Recommendation for AMS surgeon

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drmartin
Regular Member


Date Joined May 2007
Total Posts : 42
   Posted 6/6/2009 9:10 PM (GMT -6)   
I am 2 yrs as of April past my RP surgery. I am still about 1 1/2 to 2 pads per day incontinent. I have decided to try the Ad Vance Male Sling Procedure. My problem is that my urologist only performs the In Vance procedure. mad

I am located in Southern California. I have been looking everywhere for a Doctor to perform this procedure. Dr. Eugene Rhee in San Diego, one of the utmost authorities in this field, is covered by Kaiser only. That is who my Dr. recommended, but he didn't realize he was Kaiser only. I tried to contact him with no luck. If you are not a member of Kaiser there is no contact. The Doctors that AMS recommended have not returned my calls after more than 3 attempts.

So My question is, is there anyone here from So. Cal that knows of a Dr. that performs this procedure?

All help well be greatly appreciated.

As a side note.: I finally quit drinking coffee and anything with caffeine and it has reduced my leakage by half. I did this so that I would have a leakage rate that would qualify me for this procedure. for those with incontinence issues, reducing your caffeine and Alcohol intake does help greatly.
Age: 54

11/10/2006

PSA 10.2 - Discovered during Annual Physical with Family Doctor

Referred to Urologist Surgeon specialist

Free and total PSA - 10.9

Biopsy ( sent to John Hopkins pathology) - 2 of 16 positive on left and right apex of prostate

Left - GS 3+3=6, Right - GS 3+3=6

Davinci assisted laparoscopy radical prostatectomy on Apr. 17, 2007 -Complications due to extreme unusual size of prostate. Normal Prostate = 20 to 31 grams. Mine = 120 grams (not enlarged, but genetic growth large)

Nerves on right side spared.

All Lab's clear. No Cancer outside prostate

Cystogram Apr. 24 2007- Slight leakage at anastomosi negligible.

Catheter in for 1 week Removed Apr. 24, 2007

May 30th, First post-op PSA results...Non-Detectable!
Aug 18th, Second post-op PSA results...Non-Detectable!
Nov 8th, Third post-op PSA results...Non-Detectable!
April 17th, One year anniversary .010 Detected changed back to 3 month monitoring 


drmartin
Regular Member


Date Joined May 2007
Total Posts : 42
   Posted 6/7/2009 1:30 PM (GMT -6)   
Thank you Ohio. I will give them a try.

DRM

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 6/7/2009 8:35 PM (GMT -6)   

  Hey DrMartin,  A bit confused about your post???? Is your leaking rate still 2 pads a day on the caffene restriction?  How much do you leak if you do drink a couple of cups of coffee and a couple of sodas or alcohol drinks a day?  My concern is that by restricting you caffene intake you may be masking your actual situation.  You may have the sling done then start back on the caffene and still have more leaking than you would think?  Just my opinion?  Be sure to inform any doctors you talk to about this.  Good luck with your search finding a Sling Doctor.

KW

 


    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
    Jan, 31st, 2009 - PSA 0.00  Next test in July, 2009  
  
 
 
      


drmartin
Regular Member


Date Joined May 2007
Total Posts : 42
   Posted 6/7/2009 9:07 PM (GMT -6)   
Thanks KW,

When I do drink Caffeine its usually one cup and a half of coffee in the morning and one diet Coke in the evening. Then my leakage is 3 to 4 pads a day. The coffee effects me more than the Coke does. The leakage is mainly during activities. I'm mostly dry at night and while sitting. I think even at that leakage rate I still qualify for the surgery. Any help that the procedure will give will be welcomed.

Thanks for your concern.

DRM
Age: 54

11/10/2006

PSA 10.2 - Discovered during Annual Physical with Family Doctor

Referred to Urologist Surgeon specialist

Free and total PSA - 10.9

Biopsy ( sent to John Hopkins pathology) - 2 of 16 positive on left and right apex of prostate

Left - GS 3+3=6, Right - GS 3+3=6

Davinci assisted laparoscopy radical prostatectomy on Apr. 17, 2007 -Complications due to extreme unusual size of prostate. Normal Prostate = 20 to 31 grams. Mine = 120 grams (not enlarged, but genetic growth large)

Nerves on right side spared.

All Lab's clear. No Cancer outside prostate

Cystogram Apr. 24 2007- Slight leakage at anastomosi negligible.

Catheter in for 1 week Removed Apr. 24, 2007

May 30th, First post-op PSA results...Non-Detectable!
Aug 18th, Second post-op PSA results...Non-Detectable!
Nov 8th, Third post-op PSA results...Non-Detectable!
April 17th, One year anniversary .010 Detected changed back to 3 month monitoring 


TSFFZ
Regular Member


Date Joined Oct 2008
Total Posts : 25
   Posted 6/7/2009 10:35 PM (GMT -6)   
I would also be interested in finding a recommended AMS surgeon in Northern California.

TSFFZ

TSFFZ
Regular Member


Date Joined Oct 2008
Total Posts : 25
   Posted 6/10/2009 7:47 AM (GMT -6)   
Bump....does anybody have a recommendation?
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