erection pain still after trying almost everything

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kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 6/6/2009 5:55 PM (GMT -6)   
 
I am 8 months after surgery and I have been using different ways of trying to achieve a full erection without getting uncomfortable pain. I have tried 20 mg cialis, 20 mg levitra L`argentine. 3mg and 6 mg trimix needle and 3 and 6 mg bimix needle. The pain runs from the top of the penus to the middle. It`s even hard to wear loose fitting pj`s after I start to get a partial erection. It feels like there`s a bend or restriction there but its not visible. I went back to the Dr. and have had a sisto to see if the problem was scar tissue, but that doesn`t seem to be the issue. Has anyone had this similar problem and found some form of solution?
 
Thanks Fred
Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
1st PSA nov 08 undectable
kept left side bundle of nerves but lost some of the right side bundle
also had laser surgery in July 2008 to save eye sight from glaucoma hospitalized twice for kidney stones  in summer of 2008


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 6/6/2009 8:53 PM (GMT -6)   
How about a VED? Have you tried that approach? I didn't keep using one because I couldn't stay hard even with two constriction rings. But I'm curious if you have pain with a pump.

I was also using Viagra and Cialis 6 years prior to my open surgery and never had pain. It was due to the hypertension meds. Cialis would give me these unreal long and hard erections sometimes but that was it.
Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 6/7/2009 2:15 PM (GMT -6)   
This seems to be pretty unusual. If you have indeed tried everything you have said, and the only thing your uro has done is give you a sisto to see if you have scar tissue, it is way beyond the time that you need to get a new uro. You do NOT owe your Dr anything. You should expect any uro to take your situation very seriously and have a well thought out plan of attack.

Why do you continue to go back to him? Find another DR who will take your problem seriously and help find a solution.
You have suffered long enough. you deserve better. Be kind to yourself and get some help and relief now.
just my two cents
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.
One year PSA - undectable!

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