Looking for Uro referral in San Jose/Bay Area

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CaPCa
Regular Member


Date Joined Aug 2007
Total Posts : 118
   Posted 6/8/2009 3:19 PM (GMT -6)   
I am particularly looking for a doc that can use the "standard" PSA sensitivity threshold of 0.1, instead of the ultrasensitive variety. Thanks in advance.
 
CaPCa
Age:45 (44 when diagnosed)
Father diagnosed and cured at age 52.
08/21/07: Diagnosed with T1c cancer
1 of 12 biopsy cores positive; 10% tissue
Gleason score: 3+3=6
PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)
10/19/07: da Vinci prostatectomy by Dr. Vipul Patel
              Difficult surgery due to prostate inflammation.
              Both nerve bundles spared.
              Spongy erections began within 24hrs of surgery!
10/24/07: Catheter out; down to 1 Serenity pad/day next day.
              Final pathology: neg margins, no capsular penetration,
              Gleason 3+3=6, 5% tumor involvement, multi-focal.
11/04/07  First usable erection with Cialis
11/22/07  Thanksgiving - Bye-bye, pads
01/17/08  First post-surgery PSA result: < 0.008 ng/ml
03/17/08  Erection quality mostly back to pre-surgery levels with Cialis;
              have not tried without meds yet.
04/23/08  Second post-surgery PSA result: < 0.008 ng/ml
07/30/08  Third PSA: 0.01 ng/ml
11/04/08  One year PSA: 0.01
              Still taking 10mg Cialis every other day - enjoying the results
              too much to stop yet.
02/07/09  Taking 5mg Cialis every other day - having too much fun to try
              to stop for now.
03/23/09  PSA: 0.02
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/8/2009 5:28 PM (GMT -6)   
It's is usually the doc that orders the test, and the lab that decides which one they use on a daily basis. They may only use one routinely, and your doc would have to special request something other than that. So, I'd say you would be also needing to ask questions about what the lab uses when discussing with the doc.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
21 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/8/2009 11:56 PM (GMT -6)   
Ca,
You can just tell your doctor to just check the tenths. He can observe the minutes stuff if he wishes, but under 0.1 is undetectable and that's all you wish to know.

Tony
 Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


CaPCa
Regular Member


Date Joined Aug 2007
Total Posts : 118
   Posted 6/9/2009 12:10 AM (GMT -6)   

I wish it were that simple. One one of the last visits, I called the doc's office and was told by the nurse "Sure, we can do the the standard test. I will fill the form out for you to request the right one." Sure enough, I got the ultrasensitive test again.  mad To make matters worse, my current uro MISQUOTED the result to me as "0.1" instead of the actual "0.01" that it was. mad   mad  I might have crap my pants if it not for the fact that I had already seen the lab result on the office door chart holder.

The bottom line is that I just don't trust my current doc or office to go along with my wishes. I have also not been in agreement with some of the things my doc has said in the past.

CaPCa


Age:45 (44 when diagnosed)
Father diagnosed and cured at age 52.
08/21/07: Diagnosed with T1c cancer
1 of 12 biopsy cores positive; 10% tissue
Gleason score: 3+3=6
PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)
10/19/07: da Vinci prostatectomy by Dr. Vipul Patel
              Difficult surgery due to prostate inflammation.
              Both nerve bundles spared.
              Spongy erections began within 24hrs of surgery!
10/24/07: Catheter out; down to 1 Serenity pad/day next day.
              Final pathology: neg margins, no capsular penetration,
              Gleason 3+3=6, 5% tumor involvement, multi-focal.
11/04/07  First usable erection with Cialis
11/22/07  Thanksgiving - Bye-bye, pads
01/17/08  First post-surgery PSA result: < 0.008 ng/ml
03/17/08  Erection quality mostly back to pre-surgery levels with Cialis;
              have not tried without meds yet.
04/23/08  Second post-surgery PSA result: < 0.008 ng/ml
07/30/08  Third PSA: 0.01 ng/ml
11/04/08  One year PSA: 0.01
              Still taking 10mg Cialis every other day - enjoying the results
              too much to stop yet.
02/07/09  Taking 5mg Cialis every other day - having too much fun to try
              to stop for now.
03/23/09  PSA: 0.02
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, July 16, 2018 11:44 AM (GMT -6)
There are a total of 2,982,010 posts in 326,954 threads.
View Active Threads


Who's Online
This forum has 161803 registered members. Please welcome our newest member, pbjbtb.
442 Guest(s), 17 Registered Member(s) are currently online.  Details
notsosicklygirl, Psilociraptor, Tagier, Johnny Boy, sandyfeet, jl6, just_dUCky, Scaredy Cat, J Baxter, Lijomi716, BillyBob@388, UC_from_39, ks1905, dbwilco, InTheShop, JakeB, iPoop