new-needing advice

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dw2468
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 6/1/2009 5:54 PM (GMT -7)   
RPP surgery nerve sparing(?!) May 2006 - NO erections firm enough for intercourse. Afraid to try injections-sounds painful!

TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 6/1/2009 6:09 PM (GMT -7)   
dw,
I am somewhat new to this forum but several guys have written about it extensively and you will be hearing soon I am sure. From what I have read, their success has overtaken any concerns about the process.
teddyG
Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4814
   Posted 6/2/2009 3:41 AM (GMT -7)   
I've injected myself twice so far...Its no big deal..But ditto to what Teddy says about the Success!

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
xx/xx/xx   - 3rd Quater skipped
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 6/2/2009 4:17 AM (GMT -7)   
Greetings, DW. I have only had to use the oral meds but there are many, many guys here who say the injections work well and once you get used to them are a non event. The same physical where I was diagnosed with Prostate Cancer I was also diagnosed with Diabetes. So I have a stick every day - just not in the same part of the body you will! Hang in there - it will work. David
Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


dw2468
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 6/2/2009 10:35 AM (GMT -7)   
Thanks for the replies! How do I post my age and the medical details so that they show up as yours did?

This is my first experience with such a forum, and I'm(obviously) a bit clunky with the format.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/2/2009 1:42 PM (GMT -7)   
At the top of the page you will see control panel. Click on that and you will see edit profile. Scroll down til you see signature. That is where you put all that stuff.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
Living the Good Life, cancer free
6 week PSA undetectable. 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 6/2/2009 5:51 PM (GMT -7)   
Dw, I think that everyone here has a lot of trepidation about injections in "there" at first. I am now approaching 100 injections. I find just a little discomfort as the needle goes in and that hasn't changed from day one, but the results make it worthwhile! Some here use an auto-injector which helps, while my wife is my injector -- and she's not a medical person.

If you haven't tried a VED (pump) yet, I suggest get one and start practising. You may find that works well enough for you to not need injections.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


dw2468
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 6/2/2009 7:16 PM (GMT -7)   
Thanks so much to all for the encouragement and input. I have used the pump as advised by dr. about 3-4 times weekly. After 3 years and no satisfactory erections, I wonder if the surgery was truly nerve sparing, whether daily wine consumption has prevented them, etc.

I have a visit with my UR in about 6 weeks, and don't know if I'll have the courage to start injections.

Part of the issue is that his PA is female, part is fear of pain, part is that it seems unnatural, tedious, etc.

It's nice to read of others' experiences-
Age 54
Diagnosed December 2005 during physical
PSA .8
Gleason 3 + 3 = 6
12 cores, 2 were positive
RPP(supposedly nerve sparing) April 28, 2006
Catheter out 10 days later
All subsequent PSA's 0


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/3/2009 7:55 AM (GMT -7)   
I've been using injections for 18 months now. There's learning curve and, yes it can have a little pain at first, until you master the technique. One thing for me was I had a bad habit of injecting too deeply, missing the cavity and getting into the tissue between the cavities, in the center of the penis. I solved that problem by developing my "plumping' routine, which consists of using the pump to give myself a little plumping or small erection then placing a penis ring on to hold the blood in. My condition is that the blood does not get restricted and when the pump is released, it flows out, taking the drug with it. Using the pump and ring and keeping the drug inside for better absorption results in a much better result, along with no pain whatsoever. The needle passes easily into the cavity (I can feel it 'drop' into it), and the injection is easy. There's lots of techniques and you can find yours. If you have been 3 years without an erection, then injections seem to be for you. I know it has done a world of good with my outlook on life and my ability to have erections again. We all have to face that initial fear, you're not alone there, but the results is worth every bit of it, count on it... smilewinkgrin
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
21 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months

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