pain in my perineum

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paul128
New Member


Date Joined May 2009
Total Posts : 4
   Posted 6/10/2009 8:44 PM (GMT -7)   
I have asked before but noone seems to have experienced pain in the peineum area.This started a week after the catheter come out.I really have a hard time walking sitting and I feel it constantly.its getting me down.Had another cat scan and they didnt notice anything out of the normal.So they put me on muscle relaxers.This seemed to help for a couple of days but it seems to be coming back.Its been 7 weeks since Davinci surgery. I need to hear if anyone has experienced this  
 
 
 
 
 
age 54
psa 7.8
gleason 6
byopsy 8 cores of 10 cancerous
stage t2c
surgery davinci  april 16
complications whereas stitch let go
in very much pain  hospital for 10 days
first pathology and psa
psa UNDETECTABLE
gleason upgraded to 7
5% cancer fully contained
nerves spared
somewhat free of inconsinence
not sexually active yet as it doesnt stay or even go hard
i have had a soft orgasom
 
 
 
 
 
paul


Kark60
Regular Member


Date Joined Jun 2008
Total Posts : 91
   Posted 6/10/2009 10:19 PM (GMT -7)   
I also had a great deal of perineum pain for several weeks after surgery. It did not start right away, but a couple weeks after. It was very uncomfortable to sit and I remember using a "donut" to sit-on at the dinner table.

I can tell you it eventually went away and I believe it was part of the healing process. I even asked the surgeon's nurse about it and she said that the pain was very common.
Husband and father of two (current ages 5 and 7).
Age when diagnosed: 47 (currently 48)
Pre-surgery PSA: 13.7
Pre-surgery Gleason: 4+3=7
CT Scan, Bone Scan, PET Scan: Clear
Robotic Surgery on May 28, 2008, at Barnes Hospital in St. Louis.
Right nerve bundle spared; left bundle removed.
POST-SURGERY PATH REPORT:
Gleason: 4+3=7
Involved 10% of prostate; all quadrants involved
Extraprostatic extension at left base and apex
Extensive perineurual invasion present.
Bladder neck, lymphvasular space, seminal vesicles, 17 examined lymph nodes, and all surgical margins FREE of tumor.
T3a
Four-week post-surgical PSA = 0.1
Seven-week post-surgical PSA = .01
October 2008 PSA = 0.0
January 2009 PSA = 0.0
April 2009 PSA - 0.0
Next PSA scheduled for July 2009.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 672
   Posted 6/11/2009 4:11 AM (GMT -7)   

Hi Paul,

I am almost 6 weeks post-surgery. I am recovering very well from the surgery part except for a few instances of bad perineum pain. There is usually some background rectal discomfort that sometimes develops into this bad pain. Sitting (or standing) too long in one position seems to bring this on even though I have a donut pillow. I am told this is not uncommon. I used to get this bad prior to surgery...that was due to prostatitis.

Over the last several months there have been a few threads here about this and there were a number of guys who experienced the same.

My surgeon told me to contact him if it continues.

Mike


Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 6/11/2009 5:00 AM (GMT -7)   
Greetins, Paul.  I know there have been some threads on this in the past.  I am fortunate not to have had this particular event in my recovery.   David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/11/2009 7:55 AM (GMT -7)   
My experince has been similar to Kark and mikey. Sitting for too long (usually when on the computer) causes ever increasing pain until I get up and walk. Tylenol usually works to alleviate the discomfort if I am unable to walk.
Age 62, Sex Male
PSA - 3-20-08 2.7; 4-17-08 3.1; 9-18-08 3.6; 1-22-09 3.8
DRE negative
Ultrasound/biopsy 2-12-09, 50cc
4 of 12 samples positive 3+3=6, Right mid-medial <5%, Right mid-lateral 10-20%, Right base medial 10%, Right base lateral 10% adenocarcinoma

open RRP completed 5-5-09
Post surgical pathology report:
Gleason 3+3=6
Lobes involved - left and right
Extraprostatic extension - none
Surgical margins - very small area of margin involvement in right lobe
Seminal vesicles - Free of neoplasm
Vascular/Lymphatic invasion - none
J-P drain, staples and catheter removed on 5-13-09
pT2cpN0MX
No incontinence issues, no ED issues.
Back to work (desk job) in 9 days from surgery.
Surgeon: Dr. Gary B. Bokinsky

Remember, don't let the bastages get you down !!!


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 6/11/2009 8:12 PM (GMT -7)   
Paul,
I had the pain develop right at three weeks post-surgery.  The foam donut and the air pillow donut didn't do much to help.  I am 9 weeks post-surgery now and I only get occassional discomfort now.  I asked my doc about it at 7 weeks out and he said it is more common to the Davinci procedure, but not sure why.
 
PSA 01/07 was 1.2, PSA 01/08 was 1.9, PSA 01/09 was 2.5.
BIOPSY 02/24/09, adenocarcinoma DX at age 52
 Right:GS 3+3=6, tumor 3/6 cores, 10% involvement,PNI-Yes
 Left: GS 3+3=6, tumor 1/7 cores, <5% involvement,PNI-No
LARP 04/09/09,nerve sparing. Final pathology:
 GS 3+4=7, Margins uninvolved, 2 lymph nodes negative.
Catheter removed on 04/17. First no-pad day was 05/03.
ED treatment is 25 mg Viagra nightly.
First followup PSA results on 05/28/09: <0.1,undetectable!
 
 


LarryC
New Member


Date Joined Mar 2009
Total Posts : 3
   Posted 6/14/2009 8:49 PM (GMT -7)   
The donut was my friend for 10 weeks post op. Not sure but I suspect it was due to the surgeon's 13 additional biopsies during surg.
The gland had attached to bone and he had to be sure he extracted all the tissue. The pain when sitting was mainly on one side.
I think kegels helped but was a little difficult to do early on. Walking has been very good exercise. Much easier now to sit, stand, and walk.
Hang in there; it will get better.
lc
Age 57
DaVinci surg 3-5-09 (Memorial Hosp. Chattanooga, TN  with Dr. Patrick Foley)
Gleason 6
Nerve sparing, but stretched
Continent post cath
PSA undetectable at 6wks
Almost dry (minimal leakeage) at 12 weeks postop
Walking 3 to 4 mi at least once weekly
Still working on Kegels
 
 

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