I'm about 10 weeks out from open prostatectomy. Since I had a fairly high core content in my biospy, the surgeon advised open instead of robotic. He said there was importance with "feeling" the prostate and having a better overall look and see with open. After the surgery, he told my wife both nerve bundles were spared. During the 2 weeks I had the catheter in I got a few minis. I thought this is great! I still do get them and often when I least expect them. But, of course, by the time I get home...nothing. I've tried Levitra several times. It helps and I'm continuing with that....only 50% at best and a headache. I ordered a VED and I'm waiting for delivery.
Also, when I do get these mini erections, I notice some pain and discomfort along both sides of my penis...the areas that I assume used to fill with blood to get an erection. Maybe this is all good. I don't know. I will be seeing my surgeon for 3 month PSA and will discuss this with him in a couple weeks.
On the IC side, I've been very lucky. Within 2 days of catheter removal, I was in full control. Except for the sudden urgency, which is subsiding very well, I am pretty much back to normal...or at least pre-surgery. I had some adhesive trauma with the improperly installed man-pads which I only used for a week...more for insecurity than anything else. I'm lifting heavy stuff at home, doing heavy shovel work on a new deck and no leaks...yay...ever.
Yet, I am in a huge depression right now. Maybe this is just a post-surgery blip that I've heard from other members. I know I'm only about 3 months post-surgery, but the ED thing and an unexpected drop in energy and attitude bothers me. I believe I made the right decision on surgery. I hope that cancer is gone for good. Any orgasms I've had are as distant and minimal as the erection that goes with it. That, I hope, will improve for all of us.
Lower left groin hernia:
mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA.