
Feb 2009: PSA at 9 months was undetectable.
May 2009: PSA at 12 months was undectable.


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 5/23/2009 12:34 PM (GMT -6)   

Hello,

To answer your question: yes.  I can't tell where you are in the journey but assuming that you are recently post-catheter and based on my experience, eventually you will make it through the night. I think that everytime my night sleep pattern got close to being awake, I felt a need to go to the bathroom, so I did. Lately, (6 weeks from surgery, 4 from catheter) I don't feel compelled to hop out of bed and bee-line to the bathroom, but sometimes I go anyhow out of an abundance of caution. I will note however, that my conciousness about where  the next bathroom is during the day has been raised! What a journey.

Best wishes,

TeddyG


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 5/23/2009 1:55 PM (GMT -6)   
Try not to drink any caffeinated products and stop drinking liquids for 2 hours before bedtime. Also sleep on your back. That helped me a lot.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 5/23/2009 6:49 PM (GMT -6)   
Greetings, CharlieRobert.  Both before and after surgery I had to make several trips a night.  My doc prescribed Detrol LA and it has helped some but I still average one trip a night.  Not bad I guess considering where I could be.  You might talk to your doc to see if some type of med might help you.  David
Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Dandapani
Regular Member


Date Joined Jan 2009
Total Posts : 62
   Posted 5/24/2009 6:19 PM (GMT -6)   
Nighttime continence comes first. Laying on your back is essential. But I still would have to get up a couple of times at night. I would stand up and immediately feel the weight of the urine on my "voluntary" sphincter. I would have to do the "little boy" pinch to keep from losing my entire bladder before I could get to the pot. Slowly, slowly, the urgency decreased and ability to hold it got better.

Watch your fluids also. Nothing after 7PM, for example. I curbed my liquids back quit a bit in the beginning, drinking only water, and as little as I could. Urine was still clearish so I wasn't dehydrated. Never mind the 8 glasses a day mantra in the beginning. Don't worry. Be happy.
Dan

PC diagnosis @ 53 YO
PSA: 3.4 - 3.7 for preceeding 10 years, new GP advised Urologist visit

09/18/08 12 plug biopsy
09/29/08 PC diagnosis, 1 of 12 plugs, 5% cancer, Gleason 3+3 (6), left side plug w/cancer
12/17/08 da Vinci robotic radical prostatectomy, lab confirmed biopsy, 5%, PIN rest of prostrate, negative margins
12/29/08 catheter removed
03/24/09 1st PSA blood draw, < 0.1% "undetectable"

current status: 1 pad/day, dry overnight; however, total ED


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/24/2009 7:53 PM (GMT -6)   
Dittos on the previous posts, altho, for me, nighttime has been the easisest. Post catheter, I slept on my back, and had to get up every 2 or 3 hours, because I would start leaking, epecially if I turned on my side.

After 2 weeks, I am only getting up once, and my pad is dry. It is really my first positive sign that those stupid kegals are working. If I kegal hard before I get up, I can make it to bathroom, altho it's still a good idea to hang on to Willie, just in case. I'm sleeping on my sides and belly also.

Daytime control is another story. Patience they say .......
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
 


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 5/27/2009 12:00 AM (GMT -6)   
I agree with all that has been said. I can only add that for me this was a gradual process. In the first several months, I had to go multiple times. Now, one year out I am probably back to where I was (as far as trips to the John). If I have to go which is probably about 50% of the time, it is now normally one trip during the night.

It simply takes time to retrain the bladder. Time will very likely take you back to where you were before.

RB
Age 62
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) 5/19/2008
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved

PSA <.04 7/12/2008

PSA <.01 10/30/2008

PSA <.01 4/03/2009

 

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