New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Johnxmas
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/4/2009 10:59 AM (GMT -6)   
Hi to all,
   I am new to this site and I was wondering if anyone could give me info on nerve endings. My husband had radical prostate removel without nerve sparing, 2 years ago last March and he has been experiencing a lot of very strong tingling sexual feelings down there for about 4 months. He can feel more firmness and he is a lot warmer to the touch, but no erections. He uses the VED to stretch things out, but is unable to take viagara because it totaly knocks the stuffing out of him for a couple of days. And when he did use the viagra it did nothing for an erection. I have not been able to find any info on this subject and was hoping someone could fill in the blanks.
 
  about a year ago he used the VED and a sleeve and twice we were able to have intercource. We thought we had things almost back to normal. But he has not been able to repeat it again. Not sure what happened there. Any ideas?
 
  He looked into the injections and is unable to get an appointment until sometime in August.
Need help !!!!   We have a 45th wedding aniversary coming this July.
Any help is very much appreciated
Thanks
Greatful wife
 
 

lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 686
   Posted 6/4/2009 11:29 AM (GMT -6)   

Welcome, there are a few possible explanations for renewed nerve feeling.  It is a good sign, and though it probably doesn't signal a recovery it does show improvement.

Injections have been the answer for many of us here.  You might do a search (click at top of this page) of previous discussions and you will find many stories that you will find encouraging.  Caverject (alprostadil) usually works, but is often accompanied by discomfort.  The pharmacy prepared bi-mix works for me and will probably be my answer for the rest of my life. :-)     Good luck and try to move that August appointment up a bit.

http://www.healingwell.com/community/default.aspx?f=35&m=1017774



PSA up to 4.7 July 2006 , nodule noted during DRE
Biopsy 10/16/06 ,stageT2A
Very Aggressive Gleason 4+4=8  right side
DaVinci Surgery  January 2007
Post op confirms gleason 4+4=8 with no extension or invasion
no long term continence problems
Post surgery PSA continues to be "undetectable"
One side nerves spared
Bi-Mix for ED 
born in 1941

Post Edited (lifeguyd) : 6/4/2009 10:35:04 AM (GMT-6)


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 6/4/2009 1:08 PM (GMT -6)   
johnxmas,
I had non nerve sparing surgery 4 months ago. I didn't take any of the ED medications since they really don't help much in my case. I did start the VED and had little success in maintaining an erection for any reasonable length of time. I have started using trimix injection at .2 cc dosage and it has worked for me most of the time. It does take some stimulation. Your husband will have to experiment with what dosage works for him. As far as the nerve endings, someone on this forum mentioned that nerves regenerate at the rate of 1/2 inch per month, what exactly that leads to I don't know.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


engineer55
Regular Member


Date Joined May 2009
Total Posts : 121
   Posted 6/4/2009 5:39 PM (GMT 0)   
My surgeon said the nerves grow back and it takes one year plus or minus a few months.  Try taking a smaller dose of viagra, cut the pill into quarters. 

CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 6/5/2009 6:46 AM (GMT -6)   
Greetings, Greatful wife.  I don't have much experience with the injections but there have been several guys and their wives here who relayed very positive experiences with trimix and bimix.  Also, if you are trying the oral meds, have you considered Levitra or Cialis?  I understand they work somewhat differently than Viagra and the side effects can be less onerous.  I have never tried Viagra but have both Cialis and Levitra with minimal side effects. 
 
You give me great hope - knowing that after 45 years the desire is still there.  My wife and I will soon hit 36 and are looking forward to the next 9 and many more beyond that!  Thanks for the encouragement.  David
Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 2:14 PM (GMT -6)
There are a total of 3,005,169 posts in 329,201 threads.
View Active Threads


Who's Online
This forum has 161762 registered members. Please welcome our newest member, TruthSeekerSam.
267 Guest(s), 15 Registered Member(s) are currently online.  Details
SoMuchFun, TiitFromEstonia, PeterDisAbelard., running wild, sebreg, astroman, Lymie24, Alxander, Melg, John-Can, InTheShop, ltc1225, tiredofallthispoop, elvin, Ed C. (Old67)